Looks like DCIS again

Hi Connecticut, I'm feel so sad for you as everything you are going through, I too have been there and still going through it I guess. I had DCIS back in 2014 in left breast, with 2 surgeries, radiation, and Arimidez for five years. Thought I was done. Last July had annual mammo, and of course was called back for my right breast. Then on to the biopsy. Unfortunately, I was never called to let me know of my diagnosis. I found out on the patient portal I had DCIS again. (Dr never has called me back). Went back to same surgeon (he is a saint!!) and he was so compasionate and explained all the options, including the same route I had the first time. However, the DCIS was a bit scattered, so I chose a double mastectomy as I was so exhausted with doctor appointments, one after the other. Do i have any regrets?? Absolutely not!!! I know I am not the normal, but the mastectomy was fine!! Actually, it was great! I went in on a Tuesday at 11:30, surgery at 2:00, and back home by 8:00. If I didn't have those stupid drains in, I would of gone back to work on Friday. I had no pain whatsoever, soreness yes, but no pain. He told me when he was done with the surgery he injected a drug to stop the pain for 3-4 days, and then hopefully I could use Motrin or Tylenol. I don't know when it wore off, and I only used Motrin once or twice. The drains were so annoying, and I had to keep them in an additional week, but they were tolerable. When they took those out, didn't feel a thing!!! I am now totally flat, or a little bumpy in places........... Surgeon said to come back in three months unless I was having problems, not a one!! So, I will be heading back next week. The only issue I may need to have is the "dog ears" has they are quite large, but don't know at this time if I'm going to do anything about it....have to talk to him.

Now the rough part. The anxiety is the absolute worst!!!! Not knowing the results is devastating and beyond stressful!! The good thing was I had been through this before, but the bad thing was, I HAD BEEN THROUGH this before!!!!! Even though I've moved on, my mind still goes back to that awlful time and the anxiety just creeps back up. Waiting to get appointments, waiting for drs. to call back, waiting in offices (many times an hour or more after my appt time), waiting to get results back. That was a major reason why I choose a BMX. Not to mention living very close to Washington DC in northern VA and the traffic here is totally unbelievable. So waiting once again in traffic to even get to doctors appointments!!! I know I sound like I'm complaining, and I am!! Don't want to do this again!!!!!!

I wish I had a something I could say to make you feel better, other than I'm feeling your anxiety right now!! Ever since I read your posts the other day, my heart just bottomed out!!! Please keep posting so I know how you are doing, and remember even though we don't know each other, we really do know each other!!!

Feeling for both of you regarding recurrence and the anxiety and stress that brings! I chose to go flat and have no regrets. I was larger prior to my BMX and have to say life has been so much easier going flat. Some "iron bra" feeling though if I keep up my doorway stretches once in a while it's often just background noise. Best to you! Please keep us updated....

Kkubsky - here's a thread that will give you lots of info about preparing for surgery

https://community.breastcancer.org/forum/91/topics...