Has Anyone Any Experience with Eye Mets? Symptoms?

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Bcky
Bcky Member Posts: 167
edited May 2022 in Not Diagnosed With a Recurrence or Metastases but Concerned

Before my BC dx in 2014 my optometrist found a shadow behind my right eyeball during a computer scan exam but had no idea what it was. My left eye was/is 2020 but my right eye is/was blurry. A few months later I was dx with Breast Cancer and quickly forgot about my eye. I was getting floaters in my right eye in 2015 but they went away after a week or so. In the last few weeks I noticed my right eye is now very cloudy in vision and markedly more blurry. It hurts. I also thought what I had was a bout of conjunctivitus in January that went away after about a week on it's own. Yet my right eye is still very bloodshot. I have lost 22 lbs fairly rapidly and I am having dizzy spells. I initially thought it was weight loss due to the physical work I have started back up again since after Covid. I assumed the dizzy spells were perhaps sugar metabolism related or exhaustion from my new work schedule.

I see the optometrist on April 3rd


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  • Jelson
    Jelson Member Posts: 1,535
    edited February 2022

    Can you get an appointment to see an opthalmologist before April 3? and/or speak with your medical oncologist about these worrying symptoms? I switched to an opthalmologist when I had sudden weird eye symptoms which thankfully just needed to be monitored for a short time. The unexpected benefit has been my medical insurance pays for the visits since an opthalmologist is a medical specialist!

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  • KBL
    KBL Member Posts: 2,521
    edited February 2022

    There is a person who has eye mets. Her name is Donna. I will email her to see if she can respond. Her user name is bmpntherd

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  • SuQu31
    SuQu31 Member Posts: 160
    edited February 2022

    Bcky,

    Jumping in here. I do not know about eye Mets, but sudden floaters and blurriness can be a symptom of a retina detachment. They can also be a symptom of a posterior vitreous detachment, which is more common and less serious. The issue is that only an ophthalmologist can tell. There may be other symptoms too, but those are symptoms I am aware of. Obviously, if it is retina related, your vision could be impacted permanently, so please see an ophthalmologist right away. You want to make sure your eye is checked so any potential vision loss can be halted. Take care.

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  • GG27
    GG27 Member Posts: 2,128
    edited February 2022

    I have bilateral eye mets. The only reason they were found was because I was having problems with my vision, blurry, floaters etc that were nothing to do with the mets. Every eye Dr that I went to would look at my eyes & say "hmmm, that's interesting" but would never tell me what they saw. I went through 4 eye Dr's before they sent me to the head of Opthomology at the University & he diagnosed me.

    The floaters & blurriness were a side effect of a chemo that I was on that caused me to have to have cataract surgery on the one eye. The chemo had killed the eye mets. They are still there, showing up in every eye exam but are dead.

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  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited February 2022

    Bcky, please get an appointment with an ophthalmologist at a major cancer center or their referral, or university hosptial. Eye mets are not common, and not everyone will recognize them. Since you have had ILC, they need to check.

    https://www.cancer.gov/research/infrastructure/cancer-centers/find/newmexicocrtc


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  • Bcky
    Bcky Member Posts: 167
    edited February 2022

    Thankyou ladies for all your replies. I am going to schedule with an ophthalmologist Monday. There are some good Eye Dr's that specialize in eye disease in the city. My optometrist had no idea what the shadow behind my eye was and yes I agree its not something to wait too long on. My oncologist wants me to go to the ER to get evaluated. My thought is why can't she see me and then order a scan at the Cancer hospital?

    I have a feeling I will go to the ER only to be referred to an eye specialist. I live in the city and ER visits can take 4 to 6 hrs. Kind of trying to hold off on doing that unless necessary. My day off of work is Monday and I will get busy taking care of this.

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  • 7of9
    7of9 Member Posts: 833
    edited February 2022

    Becky, hopefully not mets but I was diagnosed with high ocular pressure and had to start daily drops. They cut it in half. Vision super important so get it checked sooner. I also have retina issue but its been stable for last 2 yrs. Good luck!

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  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited February 2022

    If they are recommending the ER maybe your symptoms warrant it. Consider what SuQu says above. We all hate and fear the ER but if delay could endanger your vision that is serious.

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  • GG27
    GG27 Member Posts: 2,128
    edited February 2022

    Bcky,

    I don't think they have the right scanners at a Cancer Centre to diagnose eye mets which is probably why your MO wants you to be referred to a specialist. It took 4 specialist Ophtho's to figure mine out. Mine never show up on a brain MRI nor a CT scan.

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  • Bcky
    Bcky Member Posts: 167
    edited February 2022

    ok 😊 thanks. That makes sense.

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  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited February 2022

    Bcky, I just sent you a private message with the name of one of our members who has had eye mets. She is extremely knowledgeable.

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  • Bcky
    Bcky Member Posts: 167
    edited February 2022

    Thanks Ladies

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  • Bcky
    Bcky Member Posts: 167
    edited May 2022

    I want to thank you ladies for your responses. It is indeed a cataract and I go in for surgery in a few weeks. Whew!

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  • katg
    katg Member Posts: 108
    edited May 2022

    I just found your blog. GREAT NEWS!!!!!! . The experience you find her is so helpful. I learned a lot just from reading. I pray your surgeon working on your eye has plently of sleep and the best help as he works!!

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  • KBL
    KBL Member Posts: 2,521
    edited May 2022

    bcky, thank you for letting us know. I’m so glad for you.

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