Calling all TNs

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  • Katiha
    Katiha Member Posts: 68
    edited October 2021

    Hello all!

    I hope everyone is doing well.

    Have not been here for a while, as mom was doing pretty good. Now she had her ultrasound and they found some new growth on her scar. BI-RADS 2, two granulemas along the scar.


    BI-RADS 2 is 100% not cancer, am I correct?

    Her doctor said to not worry. But I am still worried a bit, as I read sometimes they can confuse it.


    Anyone familiar with those?

    I prob should post it as a separate topic.


    kate

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited October 2021

    Birads 2 is *not* suspected to be cancer

  • HopeHeal
    HopeHeal Member Posts: 204
    edited October 2021

    Birads 4 is cause for concern, Birads 2 is not.

  • Kayce234
    Kayce234 Member Posts: 249
    edited October 2021

    Hi All

    Quick question. Haven't had my surgery yet - scheduled for 10/21 - but I have been exhausted for months. I fall asleep around 10:30 and sleep pretty much straight thru to my alarm at 7:30 yet I'm always exhausted and have no energy. I noticed this with my last cancer diagnosis but not as bad. It started a few month before diagnosis but has gotten progressivly worse. Anyone else feel like this? Is it the cancer making me so tired?

  • NorCalS
    NorCalS Member Posts: 288
    edited October 2021

    Kayce234,

    Could it be the stress from having to deal with BC again and also dealing with your mom? When I’m stressed, mo matter how much sleep I get, I’m still tired.

  • Katiha
    Katiha Member Posts: 68
    edited October 2021

    Hi Kayce234,

    My mom felt like that before they found cancer. She felt better right away after they took it out.

  • Everythingispossible
    Everythingispossible Member Posts: 6
    edited October 2021
  • Kayce234
    Kayce234 Member Posts: 249
    edited October 2021

    Katiha

    Thanks! I felt this way last time but it's so much worse this time.

  • HopeHeal
    HopeHeal Member Posts: 204
    edited October 2021

    Hi Kayce, I would say yes it is most probably the cancer making you tired. I was always tired before I was diagnosed and felt so much more energetic after it was treated, even after the chemo (imagine that!) and especially after the surgical removal. Our poor bodies trying to fight it.

  • tumornamedclyde
    tumornamedclyde Member Posts: 11
    edited October 2021

    In June 2018 my CA 27-29 went to 38 and I underwent CT scans and bone scans, then sold our farm, took the entire family on a vacation...(doomsday mode); fast forward to September 2018, repeated the scans, nothing. Rechecked markers, up to 40. Never agreed to any further markers until one month ago and it came back at 48. I feel great, general aches and pain, nothing severe. All other labs were within normal limits. Went today for repeat markers. Scared is too gentle a word to use. 8 years post diagnosis...

  • Kayce234
    Kayce234 Member Posts: 249
    edited October 2021

    8 days out from my surgery and I've been having low grade temps on and off and headaches. Assumed sinus infection and doctor has me on flonase, mucinex and anitibotic but not helping. Hoping it's just the stress or the actual cancer and not something that will delay surgery - already been waiting 6weeks. Anyone have these symptoms?

  • HopeHeal
    HopeHeal Member Posts: 204
    edited October 2021

    Tumormamedeclyde, I am sorry your markers went up. I hope no large tumors are found and that whatever is is easy to diminish. Sending you healing dust.

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited October 2021

    Interesting vaccine trial - this fax is designed to prevent TNBC recurrences:

    https://gizmodo.com/a-vaccine-trial-for-the-most-aggressive-form-of-breast-1847963499

    Wishing all my TNBC sisters good rest and wellness!


  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited November 2021

    Kayce, I had nightly fevers during chemo, toward the end of taxol. How did your surgery go?

    I had my final meeting with my MO last week!! I gave her a “card” that had two of my photographs inside(8x10’s). I wrote, “ you were the calm in my cancer storm, thanks for getting me through to the other side”. She choked up, I choked up, my husband choked up. Lol. We hugged. I’m on my own now!

    I came here to post the info about the triple negative vaccine clinical trial at Cleveland Clinic. https://my.clevelandclinic.org/podcasts/cancer-advances/triple-negative-breast-cancer-prevention-vaccine

  • simplelife4real
    simplelife4real Member Posts: 563
    edited November 2021

    Hi All,

    I just wanted to pop in to say I recently passed my 8 year anniversary from a diagnosis of stage 2b TNBC. I had neoadjuctive chemo, surgery (ALND and lumpectomy) and radiation. I had residual cancer in two lymph nodes after the ALND. I've been NED ever since completing radiation and I rarely even think of breast cancer. I'm here to say that it can become a distant memory with time. I know I appreciated seeing posts from long-term survivors here while going through treatment, so I thought I'd return the favor and post here 8 years later.

    Wishing everyone the best.

  • serendipity09
    serendipity09 Member Posts: 732
    edited November 2021

    Simplelife4 - Congratulations! That's wonderful! Thank you for sharing. I love reading these types of posts; it gives me so much hope!

  • TigerGirl72
    TigerGirl72 Member Posts: 8
    edited November 2021

    simplelife4 - your post made me want to cry. Thank you for the encouragement! This road is hard to walk but grateful to hear good news from those who have already walked it. Blessings!

  • mamacure
    mamacure Member Posts: 236
    edited November 2021

    Thank you so much SimpleLife!! That really cheered me up. I was so down after positive nodes after my ALND.

  • NorCalS
    NorCalS Member Posts: 288
    edited November 2021

    Simplelife4,

    Thanks for coming back and giving the rest of us encouragement. As someone who also did not get a PCR, it’s really good to hear from those who continue to do well.

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited November 2021

    Simplelife, yes, it is really heartening to hear about your long term wellness. Thank you for checking back in. Cheers!

  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited November 2021

    Simplelife! Cheers! and wishes for many, many more years checking in here with good updates!

  • Meadow
    Meadow Member Posts: 2,007
    edited November 2021

    Hey all, just popping in to say Hi! I have been off the boards for a few years, and I wanted to let my old friends know I'm still kicking! I'm 8 years out from Triple Negative Inflammatory Breast Cancer, and 7 years from end of treatment, NED. This thread and the beautiful ladies were a significant part of my journey, my healing team. To all the newer ladies and gents, who aren't so new but new to me, I hope you are getting a lot of great support and info here. Do not despair, good health can be had again. Hoping everyone celebrating Thanksgiving has a great day. I am recovering from Covid and have lost my sense of smell and taste...why now?! I am vaccinated but had a breakthrough case. Another, Sylvia, Cathytoo, Val and so many more hope you are well!

  • serendipity09
    serendipity09 Member Posts: 732
    edited November 2021

    Meadow - Congratulations! Thank you for coming back and sharing. Sorry to hear about you catching covid, but I'm glad that you're recovering. I hope you get your taste back by Thursday, if not, then it's another reason to celebrate Thanksgiving again on another day. Hoping you continue doing well. Happy Thanksgiving!!

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited November 2021

    Thankful for this forum and the supportive people here. Wishing the best to my TNBC sisters.

  • NorCalS
    NorCalS Member Posts: 288
    edited November 2021

    Santabarbarian and the rest of the TNBC crew:

    Happy thanksgiving! Grateful to have you guys here to help deal with TN

  • Martaj
    Martaj Member Posts: 325
    edited November 2021

    Good morning all,

    I hope you could all Thanksgiving with family and friends. My day was filled with sorrow and relief. My mother of 87 years died. I was so sad. She is not suffering anymore. Relief, was my year and half out MRI and Mammo was neg for cancer!!!! Wishing you all a happy healthy holiday season

  • serendipity09
    serendipity09 Member Posts: 732
    edited November 2021

    Happy Holidays to you all!

    Marta - I am so sorry for the passing of your mother! Sending you my deepest condolences. May you find peace in knowing that she suffers no more. {Hugs} I am truly happy that you continue cancer free!!

  • NorCalS
    NorCalS Member Posts: 288
    edited November 2021

    Martaj,

    My condolences as well. Hugs

  • Poppy_90
    Poppy_90 Member Posts: 105
    edited November 2021

    Martaj,

    I am so sorry for you loss. I hope you kind find comfort in your memories.

    Krist

  • Katiha
    Katiha Member Posts: 68
    edited November 2021

    Just popping in to wish everyone Happy Thanksgiving.

    I am Thankful for all of you helping me during dark times.

    I hope you all keep doing well


    Kate

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