How has the Pandemic affected you as a cancer patient/survivor

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  • wrenn
    wrenn Member Posts: 2,707
    edited January 2022

    Even though I am Canadian and it shouldn't matter the things that go on in the US do affect us. When I see Biden being criicized it makes me very anxious. There are so many out there who seem to think Trump did anything good. (If he did one good thing the world missed it). Those who don't clue into the harm that Trump did scare me. If the US goes down (which it absolutely will if Trump gets more power) it poses a threat to all of us.

    Our Prime Minister is not perfect but if our alternative was someone as frightening as trump I would cringe at any criticism of our PM.

    ETA: there is no such thing as "both sides" when it comes to trump world. It is survival or not.

  • Chowdog
    Chowdog Member Posts: 236
    edited January 2022

    again, I got the message that my posts are not welcomed here, so no need to keep pilling on. I am aBiden supporter who desperately want biden and dems to succeed and the damn pandemic to end.

  • Betrayal
    Betrayal Member Posts: 1,374
    edited January 2022

    I am hoping that Australia will stick to its guns and not admit Djokovic to play in Australian open. The chutzpah of that guy to think that he has the right to skip the mandatory vaccine status because he is a "big name" in tennis. Doesn't seem to care that his lack of vaccine status places other players, the workers, and the Australian public at risk when they have so carefully tried to control their numbers. Last I checked he is an adult so his father playing the martyr card is despicable as well. The only martyrs would be those that he unwittingly might expose.


  • wrenn
    wrenn Member Posts: 2,707
    edited January 2022

    I agree Betrayal. There are babies in Ontario with covid whose mothers are unvaccinated. My daughter got vaccinated when pregnant so her 3 week old has some antibodies but still at risk since Omicron seems to be getting babies so she is very nervous.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited January 2022


    Chowdog, I'm sorry you think you should leave. Nobody said that or wants it! But when I open this thread and see you (or anyone) posting more or less the same thing over and over and over again, it makes it difficult for me (and some others) to want to participate.

  • Dancemom
    Dancemom Member Posts: 369
    edited January 2022

    State college just sent out a statement that dorm students who live within 50 miles of campus must quarentine at home! Told them not to take public transportation! My daughters say who ever made this rule does not understand city living. Huge percentage of DD's classmates are also from city.

    #1 of all, transport the covid back INTO the city via college kids? 2nd, we travel by train, #3 most kids share rooms. "If you have compromised family members at home, we will send you information on safe isolation", ummm...space for that?

    So kid comes home, then siblings can't go to school and parents can't go to work?? Wow, SUNY really just wants to spread this pandemic out, force families to lose more income, force children to miss more school. This policy was not well thought out.

  • candy-678
    candy-678 Member Posts: 3,950
    edited January 2022

    Question for all---

    I had the Moderna vaccine. Dose #1 Jan 2021, dose #2 Feb 2021. Then the CDC advised that immunocompromised folks get another full-dose vaccine to complete their PRIMARY series. So I got #3 in August (full dose of 100mcg of Moderna). Now I am going on 6 months (Feb) and was thinking I needed a "booster" due to waning immunity over time. But 1/2 dose (50 mcg) this time. I messaged my MO and nurse says not advising on 4 doses, just the 3. I asked about a blood test to test immunity--- she said there are none.

    I reviewed CDC.gov site, and the way I read it, immunocompromised folks have 3 vaccines for Primary series, then a booster in 6 months. I told the nurse this and she is sticking with all we need is the 3 vaccines.

    What do you all think? What is your MO's saying?

    I am concerned about waning immunity over time--- 6 months from my last dose.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2022

    My MO doesn't consider me immunocompromised. The provincial guidelines differ between immunocompromised like blood cancer/chemo patients and high risk advanced cancer patients. Right now immunocompromised are eligible for a 4th dose 92 days after dose 3.

    What are the guidelines in your state? Can you get the vaccine at a pharmacy?

  • candy-678
    candy-678 Member Posts: 3,950
    edited January 2022

    Serenity- I got my other Covid vaccines at a local pharmacy. I have not called them yet to ask if I can have the #4 vaccine. I thought I would ask my MO for her advice first. Then when the nurse said that they stop at 3 vaccines it stumped me. I also messaged my PCP to ask his advice (have not heard back yet). I will call the pharmacy next week and ask them if I need a doctor's order, or if I can just go in and get the shot.

    Also, Serenity, on your profile it says you are on Ibrance. If that is correct currently, then are your white counts low? My white count on Lynparza is 2.0 (normal range is 5-10). I think that with a low white count that is "immunocompromised". Also, the CDC website says "current treatment for blood or solid tumor cancers".

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2022

    candy - Yes, my white counts are low on Ibrance, but it doesn't have the same effect as chemo did. My counts recover much faster than they did from chemo. My MO has told me I'm not immunocompromised. QC public health comes up with its own guidelines. That's not always good, but the immunocompromised group is very limited here. I don't think I have the same risk as transplant recipients or dialysis patients. If I get sick, I can stop Ibrance temporarily, but they can't stop their treatments.

  • candy-678
    candy-678 Member Posts: 3,950
    edited January 2022

    Serenity- I am on Lynparza--- a PARP inhibitor. I don't know if stopping it has the same effect as Ibrance, or that my counts would bounce back timely. I take the Lynparza twice a day, every day, without time off like with Ibrance.

    This is so confusing.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2022

    candy - you asked about a test for immunity. True, there isn't one, but you could get a COVID antibody test to see if you still have antibodies from the vaccine. the results will tell you your level of antibodies but not what it means. It doesn't tell you the range you should have, so it may not help you make your decision about getting a fourth vaccine

    I did one to make sure I did develop antibodies from the vaccine, since they were saying that people on certain cancer drugs might not develop immunity from the vaccine.

    I did it directly through Labcorp so I didn't need to visit my own doctor to get an order.

    https://www.labcorp.com/coronavirus-disease-covid-19/individuals/antibody-test

    And I haven’t talked to my oncologist about a third or fourth booster but in my patient portal, it now says I have received ‘2 of 4’ COVID vaccines. I did get the vaccines at the same hospital as I get my cancer treatment, so I am assuming they are giving patients two boosters as a matter of routine

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2022

    candy - It is definitely confusing. If you can't get clear information from your MO, check with the pharmacist.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2022

    Don't judge! And don't tell them the vaccine passport isn't required for delivery. ;)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2022

    wrenn - I don't know if it’s the new vaccine requirement that made the difference. Vaccinations were down for the holiday weekend with a grand total of 7 first doses given on Jan 1, so very few scheduled around the holiday weekend.

    The new vaccine mandates for booze and weed are performative. Over 90% of adults have first doses. We need mandates for HCWs and teachers.

    image

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2022
  • Dancemom
    Dancemom Member Posts: 369
    edited January 2022

    serenity, that was my biggest fear until I finally had the surgery on Monday. I am crossing my fingers for all the Jan surgery ladies🤞🤞🤞. I see some are already delayed because of positive test results. Even the most careful people are testing positive.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2022

    Glad you were able to have your surgery! Hope you have a full and swift recovery. The virus is so transmissible, it's become hard to avoid.

    I read that QC will be moving seniors from hospitals to LTC facilities due to the hospitals getting overwhelmed by COVID. They did this during the first wave and killed off many seniors. We need an intervention! Help!

  • Pi-Xi
    Pi-Xi Member Posts: 348
    edited January 2022

    Serenity, that just makes me sick. Have they not learned anything? I hate that the “old” are considered expendable. Besides, many in their 60s, 70s and even 80s are anything but old!

  • 7of9
    7of9 Member Posts: 833
    edited January 2022

    It is so hard not to hate. :( People who say they are " covid fatigued". Try chemo fatigue. Try worried who will be there for our child next year fatigued. Wear a damn mask, get the vaccine and yes, you can do a lot of fun things still, if we all did those 2 simple things. We went out to eat. We traveled. We felt safe while mandates were still in place last spring. We timed one strategic, masked, boosted trip in early November and it was wonderful. We bought Harry Potter masks and Jurassic word masks, tried to spread out, used lots of hand sanitizer and had an amazingly great trip. We let our kid compete in cross country and return to in person learning last fall too. Now everyone relaxed too soon or got "tired" and they don't want to mask up again. Boo hood!

    No one promised a vaccine for a virus was perfect or how long it would last. Anyone who has ever had a flu virus shot knows you have to time it so you don't get it too early or you risk ( if it was even the right mix that year) running out after 5-6 months.

    10yrs ago I went from a great, healthy happy day at the horse barn, to the shower, a lump, a mam, ultrasound, biopsy, bone scan, cat scan, onc appts and chemo in 2 1/2 weeks flat. 6 yrs ago for recurrence we did a whirlwind Rediagnosis, scans and set up a dual axillary dissection and complete hysterectomy surgeries in 3 1/2 weeks flat. I dont think many hospitals can make that happen right now?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2022

    Pi-Xi - They haven't learned anything. It's one thing to say no one could have known how to respond in the first year of the pandemic. Now it's evil or incompetence to willfully expose the elderly. I know most are vaccinated, but the vaccine doesn't prevent infection from omicron.

    wrenn - The first doses increased today, but the increase (50%) was only in the 5-11 age group. Who knew we had so many delinquents needing a fix so much that they're getting vaccinated! ;)

    My older daughter is sick. We were able to get a rapid test from a friend, and that was negative. My husband dropped off the test in her pandemic care package (box of KN95s, pulse oximeter, and a book). This is the longest that I've not seen her in person.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited January 2022

    My adult son (who lives with us) and I have been sick for almost a week. He got sent home from work last Monday and I got it starting the next evening. There's a lot of sneezing and coughing but no other Omicron symptoms like night sweats. But I'm triple vaxxed and not as sick as my double-vaxxed son, so who knows? Hubby hasn't found any home test kits - the drugstores are out, and it's too damn cold to go out to one of the testing sites, which have limited days and hours anyway. Hubby hasn't caught it yet, and it's a very small house with nowhere to hide. Kind of confusing situation.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited January 2022

    alice,

    I hope you and your son are on the mend quickly and that your husband stays healthy. My younger dd has a sore throat but her home tests have been negative. Can’t help be a bit worried as my three year old granddaughter can’t be vaxxed yet. Five year old grandson is vaxxed. Though retired, I am subbing all this week for a good friend who tested positive. Her husband, a principal in another school district, had already tested positive. It’s incredible to think we’ve been living the pandemic life for almost two years!

    I just heard of flurona! Yes, the flu and Covid19 at the same time has actually happened. It’s a mad, mad world 🌎!

  • Dancemom
    Dancemom Member Posts: 369
    edited January 2022

    flurona, deltacron...I'm staying home!!!

  • wrenn
    wrenn Member Posts: 2,707
    edited January 2022
  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2022

    Alice - Hope your husband stays well and you and son improve. Try to ventilate as well as you can. PCR testing is limited to select groups here, and rapid tests are almost impossible to find.

    Be wary of new named viruses. So far, we only need worry about delta, omicron, and the current flu.

    My daughter is sending me her pulse ox and temp readings periodically as proof of life. She seems to be improving. She's eligible to sign up for her booster on Friday.

    My husband got his booster. He's AZ/Pfizer/Moderna. Should be omicron-proof soon.

  • wrenn
    wrenn Member Posts: 2,707
    edited January 2022

    Alice fingers crossed for quick recovery. So nerve wracking to not know what you are dealing with

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited January 2022

    Thanks, all. It's mostly just messy, like a head cold with lots of sneezing & blowing and some dry coughing for me. Son has more coughing but he feels okay. He's always had noisier colds, which makes it hard to tell based on sound effects. It's too damn cold to ventilate! But it's an older house with the last window work in the 1950s, so it's probably better ventilated than the hermetically sealed modern horrors. However, my coughing has reactivated my usually inert umbilical hernia, so UGGHHH. I hope it will settle down again because one, with Covid, surgeries are off, two, it was already getting pretty big (like 8 cm), and three, I don't need any more stinkin' scar tissue in that neighborhood! There's the original hernia repair from the 90s, the hysterectomy (and hernia repair destruction by a lying shit doctor) from 2008, and the nephrectomy with a bunch of satellite scars from 2018. Not sure if I've reached my lifetime limit on laparoscopic abdominal surgeries. Guess it's time for an oh-so-stylish lady truss. 🤮

  • Rah2464
    Rah2464 Member Posts: 1,647
    edited January 2022

    Alice - hope you and your son recover soon and that Hubbs doesn't pick it up.

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