9 year Survivor DX again

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Tedebarre
Tedebarre Member Posts: 10
edited August 2022 in Second or Third Breast Cancer

Hey Everyone. Sure don’t like being back here. I had DCIS 9 years, 8 months ago & have just been DX with IDC & DCIS grade 2 ER+,PR+(Low positive, HER2-, in the opposite breast from my prior DCIS. My quandary is…my prior DX was TNBC now it’s positive. Waiting on appt from Oncologist to see where we go from here. But it’s All Gonna Be Ok!

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  • Rah2464
    Rah2464 Member Posts: 1,647
    edited May 2022

    Tedebarre - sure am sorry to hear of your second round. Sending you huge hugs as you step back on the merry go round of doctor appointments.

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  • Moderators
    Moderators Member Posts: 25,912
    edited June 2022

    tedebarre - We hate the reason you had to come back here... so sorry about your new primary diagnosis. Please, let us us know how your appointment goes and keep us posted with news of your new treatment plan. We're thinking of you!

    The Mods

    Edited by Mods to improve accuracy of response.

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  • cathy67
    cathy67 Member Posts: 514
    edited May 2022

    tedebarre,

    Sorry to hear that you have to be back here, I wish treatment journey goes well.


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  • susielen
    susielen Member Posts: 3
    edited May 2022

    I’m sorry you have to go through this again.

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  • Tedebarre
    Tedebarre Member Posts: 10
    edited May 2022

    Thanks for your support everyone! MO said even tho IDC is “on the move” it hasn’t affected lymph nodes, but we’re doing PET scan next week to be absolutely sure! Had BRCA test today & should have those results when we get PET results. Surgeon is going to contact me before days end with consult appt—thankfully same surgeon I used 9 years ago. So long story short……not as bad as I thought, but worse than last time. Probably no chemo (that depends on PET too), but probably lumpectomy & rads! Happy day! 🥰


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  • Tedebarre
    Tedebarre Member Posts: 10
    edited July 2022

    Wow! Things moved right along since I last posted. Didn’t get a PET, instead got CT & Bone Scan. Both showed No Mets! Surgery was scheduled for 5 July, dr did lumpectomy & took 5 lymph nodes. Now to wait for path results. Should have them when I go back on 14 July. Dang this pesky monster. *sigh* Y’all take care

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  • Tedebarre
    Tedebarre Member Posts: 10
    edited July 2022

    So … the saga continues. 0/5 lymph nodes! Yay! But…..(isn’t there always?) margins are Widely Involved. Discussion was that we “could” re-excise, but since the tumor is larger than the ultrasound showed (3.5 cm -size of a 1/2 dollar) mastectomy was recommended. I made the decision that if that is the best route, we’ll do a bi-lateral mastectomy since this is my 2nd go around & I just don’t feel I can at 62 yo go thru this a third time. Again Good News—-no radiation or chemo either, still aromatase inhibitors, but no “hard stuff”…..*sigh* I’m scheduled for 2 August. 🤕❤️🩹😜❤️🤣😭🥴 current feelings…anyhow, thanks for listening.

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  • oldladyblue
    oldladyblue Member Posts: 272
    edited July 2022

    Tedebarre , so sorry you are having the C monster back. I can understand your decision for mastectomy. Close or involved margins are scary, and if you did re-excision wouldn't they recommend chemo and rads again? I am finally feeling recovered from my chemo and would hate the idea of doing it again. My surgeon said we "could" do a re-excision as I had a close margin, but then said it wasn't necessary if I did chemo/rads/AIs. Problem is, AIs react badly on me, so I worry about that close margin and recurrence in the future. I can understand your decision for bi mastectomy and no chemo or rads. If you've been on AIs and are doing well on them, that's great. I wish you well with surgery and recovery.

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  • Tedebarre
    Tedebarre Member Posts: 10
    edited July 2022

    Thank you LadyBlue. My surgeon feels with the bi-lateral MX he will get all the Monster. I do have an appt with my RO on Tuesday to discuss all the options, but it’ll most likely be aromatase inhibitors in the surgeons opinion. But I’ll post what I find out. I just never thought I’d be facing this C again. No family history & thankfully no genetics either. My girls can breathe easier!

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  • KotchAJ
    KotchAJ Member Posts: 126
    edited July 2022

    Tedebarre-

    I'm sorry you're back and you've had some mixed dang the margins, results. I'd do the same as you and go with the bi-lateral mastectomy, too. Sending you some good vibes and healing thoughts. It still just floors me when this stuff jumps around. UGH.

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  • oldladyblue
    oldladyblue Member Posts: 272
    edited July 2022

    Hi tedebarre, it is great that genetics aren't involved and your daughters can breathe easy. I had the same reaction when I found out. Sounds like things are in control for moving ahead for you.

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  • Tedebarre
    Tedebarre Member Posts: 10
    edited July 2022

    Kotchaj, I know! It doesn’t make any sense to me. No family history (guess future generations won’t have far to look for a starting point), no genetics, just a nasty draw of luck! But I’m still waiting on the oncotype results and I know it could be way worse. God’s got me, so I’ve got this! Now to move on to the new normal. Geesh I hate that term. I’m a stubborn mule when it comes to change, but I’m trying really hard to embrace what I know will be the new me, but still the old me! I have my DH, 2 DD & 7 DGC, and lots more family & friends, I intend to make many more memories with! So as is my Marine vet, son-in-law, says Semper Fi! Love to all y’all! 💗💗

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  • JoniB
    JoniB Member Posts: 346
    edited July 2022

    I had a recurrence in 2016 after 8 years of being cancer free. The second time was much worse than the first emotionally. I had genetic testing done and there was no genetic link to my cancer although my sister was diagnosed a year after my first diagnosis. Genetic testing did find that I have a slightly greater risk of colon cancer than the general population. Stay positive and enjoy every day.

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  • Tedebarre
    Tedebarre Member Posts: 10
    edited August 2022

    Good Afternoon Pink Sisters. So surgery went well on 8-2. Have been for follow up 2 times now & am down to 1 drain. It will probably be with me for a little while longer. Still have staples & stitches and tons of soreness and phantom feelings. BUT…the Cancer is GONE! Still some “minor” residual DCIS, but No Cancer. Now on to AI & Oncologist will discuss that at appt on the 18th. *sigh*

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  • oldladyblue
    oldladyblue Member Posts: 272
    edited August 2022

    Woohoo tedebarre! Glad all is going well and cancer is gone!

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