Diagnosed at 33 and looking at options

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chmoore88
chmoore88 Member Posts: 2
edited November 2021 in Young With Breast Cancer

Hello everyone.. I am 33 and was diagnosed last Friday with invasive ductal carcinoma, with a 19mm (1.9 cm) mass, grade 1. I have not yet heard of the "make up" of HER2 and all of that. I know that will be a game changer as far as treatment goes, so I am worried about that. There is a significant history of cancers in my family. Of note, my Mother passed from ovarian cancer at the age of 59, her sister also had ovarian cancer, and my paternal aunt was diagnosed and treated for breast cancer. I learned since my diagnosis that she began having abnormal mammograms at the age of 23 (but no concrete diagnosis until post menopause). My maternal grandmother passed away from colon cancer, my paternal grandmother from lung cancer, and my paternal aunt at a young age to skin cancer (hence the genetic testing). About a year ago I completed genetic testing and was referred for a one year high risk follow up. The mammogram showed 2 areas of concern, which was followed up with an additional mammo, then an ultra sound, and a biopsy of both of the areas last Friday. I have a surgical consultation next Thursday. I have been researching different treatment options and it is pretty overwhelming.

Here are a few of the options I am considering:

Double mastectomy with breast reconstruction using my tummy fat - (hello tummy tuck!)

But also getting a full hysterectomy and tube removal.

Does anyone have experience with this type of combination?

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Comments

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited November 2021

    chmoore…i am sorry to hear about your diagnosis and the loss of your mom. Holiday weekends are a slow period of time on this breast cancer board.


    hopefully, others will see your threads soon and respond. I am sorry that I cannot offer any advise on this topic.


    i wish you well.

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  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited November 2021

    chmoore,

    If your cancer is Grade 1, it is highly unlikely to be HER2+, which is usually Grade 2 or Grade 3. If you go ahead with all that surgery, you are probably looking at multiple surgeries. No surgeon would do the mastectomy/DEIP flap at the same time as the full hysterectomy/tube removal. Plus, recovery from the mastectomy/DIEP flap will take some time. ((Hugs)) It's hard to wait for all the test results, but at least you're looking ahead!

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  • Aram
    Aram Member Posts: 417
    edited November 2021

    Chmoore, I am BRCA1 positive. I had BMX with immediate reconstruction with implants. I will be having hysterectomy this December. Good luck with your choice.

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  • Waves2Stars
    Waves2Stars Member Posts: 158
    edited November 2021

    My surgeon didn’t rule out having a hysterectomy at the same time as DIEP flap. HOWEVER, now that I’ve had a single DIEP, I think having a double plus gynecological surgery would be risking complications and a much tougher recovery than is necessary. Dropping yourself directly into menopause (at your age) along wit a big surgery doesn’t seem like a great idea.

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