Zoom Meet-up for those with an MBC diagnosis

amontro · January 2022

Monday MBCers -

Just to let you know that I started a new topic in Stage 4.

It's called "Stage 4 Gallows Humor".

I hope it does not offend anyone, so I have disclaimer that says we can be serious on Mondays.

Love and good vibes to you all!

Love,

Anna

cowgal · January 2022

8 PM ET would be best for me but 7:30 ET could work. I'm in the Central Time zone.

Moderators · January 2022

MBC Meetup TODAY (WEDNESDAY) AT 4PM, ET:

Register here: https://breastcancer-org.zoom.us/meeting/register/...

Hope to see some of you there!

ParakeetsRule · January 2022

Any updates on doing a call after working hours? After 6pm EST or so?

illimae · January 2022

The discussion on the emotions of newly diagnosed and pertaining to attitudes of stage IV folks in general reminded me of some old song lyrics from a band I love. It's speaks to me, maybe to you as well.

KBL · January 2022

Love it, Mae. It was a great meetup today.

exbrnxgrl · February 2022

Oh, darn! Looks like I would have enjoyed the discussion today and might have even felt like I belonged! I have good intentions each Monday…

illimae · February 2022

exbrnxgrl, don’t forget that there’s a Wednesday one too 😁

exbrnxgrl · February 2022

Thanks! I usually don’t work (I started subbing) on Weds. so I’ll aim for that

KBL · February 2022

They would appreciate more attendance on Wednesday. I would like to go, but Wednesday I always seem to have my grandson. I hope you get to go, exbrnxgirl.

Sadiesservant · February 2022

Would love to attend on Wednesday but as Parakeet mentioned, still hoping for something outside of work hours for the west coast. 😊

SF-Cakes · February 2022

Illimae, is that a song from the Sugarcubes?

I, too, would love to join but am on the west coast, and both times are during my workday. Rats, cats, and bats!

ParakeetsRule · February 2022

Who would appreciate more attendance on Wednesday? Are they aware of the comments in this thread? Looks like many are saying that time doesn't work. 4pm is too early for most people who are still working.

illimae · February 2022

SFcakes, it definitely is!

SeeQ · February 2022

I totally forgot the zoom call today! I'm sorry I missed it and agree it sounds like it was a good discussion.

cowgal · February 2022

I have made 2 meetings and part of a third of the Wednesday meetings and Melissa (the Moderator for the Wednesday group) said that they are having trouble finding someone to do a meeting that late (I think all of the Mods are east coasters) but are still working on it and know it is a real problem. I am in the Central time zone and work so the current time doesn't work well for me either.

amontro · February 2022

illimae - those are great lyrics

KBL - I agree. Today's meeting was great. This time I didn't feel left out because I was on the phone and not video.

- Anna

Moderators · February 2022

Yes, we're working on it. Apologies, doing our best!!

Nkb · February 2022

I have the intention to come but always forget. Sounds like a good meeting today.

KBL · February 2022

Just letting everyone know I probably won’t make it to tomorrow’s meeting. You know I hate missing it, but I have a full morning of doctor and treatment, and I have my grandson all day. He will get to play with his grandpa in the morning. I’ll try to make Wednesday’s

Moderators · February 2022

We'll miss you KBL! Best of luck with the appointments and enjoy that grand baby!!

KBL · February 2022

Thank you!

SeeQ · February 2022

I won't be able to make it today. I have an appointment with my new MO at just that time. I'm a little nervous about it.

KBL · February 2022

SeeQ, good luck with your appointment. Please keep us posted. I’m sorry you’re nervous

DDIL · February 2022

HI KBL,

This is Debbie I was new to the group. You and I have similar issues, so I thought I would connect w/you.I just started Ibrance and Letrozole. Praying for it to stop this invader. Hope your well.

KBL · February 2022

DDIL, feel free to private message me any time. I missed this past Monday but hope to be on tomorrow. I was on Ibrance and Letrozole for two years. We weren't totally sure it stopped working, but my body gave me an idea that maybe it had. I have been doing better and the issues I was having have stopped again. I have gained eight pounds back. That is my main indicator there is trouble brewing, when I start to lose weight.

Checka · February 2022

Hi, I live on the west coast and work until 4:00- do you ever have meet ups for people who can't join during the day?

Thanks, Checka

ParakeetsRule · February 2022

Checka, I asked the same question back in early January and still haven't had any luck. I'm in Maryland and the calls always take place while I'm working. In person/Zoom cancer support seems to aimed at people who are no longer working. My hospital's support group only meets during working hours too.

illimae · February 2022

I hope there will be something for everyone but I get it since hosting a zoom outside of normal working hours would require someone to take away from their personal time and time with family.

I don’t know how this would work exactly but if the demand is there for an after hours group, perhaps a BCO member would like to start a personal zoom group unofficially. Just a thought.

Moderators · February 2022

Hi all, we are working on a solution to accommodate those who work during the day. Please stay tuned and we will keep you posted here once we have a plan!

--The Mods

Zoom Meet-up for those with an MBC diagnosis

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