My Husband, My Life, My Love, My Family, My Cancer

Reporting forpocket duty for Mocogram and Sunshine! Hoping for good scans 😊😊

reporting for pocket duty as well.

Thanks, everyone. For the second time since my mets dx, I'm afraid. My (L) foot has been hurting, and now my right hip (not the one with the mets) has been hurting. I feel like it's going to collapse on me when I'm walking. I'm just afraid... I can't wait to get these scans done. I check in at 7:30 tomorrow morning for the nuc med injection. The CT scan is scheduled for 9 AM and then the bone scan at 10 AM.

Hey ladies

Pocket duty for sunshine and Mocogram.

Tany

Hey there: pocket duty for everyone and asking one for me for tomorrow. Feeling the usual scanxiety. I wish the results didn't take so long.

seeq: Our kitchen is undergoing a "refit" -- new counter, new cabinet doors (custom made since we kept the boxes which are non standard for today's kitchens) installing a dishwasher...paint....a wallpapered ceiling and crown molding. It has elevated our dumpy late 1920's kitchen (last renovated maybe in the late 1940"s) into something that looks terrific. Yes, I repainted frequently but it was really lipstick on a pig. Now it looks -- well - TERRIFIC. I am sure you will be so happy. Who knew wallpaper on a ceiling could be so utterly cool? We have 10 foot ceilings so It could take crown molding and wallpaper. I am glad I let our contractor talk me into it. Our basement still needs TLC. We need to bring it up to code ( plumbing, electrical) so $$ $....Right now it is gutted and a sad sight, Ye, we are crazy at our age but we have no children and our "dirt" is worth a ridiculous sum of money. We can pay pay off the Line of Credit and with pensions and the sale still have enough to see us out in comfort. When it is done it will be space I can enjoy for however long I have left.

Cyber hugs to my beloved sisters on this Forum

Reporting for pocket duty for Elderberry, MoCoGram, and Sunshine. Congrats on the house Mae!
Not much going on here. DH went to replace a water hose Bibb in the middle of the back yard. That’s where they put them back in the day. He turned off the water main. Tried to remove the spigot and it wouldn’t budge. Turned the main back on so we could shower and such. I turned on the bathroom sink faucet and debris or something clogged up the faucet. I reached up in it and the aerator disintegrated and nastiness fell out. He went to replace the apparently very very very nasty faucet (with rust and all kind of crud up in it) and handles with new ones. It is day 3 and I have a pedestal sink in two parts on the floor of our bathroom. It’s been one thing after another with this damn sink, and it started with an outside hose Bibb that is not fixed!

So glad we are back together. Felt lost without having daily contact. Missed you all so much. I’m here for pocket duty. Had my right hip MRI on Wednesday and dodged a bullet. Thankfully it was not a metastatic lesion that was found on scans at end of February! Instead I have vascular necrosis in the femoral head (top of ball joint) which is essentially bone death due to inadequate blood supply. I will see an orthopedic specialist 4/12 and my guess will be a total hip replacement as treatment.

Mae - congrats on things falling together with the house! As we seem to be heading back to opening up, do you think your hubs will go back on the road with groups

Denny- Post anytime!!!! "Pocket duty" or "in your pocket" means we are routing for you. Picture a sweater or pants with LOTS of pockets, so we are riding along with you to your scans or appointments. When I am scanning, I think of all on here that are with me in spirit while I am in the MRI machine.

I am seeing a local ortho doc tomorrow. Usually at my local ortho clinic you see one doc for a shoulder issue, another doc for a hip issue, that one for the back, etc. I called 1 doc in particular and asked if she could see me for ALL my joint issues. I want to talk to her about the whole me. Then, I am seeing a rheumatologist the end of May to discuss with them. Is all this immune issues or mechanical issues? I have been told before I need back fusion and a hip replacement, but they will not do it with the MBC. ??? Goldens and others on here that have had surgery??? I guess if I had a broken bone or something emergent then that is different. But just worn out areas they think surgery is too iffy.

Good to read about you all.

I’m here for pocket duty too, I’ll bring dark chocolate.

Congratulations and sympathies to those of you doing renovations, rewarding but troublesome too.

Goldens, DH is keeping his driving requirements up to date for professional driving but has little interest in going back and does not want to leave me alone on the mountain. It’s so different from being in a city, wonderful but potentially dangerous if i accidentally injured myself somehow. We know first hand from our friends situation last year that help could take days, if at all.

Goldens- My best wishes to you, and hope that if you need the hip replacement all goes well. Actually, if they said they would do lumbar fusion on my lower back, or a hip replacement on my right hip due to the arthritis degeneration, I would not want major surgery. Off my blood thinners for the surgery and the risk of a clot (I had a clot to the lung last summer). And being off cancer treatment to raise my counts in preparation of surgery. So even if they agreed to surgery, I would say No for now. But with your bone death, that sounds like a needed surgery and not an option. I am just saying that when I go to my ortho docs they say "If you did not have cancer, you would be a surgical candidate". But with the cancer they are not going to do surgery on me. That is what I am told.

goldensrbest,

Last spring I had a complete hip replacement to my R side and a rod inserted in my L. Surgeon told me that deterioration on both sides was a combo effect of arthritis and MBC. No talk about not doing it because I had MBC.

Took away the pain. PT made me functional again. Good luck to you.

Elderberry and others-- I know. Crazy. Yeah some with MBC live YEARS. I don't know if it is me (something I am not understanding) or my local ortho docs (not just 1 doc saying this). Seems my local doctors do not want to take the risks with someone with active cancer/on active treatment/ and cancer in bones. I even had another doc (local) that said they would offer an epidural steroid shot for the lumbar back issue for pain control, but when she saw my labs on the computer (WBC then 1.0 with Ibrance use) she said a big fat NO. Said it was too much of an infection risk to do the epidural (she would be the one doing the actual injection) and said for me to use oral pain meds instead.

Maybe if I sought out a surgeon in less of a rural area, maybe they would be willing to go ahead with surgical intervention. But, like I said, I am not keen on signing up for major surgery if I can go another route. Pausing blood thinner. Pausing cancer treatment. Living alone and recovering. No support system. Etc. Etc.

Sunshine, stable is good. I’m still in your pocket for your appointment.

SeeQ, grandkids are the best. I had no idea I needed him so much. He came two months after I was diagnosed and is the best. I hope you get more visits. I’m way behind and now caught up. If memory serves, you had a few close calls with weather and fire. Yikes. Stay safe.

Elderberry, in your pocket.

I’m sorry if I’ve forgotten anyone. I am a day behind.

Hello lovelies ~I hope everyone is hanging in there. Stable is a good word! I just wish we could all get off of the cancer bus. It's a never ending ride we don't enjoy and would rather not stay on. I'm thinking of you all tonight. It's going to take us some time to get caught up fully. I changed my mind about a dog. I just donot want the extra work l, I never know how much energy I have. It's not fair to a doggy I do want one. But can't guarantee I can do it alone. DH doesn't want one either. Can't say I blame him really. Food costs money, vet bills , then another heart break and more vet bills. It's just better this way. I dot think I'll get over losing my tag and Deeohgee. That's just the way it is.

Hey gang, checking in, it’s been a while. I’m glad the BCO site is back, warts and all. I have a CT scan on Friday, first one since starting weekly IV chemo in January. I’m on a low dose doxrubicin…10 weeks done so far. I’m not liking being tethered to the cancer agency for weekly treatments…it is what it is. Be well, An