PET scan yesterday, worried

I really hope they call you with results soon. If you are in the US the results are suppose to go directly to your portal once available. Waiting is the worst! Sorry you're waiting!!

doctor's policy is not in line with the legal requirements. You can literally go and demand to get a copy right now. (And they'd still be in violation because the requirement is a portable eclectronic copy so making you go get a printout is not in line with their legal obligation). This record is YOURS. Nobody has the right to delay you getting it

So sorry about this, and I agree with all the others above. The lab should have posted your results to MyChart as soon as they were ready. The doctor may or may not have managed to see them first, but it is not the doctor who gives you the results, it is the system, and they are indeed, yours. It is the law and this place does not seem to be in compliance. Shame on them.

Good luck and I'm sorry you've had to go through this.

LI77,

The federal law these posters are referring to was implemented less than a year ago: https://www.opennotes.org/onc-federal-rule/

This law does indeed allow you access to the narrative of the radiologist who read your PET scan. Have you checked your online patient portal? Most health systems should have this in place since the fines are so high when they don't comply. However, I will add a caveat. Sometimes, a pathologist or radiologist will call the provider (could be MO, SO or ED) with a result when it is in the 'rough' form. This would be when he/she has not yet written a narrative. I know the pathologists in my system (Kaiser CA) will often call the surgeon with a result but the actual dictated narrative might take a day or two.

In any event, I wish you well. I do know the anxiety of waiting for a PET scan result.

Jane

L177 - I read on your other thread that your results are in & you are HER2 negative. Hope the rest of the way is smooth. Truly - once you have a plan in place it gets easier. Assuming you'll continue to post on your other thread now that you have test results.

Oh LI77, I am so sorry to read this. Sending you love and strength

Ll77,

I am sorry to see your results. I can't imagine what you are going through right now.

I am glad you are on these boards. I know there are many great and experienced women here who can provide you insight and support during this huge challenge you have today.

Sending many warm thoughts and hugs to you and your family.

LI77, so sorry to read your news. Come to the stage 4 forums. We've got you. We've got the Kleenex, the cookies, the real talk, the treatments, the clinical trials.

It sucks. You're not alone

Dear LI77,

We are so sorry that you received this news this morning. We are here for you and we know that everyone else is as well. There is tons of support to be had in the stage 4 forum and a number of weekly zoom groups for those with stage 4 breast cancer. Here are some links about Talking to Children and Talking to Young Children. For now just breathe and know that all of this information and all of our support is here when you need it

The MOds.

Sorry.

LI77 - I echo the other Stage IV de novo ladies - we got you on this. When ready feel free to come join us, but there are certainly plenty of reasons to feel optimism and hope. I know it doesn't feel like it now, but give it time, it'll be ok.