STEAM ROOM FOR ANGER

There are companies that pick up the entire premium? I haven't seen that in decades.

Although I am fortunate to have always had very good health insurance I realize how dreadful our health insurance mish mash is for those who don’t have insurance. On another note, as a union employee whose health insurance benefits were part of our bargaining agreement, what one paid for health insurance depended the plan you chose as well as who you were covering in addition to oneself. For at least the last 15 years that I worked, I paid nothing for my health insurance at all. Over the 10+ years of living with mbc, I doubt that I’ve even paid $800.00 out of pocket for all my care. Yes, I was fortunate but what about my fellow citizens?

This is for 3 weeks of Ibrance. 21 caps. I’m on this forever or until I have progression. I also have a PAN grant, so I pay nothing. I’d be dead if I had to pay for this.

Those of us with good insurance can be a bit spoiled in that we can get our needs, even non-emergencies, met fairly quickly. I would be very happy to have longer waits if it means that we all have access to decent health care.

After I was unable to work anymore and went on SSDI and was home with DH all the time we have found sometimes it helps if we just go in different rooms for part of the day. He can watch his sports or putter in the yard and leave me inside alone and that is fine too. A little apart time seems to help sometimes and diffuse when we are ready to blow. Most the time we stare our the windows at the birds and squirrels in the yard and watch traffic on the street. He is suppressed and since COVID we are both stuck inside and I cannot drive now so not like I can go anywhere without him either. Grocery trips are our one outing and we do it about every 2 1/2 weeks to stock back up on produce any other staples we need. We make go super early when they open when no one is in the store and get in and out and then he wants to run through the store the whole time which drives me crazy and get home and do not have something I need to cook dinner because we skipped that aisle because someone was on it. I tried doing grocery delivery before but we had to pay for it and he said not worth the cost and he woudl rather pick out his own fruit. Decided not worth the fight.

Oh Alice I am happy you at least have hubbs out of the house five days a week. Mine retired early and his retirement gift was my cancer diagnosis. We live on a farm so not much opportunity to see folks. Between the retirement and covid way too much time spent in each others space. Sometimes he just breathes too loud haha

thank you - Dancemom! Because of cancer we had all the supplies needed to live with one, but I was happy to leave it all in the closet untouched! An unexpected surgical (non cancer) complication left me with a drain for an unknown length of time and it sux.

Wrenn perhaps I have that as well

wrenn, just last week I read a memoir by Jenny Pentland, the daughter of comedienne Roseanne Barr, and she said that she has misophonia. She didn’t discover until later in life that the dramatic response she had to things like the sound of her brother breathing or chewing while they were in the car on family outings was not her overreacting but a true disorder.

The thing is, I never heard the word before in my life and within a week, this is the second time I’ve come across it!

Hate COVID and the affect on medical offices. At MO today get there and of course big line to get in because everyone stands 3 feet apart to check in at the desk. They have only 3 people up there for 6 doctors in the office and the chemo and lab in the same clinic.Even though got there 20 minutes early and it said to be there 15 early barely got checked in and into the room before my 8:00 appoitnment. Then of course doc put in orders for testings in a few months and follow uppoitment but all the scheduleers are working offsite so could not even get anything set up and now stuck at this point. I would rather shedule and know what is going on and be prepared and not have to worry about remember to follow on it and nag them again in a week if I have not heard from them yet.

dancemom:

Back in the earlier days of the pandemic my area saw a big spike in cases but one of the questions covid screening questions on the list was still "Have you been to any covid hot spots recently?" and I was like "Yeah! Here!"

bcincolorado, that sounds like an over-booked and under-organized office. I've only had to book one resting appointment in the last almost-4 years. The site was down when I had my last urologist visit, so I didn't get my CT set up. I mentioned it off-hand at my next PCP appointment, just something about remembering to put it in my calendar to call. When I went to checkout, they had me all set up on a 3-way call and all I needed to tell them was what date was convenient. My MO's office is the same way. All my previous medical experience has been much more complicated, and I keep waiting for an "Oh, we don't do that anymore." I've gotten spoiled basically sleepwalking through the whole thing all this time.

ETA: I have no idea what my phone - or this site - thinks a "resting appointment" is. After several hours, I have no idea what I was trying to say.

Jo-jo I just read your story and am so sorry you and your children are going through this. I am super mad at alcohol and how it can just change the people we love. I hope youare able to find some peace and please let us know how it’s going.

My hospital started texting/emailing a link that you had to fill out for each appointment, with the Covid questions on it, so when you arrived the volunteer at the door just had to ask "any covid symptoms?" while handing you a mask and pointing to the hand sanitizer.

Ive never completed any of those forms - I had so many appointments there for a while I didnt know what form I was filling out for what, so I just stopped. No one checked, no one asked, no one called, no one cared.

Regarding the mask mandates lifting - you would think Covid never happened in the UK and yet we probably have high circulating figures. Ive started going to the store and other shops maskless (unless its really full), though I still take the Tube with a mask. Pretty much just stay alert and social distance and mask if you feel you need to. Partner got sick with something/possibly covid and I never got it!

Lots of frustration from yesterday, and I'm still steamy.

Went to an MO appointment, driving 30 minutes each way. I arrived and found out they had canceled my appointment without telling me. I had even asked if they wanted to keep the appointment given I was having surgery this week and there was no new information since the prior visit. Since I had confirmed the appointment via their online system, I assumed (stupidly) that it was still on. Their notes said to schedule next appointment 2 weeks after surgery. Why on earth wouldn't they call to reschedule and just cancel with no follow on appointment?

Then, I found out our company's (Fortune 300 level size) newly outsourced disability policy doesn't pay benefits until 7 days being out of work unless you are hospitalized overnight. My surgeon had said I'll be out 5 days. After 22 years of being careful using my paid leave (no sick leave, just paid time off), I was really pissed to find out that while the company provides 5 days a year for a caregiver to help their mother in law, I am fully expected to use my PTO for cancer surgery. With COVID, I think a lot of surgeries are now discharged the same day. I'm still just as disabled after general anesthesia as I would have been in the past where I might have been kept overnight. Treating my partial mastectomy (substantial lumpectomy including skin removal) the same as a colonoscopy is just freaking wrong.

That is all.