STEAM ROOM FOR ANGER
Comments
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Moth, thank you!
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sbelisabeth, what a beautiful memorial.
Betrayal, you're right, at one time cemeteries were created to also serve as a public park and people would even picnic there. Oakland Cemetery in Atlanta, GA holds concerts and other special events and they also give guided tours. The cemetery was originally created for leisure outdoor gatherings as well as for burial. So many cemeteries are beautiful.
bcincolorado, I'd love to know where at in WV your grandparents lived as I am right across the river from it and my late father in law hails from down hoopy.
Scarlett, it looks like you just got diagnosed with mbc. You're right, it's a journey, can be a roller coaster ride and hopefully you can reach a point where it is something like keeping your balance while riding the waves in the sea of life. Be good to yourself. It's understandable to be in a funk with an mbc diagnosis. It took me at least a year, and a prescription for antianxiety meds, to come to terms with a new normal. I continue to make adjustments along the way.
A few tips: simplify things in your life where you are able. I simplified housework and stopped giving so much energy to superficial relationships. More recently I'm learning to say no more often to things I don't want to do. Then, add more of what you really want to be doing into your life. It's all a process. I'm still learning to allow myself to ask for more from life. I don't mean going big and splashy. For me, what matters is to live a meaningful life. Sure, I did more traveling at first, but I also have picked up hobbies here and there, learned to savor delicious food, allow myself to seek out and soak in the beauty of lovely landscapes. One of my favorite things is to take my time and not be rushed. Can't always do that but appreciate when I can.
You might like the thread Life does not end with a stage IV diagnosis (really!). One of the discussions there was about the pressure to make the most of each day. I put my thoughts down on the following page (somewhere in the middle), and others added their own take. You might find it of interest: https://community.breastcancer.org/forum/8/topics/818931?page=115
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well said moth
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scarlett feel free to vent here anyttime about anything here and we support everyone here. Virtual hugs to you.
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Moth, you do have a point. I fluctuate back and forth.( being thankful or waiting for the other shoe to drop) I went on an antidepressant again this year. The black cloud is exactly how I describe the feelings I have. Perfect description Scarlettx.
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selfishly not reading any recent post, but I have to vent.
Sitting w 11 playing a game and my stupid stretched boob hurts. It's been a year of "mom can't because...". Yesterday I was really tired for no reason and said, "you know I don't love cooking, but I always make passable dinners ( DH is a chef and often does the honors). I just really don't feel like it today.' 11 said "mom, you had surgery recently! It's ok. Let's order pizza"
I am so torn. Surgery was 7 weeks ago! I should be being a mom. Also, surgery was 7 weeks ago. I am in pt to do a fraction of the things I could do before.
Cancer feels like 'the job' and everything else- my career, my family... is the extracurricular.
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Dancemom, would you consider reassessing what it means to be a mom? Does dinner only count if you prepare it with your own hands? Is it “cheating” if you order take-out to feed your kids? We don’t have to swallow what society tells us makes up a good mother. If your kids are fed, then good. Where the food comes from seems incidental.
I have a few mantras I try to keep in mind. Here’s one: “Less is more”. It really is. A mom doesn’t have to do all the things. AND a mom is allowed to lighten her load. That leads me to the other mantra, “Work smarter, not harder”. Many tasks can be simplified, streamlined or delegated. Don’t think of ordering take out as a cop out, consider it a smart choice!
I’m getting better at recognizing the signs of when I’m taking on too much, and when that happens, I reevaluate, make adjustments, eliminate the unnecessary. Without guilt.
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So true Devine. Well said.
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thanks divine
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dancemom it is tiring. It is good your family is realizing that as well. I feel for everyone who has kids at home still and trying to be a mom to them as well and know how that "mom guilt" creeps in on you sometimes. Hang in there and you have a lot to keep you going it sounds like.
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Dancemom- DivineMrsM's post is spot on, and the best part is your 11yo can already see that. Cut yourself some slack, it's okay to lower the bar when you need to.
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Dancemom, if your bestie was crying and told you the stuff you told us, what would you say?
You'd say, "Give yourself room to breathe. Room to heal, and 7 weeks is just the beginning. Time to figure out your new normal, which completely sucks right now. But give it time. You'll get your rhythm back."
And you will. Tell your inner critic to shut up; you're on a slow road to recovery, and that's just fine.
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I agree that it takes quite a bit of time to adjust to new normal's whatever they may be. I think it's OK too to lose patience while going through the process and it's also Ok to say Why me!
I survived the upper endoscopy. Nurse took 3 times to get an IV needle in, all while telling me she is not a digger and apologizing. I may have said something if she didn't keep saying sorry. She was literally digging while saying she is not a digger! The top of my hand is bruised but it doesn't hurt. Having a little D. Daughter thinks it's the soft food, I hope she's right and I'm not having a side effect of taking the anti biotic for the recent uti. Next few days I will only be stressing over having a normal poo!! These are the things we do now. It's all perfectly normal, right? I LOL a lot to keep sane.
Having had a bc history, although I didn't have aux. nodes removed, just sentinel I don't do needles on my left side. After radiation I had a skin reaction to a blood draw that lasted for months. A BP cuff is all I allow.. Does the risk of LE or a skin rash ever go away? Is it time for me to give up my left arm?
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Please know I support all feelings. Get steamed, get pissed, get angry, vent your frustrations. We are allowed to have them. And that’s specifically what this thread is all about. Dancemom, your feelings are understandable. It sounds like being a mother has had to take a backseat to cancer treatment and all it involves. It seems so unfair.
My comments earlier were only to suggest you be kind to yourself. I don’t mean squash your feelings down or that you should try to slap a happy face on what you’re going through. Feel all the feels. For me, after I give myself time to process similar emotions, whether its days or weeks (hopefully not months) I reach a point of, ok, wtf can I do to get a better handle on this to move forward. I start looking at things from a different angle, ask myself what is working, what isn’t working (and eliminate that), can I try something new. Even small adjustments over time have an impact.
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thank you everyone. Yeah, I just needed to vent. It's been a year of doctors and treatments and it keeps going on and on. I'm tired of always needing to "do less". It feels weird to have my little guy be the one to remind me.
Ctmbsikia, Oof about the IV! Im sorry. I have hard to find veins (very fair, so they look accessible...), so I am lucky that often the draws are at the cancer center with a great phlebotomist. And my GP is old school and does them himself VERY WELL. My sister tells me NO doctors at her hospital can do them anymore. I didn't know about that rush of skin reaction on the surgery side.
Here is to continually lowering the bar 🥂! haha.
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Vent anytime Dancemom.
I called to schedule a GI follow up as instructed, and they said doc is booked out and they don't have her schedule beyond 2 months. I'm not calling back, I'm done with this practice unless I have another issue. It only took 7 months to get an endoscopy done, although a couple of months was due to investigating my liver. Should they send a survey I will fill it out with my comments. If you're too busy for your patients, then they should be referring you elsewhere, no? Ugh
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ctmbskisia thats crazy! Specialists always have waits for initial appointments, but follow ups are scheduled differently. Did they understand that this is a follow-up? Wow.
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Yes, I told them it was a follow up and I got as far as my name and dob so I'm sure I'm in there. Oh well, I've moved on, up next week is MRI of breast. Hate that damn machine
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Scans are the pits sometimes. Will keep good thoughts going your way that yours will come out ok ctmbiskia you deserve a break for a bit.
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All cancer is the pits. We just got back from having to take our little dog to be put down. She went downill fast today in an hour and was fine this morning. Vet said tumor on the spleen and she was bleeding internally. Common in dogs and cancer has probably spread to other organs as well. She went seriously in 2 hours. So sad and it is the pits. Hate cancer. Vet said it is something they can't even catch to treat early.
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So sorry, bcincolorado. Our fur babies are important members of our families and we feel real pain when we lose them. I’m sending prayers that your memories of her unconditional love bring you strength. We have them with us for such a short time but they remain in our hearts forever
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bcincolorado, I’m so sorry for your loss. I am thinking of you and know all too well how it feels when we have to say goodbye to our animals. Hugs!
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bcincolorado, I'm so sorry. There's something about losing a pet that makes us feel so helpless, I guess because we can't explain it to them.
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bcincolorado - I’m so sorry.
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Thank you all. Our other dog who is 14 is lost right now and keeps looking for her. We know we gave her a good life for 9 years and she was our baby spoiled dog. It just happened so fast and we were so shocked when the vet said it was cancer in her spleen and caused bleeding internally and they could treat her. I did sit with in the car going there.
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bcincolorado, thank you for your compassion in ending her pain gracefully. I'm so sorry for your pain and grief. There are just no words to describe saying goodbye to a beloved animal.
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bcincolorado, so, so sorry for your loss.
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BCincolorado hugs dear lady. We lost our last pooch this year to cancer after having him 15 1/2 yrs. It is awful.
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We had two little rescue terriers, about 11 lbs each. They were both diabetic and blind, but did fine with walks and twice-daily insulin shots. They were littermates, and had never been apart. On a sunny fall afternoon when they were 11 years old, they were playing in the backyard, rolling around in the grass...and they lay down in the shade together and died. No illness, no poison or paint or mushrooms back there, nothing. The vet can't explain it.
I think it was just time, and the angels came.
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Oh no, so sorry to hear.
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