STEAM ROOM FOR ANGER

AliceB: Yes, our Thanksgiving is still a Harvest Festival. We aren't weighted down with the image of Pilgrims, turkeys and First Nations who would have sooner not had those other guys around. . I feel sorry for American too for not having Boxing Day off. You don't get a day to digest the previous night's gluttony and maybe too much booze.

JKL2017: I am sorry to hear about your doctor. This disease just keeps on taking.

so many "good" reasons to rant, im sorry. I am sending good thoughts to all of you.

elderberry, definitely fair and he’s does need help. I hate to think what long term jail will do to him but he earned it and hopefully will help or at least sober him up. He’s the only one in the family I have semi regular contact with though, he’s annoying but not dangerous on his own but the home environment is a nightmare. I wish he’d gotten out and stayed out sooner.

I'm so sorry for all of you who have gotten recent bad news about family or good friends with cancer. It seems like when we're maybe finally able to not think about our own experience, we have to re-live it with someone else.

Ugh Shetland sorry for the trip to the hospital. Hope they get the fever under control and spring you out of there quickly . ((Hugs))

(((Hugs))) Shetland.

Shetland, sending you cyber hugs and good thoughts of the IV working and getting you out of there!

GR4C1E, it's so unfortunate that we can't fix stupid!! We have 2 out right now. One confirmed positive, not sure about the other one yet. I stay in my cube only leaving to go to the bathroom or go outside to walk. The receptionist sprays down the place every night! I've been masking when in public at the stores, and for meetings,. Feel pretty OK this time, as I am not in close contact to anyone for a long time. Case counts and hospitalizations seem to be rising in PA. Stay safe

Sunshine99 - Agreed. I pretty much have those exact words playing on a loop in my head. But, this is the same coworker who came to work a month before the COVID shit hit the fan, with (allegedly) 102 degree fever and proceeded to lay on her office floor until noon, and then left for the day. There's just no explaining why people do what they do.

Thanks, guys. The nurse just told me that the cultures showed infection related to my port. When I had it accessed yesterday morning, someone came by and asked the nurse to hand them the trash can. And I failed to pay attention and make sure he changed his gloves immediately. Why ask a nurse who is working with a patient to deal with trash? Why wouldn't he tell them no? WTF?

SP,

I hope things are controlled quickly. The hospital is on my list of top 5 places I’d rather not be, though it’s sometimes necessary. Take care.

Shetland, this is outrageous! I hate that nurses are sometimes careless when accessing a port. I remember asking a nurse once if she would put on the mask that comes in the access kit. She calmly told me that she only does that if she has a cold or not feeling well (this was pre COVID, during my chemo).

Why do they put the mask in the kit then?! I politely asked her to put one on, and she complied.

Handling the trash?! WTF indeed! I hope the antibiotics clear the infection quickly and you are home in no time. You truly have been through a lot and deserve a break.

Thanks for your support, everyone. The patient advocate is going to stop by my room. I want there to be some education about the trash incident so it does not happen to anyone else.

Depending on the specific organism, I may or may not be able to keep my port. I do not need more surgery! I do not need painful IVs and blood draws in my future! I do not need any more delays on starting a new treatment plan! This is how things go wrong. What if the cancer gets away from us? I was supposed to see my onc today, but I am not allowed to go as an inpatient, rolling my IV pole. But she will stop by and see me this afternoon. I don't think the genomics is back because it took them forever to start the sequencing. AArgh!!!

Shetland- I am so sorry you are having to go through this! Sending you lots of hugs and praying you get out and back on track soon.

Both the nurse and the GI doc asked why I was there this morning. I almost replied with, "I thought I was just suppose to show up!"

Going for a few more tests checking for liver disease. I am surprisingly calm about it and it is mostly because I have you all to thank. Your knowledge and all that you all endure is inspirational to say the least. Finally scheduled the endoscopy to fix my esophagus for late February!! Doc thought it was me putting it off, but I said, no, I was told your were booked solid. I really don't care if she believed me or not.

I'd like to vent about what this is all going to cost. I'm getting as much done now that I can since I've reached my max out of pocket for the year Having an enrollment meeting today and although insurance company is changing my premium is staying the same. There's just no getting around it until I can get Medicare. There goes another $3-4K next year, and having to update everybody I see with this information that I better receive in a timely manner.

First I want to say that I am so sorry for all that you ladies go through. It really sucks that there is an added amount of stress when dealing with cancer. Hugs to everyone and I'll push out some good thoughts later.

Now for my vent.... I have been trying to reschedule my tox check, oral chemo, and zometa infusion for 2 weeks! I had to take an extra week off of treatment between cycles 2 and 3 due to low ANC. When I did my tox check for cycle 3 my nurse practitioner told me she canceled my original cycle 4 tox check on 1 Dec and rescheduled me for 8 Dec. She did not. I called 2 weeks ago to get the appointment cancelled and rescheduled and was directed to one of the nurses. She wasn't available so I left a detailed message and my phone number. Never heard back. Called last week and was able to get the 1 Dec appointment canceled but the lady couldn't reschedule me at the time and promised to call me back within 24 hours. She never called. I called yesterday and the person who answered could only reschedule one of the three things I needed and the person who could do all three wasn't there. So she took my information and promised I'd get a call back. Still haven't received it. Called this morning and the lady told me that only one person could schedule me for those appointments and they were not at work yet, at 9:15am. The office opens at 7:30am. Can anyone be bothered to schedule treatment for a STAGE IV CANCER PATIENT? I am so angry right now.... I have my 3 month check in with my MO today so I WILL get rescheduled and I WILL complain about the front desk and my nurse practitioner. Normally I wouldn't say anything about the NP but this is the second time she's promised to get me an appointment and flaked..... I have so many angry, inappropriate-for-here words I want to shout.....