STEAM ROOM FOR ANGER

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  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited March 2022

    jo-jo sending you virtual hugs.

  • Jo-Jo2018
    Jo-Jo2018 Member Posts: 124
    edited March 2022

    Thank you so much for all your kind words and support. I am seeing a Psychologist on April 5th through the cancer clinic so I will get some resources from her to help me and my boys.

  • Rah2464
    Rah2464 Member Posts: 1,647
    edited March 2022

    Jo Jo that is wonderful news to hear. There may be other resources available through your cancer care clinic to assist your family during this very complex time. All my very best to you and your boys.

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited March 2022

    I am glad they were able to offer you some resources for you. Wishing you all the best.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited March 2022

    Adding my hugs and best wishes to you, jo-jo2018.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2022

    Adding my hugs and best wishes to you, jo-jo2018. I am glad your cancer center has resources for you and your boys. We are here for you!

  • nipab
    nipab Member Posts: 48
    edited March 2022

    Love this thread. One of my friends wasn't happy with me when I did not let her know about my cancer of 2015, which was taken care of by lumpectomy and radiation. So, this time after my mastectomy, (yes, I got triple negative this time within 6 years! this year sucks and hate it) I let her know what is going on. She called me right away and was very nice. But then she HAD to tell me that she doesn't go for mammogram because she doesn't want to know the results and was worried about radiation from mammo!! REALLY? Who would that help? ME? YOU? Some people are completely stupid and thinks if their mothers have lived life without cancers, they will be ok too.

    It's my time! Time for her to give me pep talk, instead, here I was telling her what the right thing is to do!!

    Like I said, THIS YEAR SUCKS

  • modmod4
    modmod4 Member Posts: 8
    edited June 2022
  • SeeQ
    SeeQ Member Posts: 884
    edited March 2022

    It's working! So pleased we're back online!

  • Moderators
    Moderators Member Posts: 25,912
    edited March 2022

    We're trying it.

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited March 2022

    nipabj everyone makes the choices that are best for them at that time in their lives. No one has the right to second guess any person's choices. I am sure they were mostly concerned for you based on their own experiences and did not stop and think. You deserve to be respected for your choices.

  • WC3
    WC3 Member Posts: 1,540
    edited March 2022

    jojo:

    My father, who is loving, struggles with substance abuse and mental health issues and life improved for us kids sometime after my mother divorced him and kicked him out of the house because his issues were so disruptive. At 17 and 18 your kids need to be gearing up to spread their wings and take off in life and should not have to be hindered by their father's issues or abuse. I hope you will be around for quite some time but if you think you might not then I would recommend finding a someone who is willing to serve as a guardian for your kids. Even though one is a legal adult and the other almost is, most young adults don't feel like full fledged adults until sometime after the age of 22, and still greatly benefit from a parental figure to help guide and mentor them.

  • WC3
    WC3 Member Posts: 1,540
    edited March 2022

    Here's a fun game. It's called "How much will my meds cost with my new insurance?"

    I've talked to all parties involved and apparently no one can tell me the answer so I'm currently straddling my old insurance and new insurance not knowing which is more affordable.

    The goal is to get my monthly out of pocket health care expenses below $1,000 per month.

    With my old insurance, I have no deductible but the premium is a little over $1000 per month and the lupron now costs me about $200 per month, down from about $800 per month. I'm not sure the reason for the drop but in any case, the amount I pay is the difference between the base price and negotiated rate. Old insurance likes to call this my copay, only it isn't written anywhere in the plan benefits.

    With the new insurance, the premium is about $300 per month but there is a deductible which a lot of things don't apply to and while I'm told my out of pocket reaponsibility for the lupron will be 15% after the deductible, 15%, no one can tell me, 15% of what of the base price? A negotiated price? And if so, what is it? If the base price is $5000 then that would be $750 so that is still over $1000 per month after the deductible with the premium and copays.

    Bonus: The state ACA website says I qualify for medicaid. The state medicaid office says my income, based on my 2020 tax returns, is $60 too high.




  • Goldcity
    Goldcity Member Posts: 52
    edited March 2022

    I hear ya. Working through insurance is a special hell of its own, prescription coverage in particular. My husband just got a break with his 2 most expensive prescriptions - he gets them free from the manufacturer. Qualification was based on how much the household spends o meds in a year. Sadly, those programs don't work the same for most of our meds. (We're both on Medicare). I hope you can find a way to reduce your monthly costs. You certainly don't need the stress.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited March 2022

    Jo jo, it's good you are seeing a licensed professional to discuss the matters you're dealing with. We are here to support you, but someone with training will have the time and insight to hopefully help you navigate the choppy waters. I will say that as women, we are often trained to put everyone else first. At one time, you may have made your husband's issues the priority and though you've done your best to be there for him, you may have to admit you've reached a point where you've had enough. Again, society tries to instill in women that they must suffer through all for their loved ones, as if sacrifice is a hallmark of womanhood. Whatever guilt feelings you have towards making yourself the priority, I hope you can work through them. It is still hard for me to do, but I am learning and making progress, even if at times it's baby steps! Best wishes to you.

    Nipab, I had a similar thing happen with my older sister who mentioned not getting a mammo for 15 years. This was years after I'd been diagnosed! What pissed me off is that it seemed pretty intentional that she said it to me, almost like a braggy thing. It also felt like she was implying that my diagnosis was insignificant to her, that it did nothing to make her think she should get a mammo. I chose not to react but it was one of numerous red flags I started noticing with my siblings and have since put more firm boundaries into place in my relationships with them.


  • nipab
    nipab Member Posts: 48
    edited March 2022

    divinemrsm, you are so right. I also feel when I talk to some people that they think they are superior and somehow, it's my fault that I have cancer. I did not smoke or drink that I got lung or liver cancer. Some 'friends' also let me know that they breastfeed their babies for two years, so they don't get this problem! Like my one year of breastfeed got me into this mess!

    Sometimes I wish I was so bad that I would like for them to get cancer and learn their lesson. Fortunately, I am not bad, and I do not want that on anybody, but oh I wish, I wish!!

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited March 2022

    nipab, you make very good points about how some people act superior since they haven’t got bc, like they did everything the right way (how perfect of them) and/or some try to insinuate we brought this on ourselves. When it comes from a friend or relative, it makes you question how much they actually care for you to make those kinds of remarks.

    I remember when my sister’s close friend was a victim of identity theft and had to battle to get it all cleared up. My sister went right out and bought a shredder and proudly claimed she now opens her mail in the garage before she even gets in the house and shreds everything except the truly necessary stuff so no one can ever steal her information. So it’s okay if her friend goes through something it spurs her to action, but when it’s me, it apparently means little. And I mean, she doctors for numerous things, so it’s not like she avoids medical care.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited March 2022

    I think I've mentioned before that my sister, now in her mid-70s, FINALLY got her first mammogram a year or two after my lumpectomy, and she kept whining ahead of time how it might huuuurt, and then afterwards how the technician hated her because she didn't know what to do and they had to keep redoing it. I told her if she'd have kept still like they told her, it wouldn't have been a problem, and that she needed to find a new audience because complaining about it to me was so out of line. She didn't understand why. AAARRRGGGHHHHHH!!!!!

  • Elderberry
    Elderberry Member Posts: 993
    edited March 2022

    To All: like some of the other threads, I have been gone for a while. My heart breaks and my head nearly explodes when I read about the hassles and the costs of your health care. It is just SO WRONG. Yes, the Canadian system stutters and stumbles but I never have to worry whether I can afford the care I need. Our RX costs are lower than yours, even for things not covered under the Provincial plan. Why does insulin (I don't need it thankfully) cost roughly $36 /mth when I hear that in the USA it costs nearly 10 times that?

    SO WRONG


  • wrenn
    wrenn Member Posts: 2,707
    edited March 2022

    I agree Elderberry. Every once in a while when I come across a post where people talk about how much they have to pay to get treatment I start to panic. I could not handle this worry. Yipes.

    I think before we had universal health care in Canada people might have chosen carefully about whether to see a doctor (good for me as a hypochondriac). I actually don't remember seeing a doctor when young. I can never remember considering money when I did start seeing doctors and have never had an issue with long waits or choosing which GP or specialist to see so I was stunned when I started reading here about people not being able to afford treatment or not being able to go outside a certain group. I knew the US didn't have universal healthcare but reading about personal experiences broke my heart.

    Like a diagnosis of cancer isn't traumatic enough. I so hope this changes.

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited March 2022

    wcj that is crazy that one is saying you qualify for assistance and State is saying you do not . A social worker work at your cancer clinic might be able to give you some guidance and where to turn for assistance.

  • ParakeetsRule
    ParakeetsRule Member Posts: 571
    edited March 2022

    It also horrifies me how much other people in the USA have to suffer when it comes to cancer treatment and insurance companies. Cancer is bad enough on its own! People who oppose Canadian or European style health care don't know what they're missing. No, it's not perfect. Nothing is. But it's SO MUCH BETTER!

    And it's not like we don't know how to do it. We DO! It's just restricted to military and veterans only. (and Medicare to an extent I think?) All of my cancer treatment has been through the VA system and it's been great. It makes me so mad that people would rather keep struggling with our crappy system rather than do what it takes to get better and affordable health care for everyone.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited March 2022

    parakeetsrule,

    👏

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited March 2022

    I've got Medicare Advantage, which is the bargain version of enhanced Medicare, and I'm so glad I didn't have any health issues between ending work and starting on this plan. I was on my husband's work plan, but paying any out-of-pocket costs would have tanked us. I did not have insurance during most of the 1980s, because at that time we could not afford the premium on my husband's insurance. Our son, who was a baby then, was eligible for visits through a clinic, but we still had out-of-pocket expenses. One time I fell off the porch of a house we were renting (do not mix flip-flops and a rain-covered wooden porch!), and I went airborne, then made a one-point landing on my lower back on the corner of a step. Since I was neither bleeding nor paralyzed, I didn't go to a doctor. That's how I had to make medical decisions. I could barely walk for a couple weeks. Another time I cut my thumb badly and I just kept a pressure bandage on for several days until it completely stopped bleeding. I knew I wouldn't bleed to death from it, so self-repair it was. I've got some lasting damage from both of those. 😡

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2022

    Agree Alice, love my Advantage Plan. For medical, it’s been great. Both eyes cataract surgery, out of pocket for me, around $300. Dental insurance, not so great. But they did pay a little bit on the 4K I had to pay last month.

  • Elderberry
    Elderberry Member Posts: 993
    edited March 2022

    Alice: I sliced the top of my thumb, had a chunk hanging there by some skin. Yes - I should have gone to emergency and had a stitch put in, but I figured I wouldn't bled to death if I kept applying a pressure bandage. I didn't want to go the ER - it was in the midst of Covid. But I believe even had there not been a pandemic raging I would not have gone. I hate sitting in those rooms with genuinely hurt and sick people. I don't want to burden the system with something minor.

    What I don't understand is the fear folks seem to have about universal health care. If I don't have to pay for it I won't get it? Or it won't be good? Or worse yet - the slippery slope to socialism

    I guess I am a socialist. I believe education, health care and safe housing are human rights and everyone should have access to them.

    Okay - that's my rant

  • candy-678
    candy-678 Member Posts: 3,950
    edited March 2022

    Elderberry- Wish I could "Like" your post--- "I believe education, health care and safe housing are human rights". Guess I am a socialist too.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited March 2022

    elderberry, I've become more of a socialist the older I get. What got me started was spending about a year as an events coordinator at a not-for-profit, and having to deal with some of the most loathsome rich people imaginable, and their expectations that everyone has to bow, defer, and get out of their way just because of who they are, not because of anything they've accomplished. This bitch don't bow.

  • Dancemom
    Dancemom Member Posts: 369
    edited March 2022

    not a socialist, although I do strongly believe in social responsibility, and notice that many people only csre if it's mandated

    Relying on private sector for insurance is bad policy. As a small business owner, it is our single biggest expense. Some numbers:

    Over $3000/ MONTH for our in-network family plan

    $60 copay + $73 "facilities fee" EACH TIME I go to a doctor

    $11000 family deductible

    I am so grateful to have insurance that is covering all that I have done this past year. We have to budget in the base cost and the full deductible. (Although many things aren't covered, like PETscans, and everything has to go through multiple appeals.) But we are both still working 7 days. I don't know what happens in future. I just don't think about it.

    Alicebstable even as owner, I am treated as The Help 🙄

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited March 2022

    That premium is more than a lot of people's paycheck. It's obscene.

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