Calling all TNs

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  • serendipity09
    serendipity09 Member Posts: 732
    edited February 2022

    CKelly05 - I had the same treatment as you with the exception of Keytruda as that was approved for TNBC after I finished my initial treatment. I had three sessions left when neuropathy and vertigo-like symptoms started. MO had me skip two treatments and I only made up one of those. I thought the same, did I get enough chemo? In the end I had to trust her and go along with it. All of it takes its toll emotionally and physically.

    Congrats on the last chemo! It truly is a great feeling! Wishing you nothing but the best!!

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  • Poppy_90
    Poppy_90 Member Posts: 105
    edited February 2022

    CKelly: congratulations on your last chemo! Keep us updatedโ€”we are here for you.

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  • CKelly05
    CKelly05 Member Posts: 6
    edited February 2022

    Thank you Serendipity for sharing your story and words of encouragement. I am going to keep the faith that I have received enough treatment & try my best to keep positive. Thank you Poppy for your kind & supportive words!

    I rang that bell yesterday!!! My amazing nurses gave a few little speeches, brought me to tears! I wasn't expecting all of that to happen. It was emotional & wonderful moment. It was a very good day!

    Wishing everyone well! โค๏ธ

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  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited February 2022

    CKelly, glad you have finished chemo! That's a good feeling and you are right, rads is no biggie compared to chemo.

    If your tumor shrank to imperceptibility that's an excellent sign!!

    I am 3.5 years out w/ no issues. I continue to observe practices for maintaining overall health. I eat well (pescatarian), take D and a few supplements, exercise 4-5 x week, do intermittent fasting, and also the fasting mimicking diet every few months, so my immune system is ready for action if needed. The health practices have me about 15 lbs thinner, and feeling very good.

    Your worries are normal. But so is surviving and thriving after TNBC. Glad you've introduced yourself!

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  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited February 2022

    I realized I have good news to share.


    My daughter (actually my step daughter-- but I raised her and I claim her!) gave birth to twin girls this week. I am a grandmother!! One of the things I reallllly wanted to live for! I will go in 10 days to the NYC where she lives-- I'm doing a house swap for 3 months with a friend seeking sunny weather-- to be of help to her.

    One of my oldest and closest friends, who had NSCLC and lived in stage IV for an incredibly long time, told me when I started treatment, "keep your mind on your purpose for being alive." My purpose was "being a grandmother" and here I am!

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  • CKelly05
    CKelly05 Member Posts: 6
    edited February 2022

    Santabarbarian, Congratulations on the birth of your new grand babies!!! Twin girls! That is very happy news! Thank you for sharing your story. 3.5 years out, I canโ€™t wait to get to that point. I am too going to try my best to eat healthy, take supplements, & exercise regularly. My kids are still young, I am normally working full time, & just so busy. I didnโ€™t prioritize my health, but I know itโ€™s so important & I have to find the time for me. I know I will still worry at times, but I definitely want to survive & thrive too! Thank you for the encouragement. Enjoy your time with the new babies!

    Getting through my last few post chemo achy days & I know it will slowly but surely get better from here. Canโ€™t wait to feel more like myself again! Have a nice weekend all!

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  • MountainMia
    MountainMia Member Posts: 1,307
    edited February 2022

    Congratulations, Grandma santabarbarian! Indeed she is your daughter, and they are your righteous grandbabies. And what a blessing for you all that you'll get to spend time with them at this tender moment. Best wishes for the whole family.

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  • Poppy_90
    Poppy_90 Member Posts: 105
    edited February 2022

    That is fantastic news, SantaBarbarian. Congratulations! Thanks so much for sharing and love the heck out of those baby girls. Hugs

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  • Maryjv
    Maryjv Member Posts: 306
    edited February 2022

    congrats!!! Such wonderful news, and your are right! We have so much to live for!!!

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  • Kayce234
    Kayce234 Member Posts: 249
    edited February 2022

    Congratulations! I have twin boys - they are the best! Bonus - two babies means no waiting to hold one ;)


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  • NorCalS
    NorCalS Member Posts: 288
    edited February 2022

    Santabarbarian,

    Congratulations on the twins. I also liked your message about keeping your mind on the purpose for being alive. It is so true and itโ€™s good to remind ourselves of this.

    Enjoy your granddaughters and thanks for sharing the great news.

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  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited February 2022

    CKelly, Although not the exact regime that you're on, I had the A/C doses divided after my first dose. My dr felt that my body was not handling the dose of both at the same time well. She assured me that even though it took a few more weeks to complete, it would be an equal amount of chemo.

    SantaBarb! How exciting!! Congrats to all of the family!! Enjoy your visit and those babies!!

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  • serendipity09
    serendipity09 Member Posts: 732
    edited February 2022

    Congratulations Santabarbarian on the twins! So exciting!!

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  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited February 2022

    Thanks everyone for your kind wishes. It really is incredibly wonderful! Lucky!!

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  • MountainMia
    MountainMia Member Posts: 1,307
    edited February 2022

    In February 2019 I had the mammogram, US, and biopsy that revealed triple negative IDC and DCIS. Tomorrow I have a mammogram and appt with my BS. The mammo is considered diagnostic, since I had the biopsy in September for what turned out to be a weird scar tissue. I'm hoping since it's diagnostic, I'll get a read on it right away.

    Pre-cancer diagnosis, I assumed I'd live into my 90s. That changed, esp with the tnbc diagnosis. Only recently have I started to believe again that I might have a long life. Of course I know that, even 3 years out since diagnosis, there's opportunity for recurrence. And certainly plenty of time left for a new cancer.

    So I have this weird conversation play out in my head about this. A sort of hurray hurray! about reaching 3 years, and another voice reminding me it wasn't until mid-April that I had surgery, so I'm not really to 3 years yet. And of course, I really want to get out 5 years anyway. Then there are others telling me about the other cancers I could get, the diabetes and strokes that seem to run in my family, etc. There are a lot of loudmouth meanies in my head! :)

    I don't actually expect anything bad to be revealed with tomorrow's scan, esp since I had the stuff done in September. But. You know.

    Anyway, I expect and hope to come back tomorrow and say, See? I told you nothing would be wrong. And there you were, all worried!

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  • serendipity09
    serendipity09 Member Posts: 732
    edited February 2022

    MountainMia - I hope everything goes well tomorrow!

    "There are a lot of loudmouth meanies in my head" lol, I'm not the only one who has a bunch of those?!

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  • CKelly05
    CKelly05 Member Posts: 6
    edited February 2022

    MountainMia - best of luck tomorrow! Sending lots positive vibes your way that all is fine as you expect. I totally relate to that worry & โ€œmeaniesโ€ in my head, lol. Apparently they come in strong right after at TNBC diagnosis & take a while to fade away. Surely much quieter after that 5 year mark, although there are always other worries, such is life. I have my 1st post chemo MRI Wednesday. I am hoping for good news too! Take care.

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  • Poppy_90
    Poppy_90 Member Posts: 105
    edited February 2022

    Mia,

    Iโ€™ll be thinking of you tomorrow. Let us know how it goes.

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  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited February 2022

    MountainMia, - We know EXACTLY how you feel.

    Try to push any meanies out of your head!

    Looking forward to your good update, as well as CKelly's!

    Hugs from NYC

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  • MountainMia
    MountainMia Member Posts: 1,307
    edited February 2022

    Okay, turn on some music and do a happy dance with me! Mammogram was unremarkable relative to anything new; BS appointment also fine. The BS cut me loose, told me to see the survivorship clinic NP for the next couple of years, go back to an annual screening mammogram. Otherwise no issues.

    Thanks for the good wishes, everyone.

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  • Maryjv
    Maryjv Member Posts: 306
    edited February 2022

    Happy dancing with you right now!!!!!!

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  • Trishyla
    Trishyla Member Posts: 1,005
    edited February 2022

    Yay, MountainMia. That is such great news. So happy for you.

    Trish

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  • Poppy_90
    Poppy_90 Member Posts: 105
    edited February 2022

    Yay, MountainMia! That's wonderful news and such a relief. Be sure to do something special for yourself to celebrate!

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  • cookie54
    cookie54 Member Posts: 134
    edited February 2022

    I Loooovvvve to do happy dances, awesome news MountainMia! It's always nice to hear good news, celebrate for sure!

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  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited February 2022

    Yayyyyyyy!

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  • serendipity09
    serendipity09 Member Posts: 732
    edited February 2022

    So happy for you Mia!!!

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  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited February 2022

    YAYYYY MountainMia! That's just the update I hoped to find here!! =)

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  • Kayce234
    Kayce234 Member Posts: 249
    edited February 2022

    mountain mia Such great news!!! ๐Ÿ’ƒ๐Ÿ’ƒ๐Ÿ’ƒ๐Ÿ’ƒ๐Ÿ’ƒ

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  • mamacure
    mamacure Member Posts: 236
    edited February 2022

    Amazing so happy to hear the good news Mountain Mia!! Woop woop

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  • PRbonita45
    PRbonita45 Member Posts: 10
    edited February 2022

    CKelly05,

    First, congratulations on completing chemo! I hope you celebrated by doing something special! Our dx look almost identical and the tx is pretty similar as well. I completed my 4 cycles of AC in the middle of January...ummm that was brutal. I had my first Taxol + Carbo + Keytruda on January 25, however my last two weeks of Taxol had to be skipped due to my counts being too low. My MO sent in a prior auth for Neuprogen in order to stimulate my bone marrow so I can continue on my current regimen, however my insurance company denied the request. I was a complete wreck this past Tuesday. I had to allow myself to be in my emotions for that day and then with the help of positive quotes and devotionals, I found the strength to dust myself off and find my positivity and fight again.

    I feel exactly how you do....how does missing two treatments affect my chance of PCR? Will we have to go to a less aggressive tx regimen if she cannot convince insurance to approve the Neuprogen? Will she recommend tacking those two doses on or just drop them? The questions go on and on...

    In love,

    PRbonita45


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