Recently diagnosed with metastatic recurrence seeking insight

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Sparks
Sparks Member Posts: 2
edited August 2022 in Just Diagnosed With a Recurrence or Metastasis

Well, after ten years, I was diagnosed with bone mets in March. I had unbelievable pain in my hip and was incorrectly diagnosed with bursitis. Fast forward six months and with some persistence in requesting scans, they discovered that my femur was fractured and I had been walking on it for at least six months then they discovered the mets. I had a rod placed and am 98% recovered from surgery, they radiated the bone and I have been on Letrozole for 2 weeks. I will receive Ibrance tomorrow and waiting for the go-ahead from my oncologist to start taking it. I have unwaivering faith and a tremendous circle of support. But no one quite understand what we go through. So I am hoping to find a friend or two, as I did 10 years ago. Be blessed, always!

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  • ParakeetsRule
    ParakeetsRule Member Posts: 571
    edited June 2022

    Hello! Welcome to the worst club in the world! :)

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  • Sparks
    Sparks Member Posts: 2
    edited June 2022

    I agree. It certainly is. thank you for the honest welcome :)

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  • Wren44
    Wren44 Member Posts: 8,585
    edited June 2022

    Just got pathology report this morning. BC mets. Much better than the lung ca I was worried about. I'll be taking letrozole and Ibrance too.

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  • NineTwelve
    NineTwelve Member Posts: 569
    edited June 2022

    Hello, and welcome to the Hotel MBC. Sounds like you have a good plan. There are many long term survivors here and this is a good group. I'm sorry about your metastasis, and I hope it goes quiet and never returns.

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  • Sunshine99
    Sunshine99 Member Posts: 1,680
    edited June 2022

    Wow, Sparks, I'm so sorry! I never thought I'd be on the Stage IV forums, but I am. Come on over to the Stage IV discussions and you'll continue to find lots of support.

    Carol

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  • Elderberry
    Elderberry Member Posts: 993
    edited June 2022

    Sparks: waving hello and welcome. I cannot imagine walking for six months on broken bones. You are one tough lady. We will all be here to support you.

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  • Anx789
    Anx789 Member Posts: 168
    edited August 2022

    Hello there, I’m not yet confirmed of bone met but MRI seems to point to that direction, “ aggressive marrow infiltration process noted involving 20 cm of the fibulae diaphysis…suspicious of metastatic disease…” I’ll see my Onco this Friday to discuss, what should I expect when I see him?

    I’m not in pain right now, the pain comes and go, it usually comes after a long walk and it takes 5-7 days to go away. Any input will be appreciated

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  • ParakeetsRule
    ParakeetsRule Member Posts: 571
    edited August 2022
    I didn't see this earlier, but how did your visit go?
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  • UpstateNYer
    UpstateNYer Member Posts: 387
    edited August 2022

    Hello everyone,

    I had IDC 3 years ago. Told my tumor was aggressive. Been on anastrozole for 3 years. Anyway, just had routine blood work and my liver enzymes were very high. Platelets were high as well. I go for a ultrasound next week. Also getting a consult from gastroenterologist. I am so afraid that it is liver mets. I was also told I am anemic and had a positive cologuard test, so go for a colonoscopy in Oct. To top things off, been struggling with sciatica over the past week. Everything seems to be hitting me at once. I wonder if the anastrozole could be causing the elevated enzymes as well. I need some reassurance, as this is driving me crazy.

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  • ParakeetsRule
    ParakeetsRule Member Posts: 571
    edited August 2022
    That's a lot to deal with! I hope you can get some answers soon. Waiting is the worst!
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