STEAM ROOM FOR ANGER

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  • Kikomoon
    Kikomoon Member Posts: 350
    edited December 2021

    Katyblu, I totally understand your frustration. My cancer center is constantly dropping the ball. They don’t even bother making promises they can’t keep though. It is surprising to hear the military functions this way too, or is it? Definitely tell your Dr. they would want to know about it.

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  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited December 2021

    Lost a good friend early yesterday morning. The same morning I was going to another good friends funeral. So surreal. Somehow I got thru it.

    My one friend who passed yesterday, cancer. She was still in the beginnings of diagnosis, so maybe it's sort of a blessing she went so fast. She had an appt on Monday and they sent her to the hospital and drained something like 1.7 liters of fluid. off her lungs. Then she was placed on hospice. I texted on Monday to see how things went, and all she said was that the news was not good. I said I was so sorry and that I was here if she needed me. Her last words to me were Thank you. 64 yrs. old. Hope you don't mind me sharing a small photo. Here she is on the right, her very best friend on the left, and my drunk husband in the middle. This was taken at her 60th birthday party.

    image


    My other friends whose husband passed of covid19 last week. The funeral was sad, but was nicely done. Here he is in the gray sweatshirt, my good friend (his wife) in the center black sweater. Another good friend to the right, and the other guy in the back and the gal on the left are my siblings. This was taken 2 years ago at the benefit they held for my husband when he was first diagnosed.

    In short, cancer and covid suck!!!


    image


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  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited December 2021

    to you ctmbiskia. Yes they are are awful and take too many lives.

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  • Betrayal
    Betrayal Member Posts: 1,374
    edited December 2021

    ctmbiskia: You have had your share of losses this year and I do offer my condolences for these losses. Neither cancer nor covid offer peaceful passings for those affected.

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  • cm2020
    cm2020 Member Posts: 615
    edited December 2021

    ctmbsikia....Lots of hugs and condolences to you. You have experienced so much loss in such a short period of time and I am so very sorry.

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  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited December 2021

    ctmbsikia, I'm so sorry you've lost another person dear to you. And so young! Peace to you and all who loved them.


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  • KIDI919
    KIDI919 Member Posts: 425
    edited December 2021

    Katyblu, that really sucks. I tried to change an appt the other day and gave up. After 15 min I was #8 in the q.

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  • Sunshine99
    Sunshine99 Member Posts: 1,680
    edited December 2021

    KIDI19, don't you love it when you're on hold, listening to the "hold music", the line sort of clicks and you think someone is picking up, but NO, it's the recorded, "Your call is very important to us. Please stay on the line and your call will be answered shortly." Then, back to the music. Sigh...

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited December 2021

    Or press 1 to hold your place in line, we will call you back. 😡😡

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  • HersheyKiss
    HersheyKiss Member Posts: 550
    edited December 2021

    Or the line clicks, disconnects, and you have to call back and go to the end of a long queue.

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  • Katyblu
    Katyblu Member Posts: 171
    edited December 2021

    Yeah, so I finally got ahold of the lady who could make the appointments for me and guess what? She said they were already rescheduled! I told her no one had told me they were scheduled. Then she told me there were just notations in my file/record. Well that’s not going to help me…. Sigh…. At least it’s all scheduled now.

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  • 7of9
    7of9 Member Posts: 833
    edited December 2021

    be careful out there...virtually no one wearing masks at retail and drivers are MEAN. Horns blaring, angry gestures. Really people, we are alive, well (for today) and it's the holidays. Shameful. Going back to nature to find the peace and quiet joy I know exists.

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  • KIDI919
    KIDI919 Member Posts: 425
    edited December 2021

    7of9, Nature is really the only thing that makes some sense in this world. And I think many times that mother nature has had it with us

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  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited December 2021

    All the more reason to live in my house and stare out the window as much as possible. Avoid anyone I do not want contact with. Even do doctor ones on the computer now if we can now and stay out the offices. From what I've seen on the news people are driving llike maniacs out there right now and there are accidents all the time. A lot of them are DUI even in the middle of a weekday!!!

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  • GG27
    GG27 Member Posts: 2,128
    edited December 2021

    This kind of posting on FB just amps up my annoyance factor!! Why are we still talking like this??? Tatas? Lady bumps??

    "Can we chat about your Tatas? Breast Cancer can be kicked if it's discovered early!

    Book your mammogram with the BC Breast Cancer Screening program and have their mobile unit visit us on the island. I've registered with a date TBA, I'm guessing they wait until they have enough pending appointments before they book the trip over.

    Just call the number listed and get it booked for your lady bumps!

    I just want to post on her thread, but I know I shouldn't as I won't be able to be kind.... I was diagnosed early & yet here I am stage IV. You guys are the only ones who get it.

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  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited December 2021

    GG27...sigh. Don't get me started. Breast cancer has been trivialized and sexualized for so long, the cutesy words that actually mean "breasts" have become commonplace. Breast cancer is fluffy, cute, pink, feminine, trendy, and most of all...guaranteed to be survivable, and all you have to do it "catch it early." '

    "Save second base!" You can have second base. Save my life.

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  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited December 2021

    Not to mention the surgery is ugly as well and you are never the same after this at any point.

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  • KIDI919
    KIDI919 Member Posts: 425
    edited December 2021

    I have often felt that people think breast cancer is no big deal. Sometimes I trick myself in to believing it. Then it just crashes over me.

    I have been crying for 2 days. SIL who is really a sister to us is in ICU with covid pneumonia. She was put on a vent yesterday and now today some type of heart issue has changed her statis from stable to critical. She also has cancer (CLL) which doctors felt was close to being in remission. But because of her chemo her immune system sucked. I am sick of people thinking this virus is no big deal. Our county has a mask mandate but u see people all the time not wearing one. Would it fucking kill u to put one on!! My DIL works at a major trauma hospital. Spoke to her yesterday and she said they are out of beds and are intubating people all day long. Thats what she does and she's scared of getting it. Have we always been so selfish that we can't do something for the greater good? Wear a mask and get a vaccine?

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021

    KIDI - I’m sorry about your SIL. Hope your DIL can avoid getting sick. I have family members working with COVID patients who haven’t gotten it, but it is risky.

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  • GG27
    GG27 Member Posts: 2,128
    edited December 2021

    KIDI I'm so sorry about your SIL.


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  • Jelson
    Jelson Member Posts: 1,535
    edited December 2021

    Hugs to all who have lost their loved ones.

    I just want to chime in on dr. office phone systems and a little rant. I was dismissed from gyno/onco after 3 years of follow-up for total hysterectomy for endometrial cancer and told to see regular gyno once a year. Went 3x and then covid hit. Tried to make my annual appt., after being on hold for who knows how long, finally caved and opted for the call-back option. 18 months later, still waiting for that call.......... I can assure you, I am assiduous in my annual BC appts, but not so much for this - and you know why???? At my last appt., it was a different gyno, who, in the course of the exam, remarked you have hemorrhoids. As if I didn't know! Thank you very much and now you qualify for Board Certification in Proctology. Stick to your hole. All thing I wish I had said but of course didn't.

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  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited December 2021

    KIDI919 I'm so sorry about your SIL.

    I am having mild cold symptoms so i scheduled a test for tomorrow to rule out covid19. I was at a funeral last week, and I have one this Saturday so hope to know if I can attend or not. Thinking about heading home to work. I wasn't expecting to, so I had to come in and get some stuff off my desk. I hate this.

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  • woodlands
    woodlands Member Posts: 64
    edited December 2021

    I have metastatic breast cancer discovered three months after retirement and moving to a new state to live in the woods. I just finished two years of no pain, no progression, just a daily nap needed, and various estrogen blocker pills.

    Finally the word progression and chemo pills enters my world due to the continued rise in my tumor markers. NO! Why can't I freeze the moment before chemo? Will I really only live a total of 10 years? Will it be less? Unable to accomplish much this week. Feeling really worried, waiting to start the chemo pills. Why can't they just leave me alone? Why can't I just live a normal life and enjoy my retirement world? Why did the cancer progress? I am so scared and want to cry. Two years of knowing this cancer could grow and change, and then it finally happened. CT scans will take place to see if the cancer is still not in my organs. Where is it if my tumor markers have risen? Where is it?

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  • KIDI919
    KIDI919 Member Posts: 425
    edited December 2021

    Oh woodlands I'm sorry to hear that.

    Ctmbsitka I hope your test comes back neg

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  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited December 2021

    Oh woodlands

    Ctmbsitka I hope it is a cold/fall/winter allergies. Keeping good thoughts your way!


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  • AlwaysMeC
    AlwaysMeC Member Posts: 167
    edited December 2021

    My husband stated he wants a divorce today. As I type, he is packing up. Four kids -- 25, 23, 8, 6. I am in my second week of rads. I have no family in the state we live in. I have no close friends here. I also have 12 Kadcyla infusions left to go, one every three weeks. I don't even know if I'm mad. I don't want to work myself up because I don't want this to kill me. I just wanted to vent.

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  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited December 2021

    Woodlands, I'm so sorry. It's terrible news in any circumstance, but it's like adding insult to injury for it to happen now as you were starting your new phase of life. But maybe being in the woods you love will be what gives you strength.

    AlwaysMeC, How appalling! Maybe if you can, think of it as another cancer that's getting removed?

    Hugs to both of you and anyone else who needs one.

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  • denny10
    denny10 Member Posts: 289
    edited December 2021

    AlwaysmeC, what a nightmare you are living through at the moment. You are not mad, just keep letting off steam here whenever you need.

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  • Rah2464
    Rah2464 Member Posts: 1,647
    edited December 2021

    Wow just wow - AlwaysmeC I am so sorry and I think I agree with Alice. Think of him as another cancer to be removed. Stay in contact with your sisters here we will stand with you. Does your oncology group have access to therapy programs and community support? I hope you can access those resources if they are available.

    Woodlands so sorry to hear of your news. (((Hugs)))

    I was going to vent about my SIL. My brother is recovering from surgery for lung cancer where they removed a lobe from the right side. His pathology came back concerning enough that his oncologist wants to do adjuvent chemotherapy. MO wanted him to begin treatments Nov30. But SIL came down with an upper respiratory infection (not covid). I was worried about her until my brother caught it and he admitted to me that she has not been wearing her mask while out running errands. Grrr. You have an immunocompromised spouse who needs to begin treatment that will further compromise him and you go out and bring this illness home that is delaying treatment. Good grief.

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  • Betrayal
    Betrayal Member Posts: 1,374
    edited December 2021

    Woodlands: Sorry to hear your news and offer ((Hugs)). I hope you will be able to distract yourself from your current worries by appreciating the beauty of the flora and fauna in your woodlands. We have a wooded propery that gets daily visits from all sorts of birds including the 4 legged sometimes antlered and nonantlered ones that raid the bird feeder as well as squirrels and foxes. It is one of the ways I defuse.

    AlwaysmeC: You have enough drama in your life with your dx and tx so good riddance to another source of drama. Hopefully your older children will be supportive and the younger ones will keep you engaged in their lives. We are here for you. I have no local family support system and my BFF lives over an hour away so I can identify with your feelings. Try to see if there is a local BC support group that you can join, it's nice to know someone who is going through the same experience. You need to focus on your well-being first; hard to do but we women so often do not make time for ourselves and it is critical to do so even if it is only for 15 minutes a day. ((Hugs)).

    Rah2464: Shame on your SIL and I wish a speedy recovery to your brother once he can start chemo. ((Hugs)) to you as well.

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