Faslodex Girls Thread 2014

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  • KBL
    KBL Member Posts: 2,521
    edited May 2022

    Please keep us posted on what you decide

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  • cowgal
    cowgal Member Posts: 833
    edited May 2022

    Just wanting to get the word out about a new weekly Zoom meeting getting set up. You do not need to be working to attend this meeting but the intention is to have a time that will work for those of us that can't make the current Zoom meeting times that are held during the work day. Here's a link to the thread for the input on a time and day that works for you: https://community.breastcancer.org/forum/8/topics/882768?page=1#idx_3 . Thank you!

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  • gailmary
    gailmary Member Posts: 332
    edited July 2022

    I'm just writing to give hope. I'm doing well. Dr is very happy. 5 yrs on faslodex.

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  • KBL
    KBL Member Posts: 2,521
    edited July 2022

    Gailmary, that’s so awesome. I think of all the shots you’ve had to get, but it’s so worth it. I’ve only been on Faslodex 10 months. Was on Ibrance and Letrozole for two years. Now on Xeloda and Faslodex and doing well. I hope you get many more years on this treatment.

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  • Mab60
    Mab60 Member Posts: 487
    edited August 2022

    Hi. I too would like to provide hope like Gailmary. I had my Falsodex injection last week, my dr. Informed me that it was my 84th shot, I am doing fairly well.
    That is 7 years on Falsodex! Thankful that it is covered by Medicare. I see the payments made by Medicare. Thankful for the drug.

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  • Sharware
    Sharware Member Posts: 32
    edited August 2022

    Hello everyone - I have a question and hope someone can help me. I have been on Faslodex 2.5 years and now have three “rump lumps” - two on my right hip and a new one on my left hip from last week’s injection. What, if anything, can be done to get rid of them? I’ve tried a hot tub with the jets spraying on them to no avail. They don’t hurt but are rock hard. And is there anyway to keep them from forming in the first place?? I remember reading someone used a rolling pin? Did it help? Thanks for any suggestions.

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  • ParakeetsRule
    ParakeetsRule Member Posts: 571
    edited August 2022
    Are they warming up the shots first? If not that might help disburse the material.
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  • Sharware
    Sharware Member Posts: 32
    edited August 2022

    Hi Parakeetsrule - the shots are room temperature but not warmed up further. I now have 3 “rump bumps” and don’t know how to get rid of them - two on the right hip and one on the left. 😞 I’m also experiencing a good amount of muscle soreness and aches in my upper arm muscles and both thigh muscles. I am wondering if anyone else has this problem from the Faslodex shots? I don’t think it’s Ibrance but having been on Faslodex for 2 1/2 years it must have built up and causing these muscle aches. Wishing everyone a blessed day. Sharwar

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  • emac877
    emac877 Member Posts: 371
    edited September 2022

    Sharware - I've been on the Faslodex almost 3 years now and I'm in the same position. I have the rump lumps too and so many now that they sometimes have trouble finding a spot to inject. They do let it warm up a bit for me but that hasn't seemed to help. I looked into it and Faslodex is steroid based and is mixed with castor oil to slow absorption because by itself it has a crazy fast rate of clearance from the body. The castor oil is probably the culprit. My routine is sitting on a heating pad and then doing a foam roller and individual massaging of the bigger ones as much as I can tolerate. They get a little smaller but don't completely disappear and stay pretty sore. I wish I had more answers for you and I am anxious to see what others have tried.

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  • sandy2124
    sandy2124 Member Posts: 1
    edited September 2022

    Hi, My name is Sandy I am not sure I am supposed to ask questions here, if not please let me know where I can ask questions.

    I will take my first Faslodex shot on Thursday. I was hoping someone could tell me what to expect

    Is it like other Chemo, will there be pre-meds? what side effects can I expect?

    Thank You,

    Sandy

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  • KBL
    KBL Member Posts: 2,521
    edited September 2022

    Hi, Sandy! I'm happy to answer your questions. Faslodex may be cold. Please ask them to make sure they warm it up. Also, there are no premeds. It's not like chemo, a shot in each butt cheek into the muscle. Try to make sure whatever side they are injecting, you take the weight off that foot and try to relax. Don't hold your breath. I tend to talk to the nurse giving it so I don't concentrate on it. The liquid is thick, so ask them to go slow. Good luck. The unknown is never fun. I was a little dizzy after the first set, but I think it was because I held my breath. I have not had any different side effects. I sometimes do get a little bruise or a bump after for a few days.

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  • ParakeetsRule
    ParakeetsRule Member Posts: 571
    edited September 2022
    It's just two shots in your butt. There are no pre meds but you'll want to make sure they are warmed up ahead of time to room temperature, not straight out of the freezer. I don't have any side effects but some people do. I just bend over and look at stuff on my phone and it's over in couple minutes!
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