My Husband, My Life, My Love, My Family, My Cancer

Mel. I'm sorry you're feeling blue. It just all sucks sometimes and there's nothing to do but acknowledge it. I hear you.

Goldens, well booo, I dont like that but I'm glad you're seeing someone soon and will get more info.

runor, I agree skin hurting makes me think shingles. I hope you feel better soon and if not, get a dr to look at you

My neutrophils are up high enough for treatment so looks like I'm back in the trodelvy chair tomorrow. My hgb is still low but not low enough for transfusion so I'm kind of dragging myself around... on the plus side, my liver values are mostly normal so maybe that's a sign that the liver mets are already shrinking? I hope so.

Had a huge vegan pizza takeout yesterday and enjoyed it so much - nice to have an appetite and be able to taste things. By this weekend I expect I'll be back to forcing myself to eat... oh well, if it's working, then well worth it for me.

Hugs

Goldens, sorry the results weren’t more positive but they seem mostly questionable and hopefully easy to manage.

Runor, I haven’t had Covid yet either (knock on wood) but I never heard of that symptom. I have had skin issues during my initial chemo where my skin hurt, it’s sucks! Sorry.

I'm trying to help mom get a mammogram set up, but I am getting the avoidance dance from her. She would rather pretend it's not happening.

I read a few minutes ago that Nightbirde passed away. She's the singer from America's Got Talent. This makes me so sad. I was never clear on her cancer type, cancer sucks no matter.

I'm really hoping to keep up this time here, but I cannot promise lol.

Thanks for letting me jump in.

Runor, I'm with the others, it really does sound like shingles, Goldens I hope your MO gives you promising news when you see him.

I had the urge for something sweet that didn't call for a lot of effort on my part , so I whipped up a batch of choc chip chocolate muffins. I'll be bringing them along for pocket duty at Golden's MO appointment or anyone else that has any scans or results due.

Mel, hoping your bloodwork is in the normal range. Hugs.

I enjoyed everyone’s pocket treats. So MO is not concerned about shoulder. She feels infection was so significant that of course there is lots of inflammation getting picked up by bone scan. She did order a right hip MRI (soonest I can get in is 3/23🙄). If there is something there, first step would be to see radiation oncologist. She assured me there are other options as well. Again, I’m not going to flip out until we know more. She feels that everything else is stable and to continue on Ibrance/anastrozole. Also got Xgeva injection. Apparently my calcium level is so high I don’t need calcium supplement. That Wisconsin 🧀🧀 has lots of benefits😉😉😉.

Thanks to all for your support. That’s why I so love Mel’s living room🤗

Moth, I'm so glad you got to enjoy pizza. Yay for higher neutrophils. Runor, oh my gosh that sounds miserable. I have not heard of the skin sensitivity issue with Covid. I just know when I'm really sick it seems like every little nerve ending is more sensitive than it should be. Gonchies may be my new favorite word. Goldens, please keep us updated. Definitely in your pocket for the MO appointment. Hugs to you Mel. I'm sorry you are not feeling well.

My MRI was completely normal. That was a relief! I have a follow up with the MO on the 8th. My biopsy got rescheduled for the 14th. I have been down for the count with a head cold. Had I not just gotten Covid swabbed for the biopsy I would worry that it was Covid but apparently this is just a standard annoying cold virus. The fatigue is what's getting me. I'm in a fog and am so tired I can hardly function. Went home early from work yesterday, landed on the couch when I got home and didn't move until late that evening. I'm up and getting a few things done today but still dragging.

Mel, in your pocket for tests as well.

Living, hope you are feeling better today.

I did not sleep at all last night, had this stupid pain in the middle of my back. Gonna walk 5 min at a time to hold up energy for the day and hopefully not depress myself to death. I had been super short on sleep Tuesday and with last night being the same, was going to get really upset. Got up at 330. It was not an intense pain, almost like a cramp in my mid back area that shows up which is enough to keep me from relaxing, unsure what caused it. Figure the short walk through the day will help on the treadmill. Don't trust outdoor walking on ice on super short sleep. Hopefully the treadmill walks will make me less stiff or whatever is the issue. I am also taking advil and stretching, not sure what else to do. I cannot even rest due to this cramp sort of feeling. Hopefully goes away soon but I know I have to try to forget about it since I am obsessive about stuff.

bloodwork came back exceptional. Tumor markers lowest ever. In the teens. I’m thrilled. The scan should follow suit. I hope.

In for pocket duty. Because it really helped me.knowing you’re all here. You sweet ladies.

Mel- Scans are next week, right?

Mel, that’s so awesome In your pocket for your scan.

Mel- Hooray for good lab results! Surely the scan will follow suit.

Chicagoan- I never, ever would have thought about a MO prescribing physical therapy, but what a great idea. I could be a lot less sedentary if I would just motivate myself. "Maybe tomorrow" seems to be my mantra

Hey Candy - I hope things are going along all right for you.

Emac and runor, rest up and feel better

Mara - I hope you work out the kink in your back and that it's only the result of sleeping wrong or a similarly simple explanation. I hate that every time I have a weird little pain, my mind automatically worries, "What if?" when , of course, it isn't.

Is another very cold day (by my recent standards), and I'm so ready for a warmup that sticks. Since I lived in NW Florida for 18 years, it's been a long time since I did winter, and I can't say I missed it one bit. There were always people that said they missed snow, or the (more noticeable) changing of the seasons - not me. I could have done without 90-95 degrees with 95% humidity for months, but that still beats freezing your tail off. Oh well, by next winter I will have acclimated better. So...looking forward to the greening of the trees and warm days and cool nights of spring. There are always good things about anywhere we choose to live.

Candy - I don't have anything keeping me from being more active except lack of motivation. One of the things I love about this site is seeing different perspectives and experiences - some of which we can put in our pockets for future use, or for the benefit of others. I hope the new rheumatologist has some alternative solutions that will improve your QOL.

Thank you Mae..

Candy ~ good idea to speak to palliative care.

Chicagoan~that’s a great point to make thank you.. it may be something that could help me.

You ladies are great

Micmel, glad you are stable, that is great. I am in agreement that when you feel like doing so, getting some help with PT or whatever that would help you through the fatigue to get some activity would go a long way for both you and your family. I remember you saying how active you were and perhaps you can get some of that back and just feel generally better mentally but also physically. Fingers crossed.

I did a lot of work this morning. Since I have no storage anywhere, I was storing the cat food and a few other things on top of a cutting board on the actual stove in my apartment. Decided I did not want to tie up the Breville oven for an hour and decided to make the wash soda in the oven vs the Breville oven. I can use the electric in the kitchen an living room and use the stove separate and actual make use of the burners sometimes. I moved all stuff into my bedroom temporarily and will move back once stuff cools down. A tiny apartment is sort of a game of Jenga and hidden storage. Plenty of storage ottomans on the go, storage under the couch and risers for the bed to keep under there as well and storage behind the couch with shelves acting as a sofa table along the back. When I am made to move, I will get a bigger place that has a bigger area to put in storage closets etc and a kitchen that would fit my microwave and a linen closet to fit my wee little washer. Still love doing laundry but it is just me so that is probably why. Walking later today once I get breakfast and freshened up, going to employ the cleats to walk more securely, got a bit of snow and it is a crapshoot whether there is quite a bit of ice under there. No chances being taken here.

See Q, my back is recovering well, was able to sleep well last night.