How has the Pandemic affected you as a cancer patient/survivor

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  • wrenn
    wrenn Member Posts: 2,707
    edited November 2021

    Still flummoxed by the numbers of people who think aerosols enter and exit the body through the chin.

  • Dancemom
    Dancemom Member Posts: 369
    edited November 2021

    Wrenn, that made me laugh out loud!🤣 BUT, my observations on the bus to work lately lead me to believe that masks are ACTUALLY to cover the lack of facial hair on far too many high schoolers' chins?

  • ErenTo
    ErenTo Member Posts: 343
    edited November 2021

    hahaha wrenn :)

    I have an English friend who lives and works in Malawi. She said there are some practical reasons for people not bothering to get vaxxed, main one being that it costs them half a day's salary to get to and from a vaccination centre. It is apparently a big problem, she volunteers and transports people who want to get the shot.

    Another reason is indifference mixed with social media mistruth. In a country/continent that HIV, accidents, childbirth, malaria are still killing people in droves, getting vaccinated against a disease that is likely not going to kill them (it's a very young continent) isn't simply a priority in their minds.

  • Jelson
    Jelson Member Posts: 1,535
    edited November 2021

    DivineMrsM - I hope your son, his ex girlfriend and her family members do not contract Covid and the one relative who did, recovers quickly.

  • GR4C1E
    GR4C1E Member Posts: 159
    edited November 2021

    Wait - you can get a fourth Covid vaccine?

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited November 2021

    Thanks Jelson. Ds's girlfriend called her doctor who told her to get tested five to seven days after exposure so she plans to get tested tomorrow and Friday. Ds is a bit miffed that the gf's dad had symptoms Friday but waited till Sunday evening to tell his daughter. Her parents are big church goers and initially were not going to get the vaccine but changed their mind in early summer. Bet they are glad now that they did.

    I keep thinking of my neighbor who stood at the fence between our yards last October cynically saying Covid would be gone by the end of the following month. Because he thought it was all a ploy to somehow fix the election against the former President. Even tho he and others from his church had Covid.

    Went to line dance class today after not having it last week due to Thanksgiving. A few women were hugging and kissing each other. What the what? Not a good idea after everyone' s just getting back from traveling all over to see family!

    One woman asked if anyone was getting the booster. I told her I already got it Another woman is on the fence about it—-her boyfriend died of Covid in January! While I was telling the first woman she should get it, the woman whose bf died was merely telling her to ask her doctor or go get an antibody test! In my humble opinion, some people are nuts!


  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited November 2021

    The stupidity is just stunning.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited December 2021

    The WHO (and, alas, Dr. Hotez whose scientific expertise I respect) are still laying the blame for vaccine inequity at the feet of Americans getting booster shots. I'm sorry, but it's NOT our boosters that are preventing shots getting into arms in the Third World. (Just as my eating three meals a day is not responsible for famine and world hunger). My booster shot is not responsible for people in the hinterlands halfway across the world being unable to afford the time or the transportation to travel to vaccine clinics. The U.S. has donated more doses to the Third World than has the entire continent of Europe (and we will have donated a billion and a half by summer).

    Whom shall we blame? Well, certainly the vaccine manufacturers (Moderna & Pfizer) who refuse to open-source the technology to the Third World, much less train scientists there in how to make the vaccines. (They'll still make hefty profits selling doses to First World governments). Petty bureaucracies unable & unwilling to set up the infrastructure for getting doses out of storage and distributing them throughout their countries, much less marshalling personnel to administer them. Syringe manufacturers who are not shipping enough of the specialized syringes necessary to administer doses--as well as those nations responsible for holding back cargo container ships so they can't get to ports & airports. Social media for facilitating the spread of disinformation, especially in countries where people's only source of news is "the grapevine" and their cellphones, with that "news" coming from social media platforms and websites.

    The fact remains that most of Africa, while under-vaccinated and most likely under-supplied, is NOT where cases are spiking, much less variants appearing. Their citizens by and large do not engage in nor encounter international travel. But South Africa--where Omicron was first identified after a sudden spike--has a surplus of vaccines, enough personnel & equipment to administer them, yet massive vaccine hesitancy & COVID-denialism to rival the worst areas of our "red" states. I forget which African nation actually sent back the vaccines donated to them because they wouldn't be able to be administered before spoiling due to lack of proper storage facilities. Still more in southern Africa (including Malawi) have discarded doses because they could not store them properly, not enough people were willing to get them, and so they did spoil. We donated AstraZeneca doses because the FDA has yet to authorize them (though they're used throughout the UK and much of the rest of Europe) and they needed to go into arms rather than languish in storage--we did not deliberately "dump" expired doses on the Third World.

    And no, AFAIK nobody is getting fourth shots yet. Back late last summer some immunologists suggested that the severely immunocompromised be vaccinated every month, but that was shot down (pun intended) pretty quickly. Still, though, it might be that the COVID vaccines are, like those against childhood diseases, ideally a multi-dose regimen--in which case giving incomplete treatment could prove disastrous. The last cohort of N. American kids who got polio were those who had not yet gotten their second Salk shot or Sabin sugarcube before being exposed. (The husband of my BFF is one, and Joni Mitchell is another).

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021

    SA scientists who identified omicron variant asking for support.

    https://twitter.com/tuliodna?s=21

    image


  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021

    I was hoping to wait until January for a third dose, but my charge nurse suggested I get it soon because of rising cases here. I'll see MO next week and ask about taking a longer break from Ibrance to lower risk of rash. I still have a couple small rough patches from the first dose. Which vaccine should I get after 2 doses of Moderna 15 weeks apart? It's been 4 months since the second dose.

    image

  • moth
    moth Member Posts: 4,800
    edited December 2021

    i mixed mine - Pfizer + Pfizer & then Moderna for my 3rd on the advice of public health here but that was before omicron so I don't know what they're recommending now

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021

    moth - For the Moderna shot, did you get the full or half dose? Thanks!

  • moth
    moth Member Posts: 4,800
    edited December 2021

    Serenity- full dose for my moderna

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021

    moth - Thanks! I just got an email from the nurse that she would give the full dose for me. I made an appointment with her, but the timing with Ibrance isn’t ideal. If I go to a mass vax site with better availability, they would give me Pfizer. I’m leaning towards Pfizer to mix it up, avoid thefull dose of Moderna (rash PTSD), and have better timing with Ibrance. I need to ask about getting the shot in my thigh though.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021

    Earlier this week I had a dermatology appointment. I stopped at oncology to see the charge nurse who has taken a personal interest in my rash experience. The maskless clerk was there. Apparently he thinks having COVID and one vaccine dose exempts him from properly wearing a mask. Weirdly I accidentally deleted the emails with the ombudsman. Instead I DM’d someone on Twitter who will try to escalate it on their end. I said I’m willing to make a scene if it would help.

  • Chowdog
    Chowdog Member Posts: 236
    edited December 2021

    So the U.S finally found a bunch omicron cases, but the administration's "solution" is to have people pay for at home rapid test, then get reimbursed by insurance companies? why? why do we make things so complicated, from vaccine appointments to covid tests, after 2 years into the pandemic? Also this doesn't kick in until Jan 2022. WTH. isn't now the most crucial time to use at home test coz of the holiday? I just don't get it.

    Also, I went the supermarket yesterday and saw at least 5 senior citizens with masks on their chins or under their nose at the checkout counter.

  • Dancemom
    Dancemom Member Posts: 369
    edited December 2021

    The line for that omicron convention wrapped and looped outside my building. All the young semi-responsible vaxxed people who are willing to wear makes indoors for the event were outside maskless in a tight line that doubled back on itself. No distancing, no masks, for hours. I just hope this doesn't affect "elective " surgery again. I can't keep gearing up for this. Its been an f'd up almost 2 years and selfish people need to take responsibility. Im tired of giving up everything because I wanted to move forward, while everyone else travels and parties and spreads new variants.

  • wrenn
    wrenn Member Posts: 2,707
    edited December 2021

    I am so angry at those who keep the insanity going. My 2 year old granddaughter was in emerg with what was thought to be croup but because some young people have croup symptoms with covid she had to have that damn painful brain poke test. My daughter is 38 weeks pregnant and had to sit in emerg with her sad child. She isn't an angry person so I am doing her share of rage. I am so done with assholes.

    Baby girl is neg for covid but the worry was unnecessary dammit

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021

    Chowdog - We don't have easy access to home tests here. Do you think those seniors are relying on their third shots to protect them? It's not hard to wear a mask correctly!

    Dancemom - I saw videos of some of the attendees. Even indoor ones had maskless people.

    wrenn - I'm sorry your family had to go through that. Hope they're ok.

    We are back to being the hotspot in Canada thanks to our provincial idiots in charge. Most of the new cases are in the unvaccinated young and likely their parents. But they don't want to mandate vaccination. 🤬

    image

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited December 2021

    Oh, Wrenn, how awful she had to go through that!

  • wrenn
    wrenn Member Posts: 2,707
    edited December 2021

    about not wearing masks properly. I am finding out that people don't really think. They do what they are told if it is convenient and if they won't get caught. Being careful drinking and driving (danger doesn't count but just getting caught).

    Very few make the connection about aerosols entering/exiting body. Just "I have my mask on my face". I want to ask why they have it on at all and if they say it is mandated I could ask why they think it is mandated. I badly want to point out the purpose. But I am also growing weary from it all and just vent here and shut up out there.

  • wrenn
    wrenn Member Posts: 2,707
    edited December 2021

    Thanks guys. It really is just croup but she is suck a sweet trusting child and hearing she had to have that done just made me sad/mad.

    Stunned by how many selfish people there are in the world. Mad at interwebs for showing me. I had no idea there were that many not that long ago

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021

    You know the game with the paper triangle football? I’m tempted to make a bunch of them to flick over the stupid plexiglass onto the maskless clerk. Each one would have an image of the virus captioned with “Gotcha!”.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021

    If my family saw me making them, they might not let me go to the hospital unaccompanied.

  • wrenn
    wrenn Member Posts: 2,707
    edited December 2021
  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited December 2021

    Serenity, that graph tells it all: we Boomers are being responsible and in return have the lowest incidence of COVID; but teens, Gen-Z, millennials and younger Gen-Xers are reaping the whirlwind.

    The emerging etiology of Omicron shows once again that it did not start in areas with low availability of vaccines, but rather in countries with good supply and low demand--Europe and then the parts of southern Africa similarly situated, to which Europeans (especially apparently the Dutch) had traveled and "left a little something" for South Africa & Botswana "to remember them by" (reverse souvenirs). The fact remains that the Third World countries with the least vaccine equity have paradoxically turned out to be those with low COVID transmission--again, perhaps their very insularity (caused in large part by poverty) may be protecting them despite logistical fusterclucks. It shoots to hell the self-righteous contention that First Worlders getting boosters are depriving the Third World of first shots, causing death and despair among the poorest. It's mostly the First Worlders refusing to both vaccinate themselves and mask up who are sowing and reaping death & despair, largely among and within their own countries--and then likely spreading it beyond their borders. It's tempting to buy into the WHO's trope of wealthy nations hogging vaccines resulting in inequity in the Third World, because on the surface it seems so logical (and quite frankly, righteousness and sanctimony can feel so selt-satisfying). But as we're seeing, that argument fails to take into account the unforeseen variables that complicate the picture and seem to defy logic.

    The saving grace (thus far) is that the earliest identified Omicron cases have been mild & fleeting. Both of the first two identified American Omicron cases were mild and fleeting--they've already recovered. (The San Franciscan had visited South Africa, the Minnesotan had attended the NYC anime convention from which 5 NY cases were identified yesterday). And even if the currently available vaccines are less effective against Omicron, they're not ineffective. Even if the variant can elude antibodies produced by vaccination & previous infection, it can't elude T-cells, which antibodies recruit. The more antibodies, the more T-cells (except in those with myeloid & lymphatic cancers whose bone marrow can't produce T-cells and white cells).

    I had three Modernas: Jan., Feb., and then Aug. All were the full 100mcg. doses. So not only was my antibody titer multiplied almost 100-fold, those antibodies will recruit plenty of T-cells. But that doesn't mean I'll ditch my mask and hang out in crowds. In fact, I'm shelving my surgical-style and cloth masks for the better-fitting and better-filtering KN95s & KF94s. (They're more comfortable too, don't need to be layered or laundered, and can be rotated and used until they get soiled, wet or their straps fail). I have a few duckbill N95s, but their head straps are uncomfortable; I'll save them for airplane travel and (heaven forbid) surgeries.

    Will I stop dining at restaurants and traveling? No--but I will alter where & how I do both. Not going to travel to, get personal care services, nor eat in places where mask-wearing is the exception rather than the norm. (For instance, we're blowing off a nurses' Christmas party tomorrow night at a banquet hall in the right-wing SW suburbs--generic drinks and mediocre family-style platters of banquet food aren't worth the risk, despite the $80 we paid in advance. The nurses throwing the party are required by their hospital to be fully-vaccinated or tested weekly; but, knowing the locale and their politics--they're all white South Siders--I don't trust them to be partying safely).

    Get vaccinated (be current on all your vaccines--flu, pneumonia & TDaP included). Get boostered when eligible (and if you feel guilty about that, donate to an organization that actively works towards vaccine equity). Wash your hands. Avoid crowds. Wear a good mask & wear it properly whenever in an indoor public space or can't social-distance when outdoors. Use curbside pickup whenever it's offered. Get tested if you have symptoms (even if you think it might just be a cold) &/or think you've been exposed--and RSVP "no" to any family or friends' gatherings till you test negative.

    Above all, don't do anything stupid. Weigh your risks, and ask yourself--as the old WWII-era gas-rationing slogan goes--"Is this trip really necessary?" (We have decided that vacations are not, but our son's destination wedding this spring is).

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021

    ChiSandy - It's weird to see the same graph, but come to different conclusions. But you're looking at it without context.Gotta dig deeper. The outbreaks are occurring in schools (with no ventilation improvements, little distancing, weak exposure rules) with the kids (just recently eligible) bringing it home to parents (with no boosters). Last month the province lifted mask requirements in secondary schools because that age group wasn't getting hospitalized. Now they are. Are Boomers really more responsible when policies benefit them the most? You can't expect kids to be more careful than they're required. I could do more with the rest of your post, but it's late.

    ETA: The group responsible for the stupid policies leading to this mess happen to be Boomers and the older Gen-Xers.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021

    Insomnia…

    Here in QC, only 70+ or limited immunocompromised are eligible for the booster or third dose. Under 12 just became eligible for dose 1. It's the provincial leadership that's responsible for all the sick kids/parents. They wanted to make sure the parents are working in person, but they didn't implement NPIs to protect kids in daycare or schools. You can't assume from the chart that Boomers are more responsible. They're protected.

    I'm going to switch to VOC, because numerous variants arise everywhere. It's only the VOC that matter. VOC have occurred in areas with low vax rates. Stating that omicron developed in an area with low demand really means low vax rate.

    Boosters vs vaccines everywhere - Why do you think that both can't happen at the same time? The scientists are pushing for both. Maybe they know more than you. I even heard a clip of Biden saying vaccinating the world was a moral imperative.

    "Self-righteous"? "Sanctimonious"? That's horrific. You should let that go.

    I don't want to use "First World" or "Third World". All areas with low vax rates are susceptible to the pandemic even if they're isolated. COVID data from many countries are inaccurate. If the country has few resources, you can assume the data are missing cases/deaths. The whole world will be exposed eventually. Why are you against minimizing the damage? Dr. Hotez and many scientists disagreewith you.

    The African continent stands out on maps of vax rates by country because they are so low compared to the rest of the world. We shouldn't lump all the countries together. They won't all need or accept the same support, but dismissing the effort is not conducive to ending the pandemic. Plus, we need Africa to do well. We're in a global economy. They grow the best vanilla.

  • gb2115
    gb2115 Member Posts: 1,894
    edited December 2021

    Ah, the chin mask wearing. That happens in my oncologist's waiting room. Nobody says anything. That happens with the patients/staff in the clinic where I work. Nobody says anything.

    I think literally no one cares about anyone else.


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