Taxotere/Carboplatin/Herceptin and Permanent Partial Alopecia
Would anyone here have been through the TCH regimen for HER2+ and also not had their hair come back normally? Any feedback on what you have tried, if so, and how it did or didn't help?
I knew going in that a tiny percentage of women never get any hair back after Taxotere. And a small but more significant percentage end up with permanent thinning along the lines of male pattern baldness. I didn't think it would be me- I had hair so thick, multiple hairdressers told me they'd never worked with anything like it. Now, I have what I call 'bird floof.' If you see me from the front you might not notice much beyond my hair being quite thin. On top and along one part, though, it's almost non-existent. I tell myself it's a small price to pay for existence, but it's rough to know I might never *not* see my skull again, and that I have less hair than my gram had in her 80s when I'm 'only' 59.
I'm going to see a dermatologist next week. I've heard about the plasma 'shots' in the scalp that might help. I've heard oral minoxidil might be of assistance and also help with my very moderate high blood pressure. I've heard steroids might be of use- my least favorite idea of the options that have been mentioned.
Looking for feedback on what's been tried, and what the ups/downs are.
Comments
-
I had TCHP with my last treatment in December. I am still on H&P and mine is slowly coming back. I noticed baldness in the back at first but it is filling in.
-
I had TCH in 2012/13. While my hair grew back, I developed a receding hairline and thinness on top. Very distressing. I joined a class action against the makers of Taxotere for failure to warn of this possibility at the time I was treated. We "lost", no class certified. In any event I now have MBC, and my hair is thinner and thinner from hormone and targeted treatment.
-
@jullyn - I'm glad yours is filling in for you. My problem is that what I do have coming back is exceedingly thin. I think I'll have to evaluate treatments or accept that a wig might be best. Will see.
@moominmamma - Sorry your case failed. Especially back then- I don't think anyone had any idea of the potential for hair loss. I didn't go in blind, but was surprised to learn that a fairly high percentage of people don't get their usual hair back after chemo. I hope your treatment is going well and will continue to!
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team