How has the Pandemic affected you as a cancer patient/survivor

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  • illimae
    illimae Member Posts: 5,710
    edited November 2021

    Candy, I’m sorry to hear that there’s still so much covid and resistance in your area.

    I too am very lucky, hospitals are doing fine, my zip code is 70% vaxed and the county positivity rate is down to 4.6. We mask and see many others doing so as well. The media image of a reckless Texas just isn’t very accurate.

    Sandy, I always gamble in Vegas. I always win more than I spend too. I’m just a lucky person.

  • Chowdog
    Chowdog Member Posts: 236
    edited November 2021

    ChiSandy,

    urg, bill maher really needs to STFU about the pandemic and mask. this is the 3rd episode he has spread misinformation. amy klobuchar was on his show a couple weeks ago, and he asked her the same thing, but she didn't give into his "pandemic is over" bs.

    I like mehdi hasan's critic over his remarks.

    https://www.realclearpolitics.com/video/2021/11/02...

    Edit to add, bill maher belongs to the ultra privileged group. he has access to free rapid covid tests weekly (maybe even more frequently) coz of his show, while the rest of us have to pay for these. even at reduced price, it costs like $12-$14 for 2 tests. He could afford to stay at home and skip his show when he got breakthrough covid a few months ago, while the majority of people can't. so, he really needs to stop gaslighting the public with his privileged view of the pandemic.

  • wrenn
    wrenn Member Posts: 2,707
    edited November 2021

    I stopped listening to Bill Maher a couple of years ago when he seemed to turn into a regular old white guy. I used to think he was funny.

    I too like Mehdi Hasan but lately feel like there is so mush "look at me" or hollywood influence with all commentators that I want it ALL to go away. I feel like the culture in America feels like many wake up asking "are we rolling?"

    I think the flooding in BC and now rationing of gas has put me in a despair that I have avoided with all of this crap.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2021

    I was never a fan of Bill Maher.

    wrenn - I’m sorry to see you’re going through yet another disaster. Be safe.

    We have over 75% of the province with 2 doses (88% in 12+), but cases are rising still. Most of the new cases are in young kids and their parents. Hospitalizations, which are mostly unvaccinated, are stable, but I wonder how many will suffer long COVID even with a mild case.


  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited November 2021

    Wrenn, are you in the area where the flooding is? Like most in the U.S., I am stupid about your provinces except that they're mostly enormous. Hope all is well with you.

  • wrenn
    wrenn Member Posts: 2,707
    edited November 2021

    I am basically downtown or right in the city so not affected. The flooding is a bit further (45 minute drive?) east and north

  • wrenn
    wrenn Member Posts: 2,707
    edited November 2021

    Many people have lost everything. So far 5 people died and many animals.

    I have been very lucky

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited November 2021

    ChiSandy, you may want to think again about your array of cloth masks. My DH has been telling me about recent research that indicates cloth masks are significantly inferior to surgical masks. I'm sorry I can't cite the sources, but you might want to do some research.

  • Kikomoon
    Kikomoon Member Posts: 350
    edited November 2021

    We are on vacation in Page, Arizona. Not much mask wearing here, surprising because the nearby Reservations have been hit hard by Covid and are taking it very seriously. I knew dinner would be challenging in this town. It’s cold here, and after 3 nights of microwave meals, I really wanted a nice night out, but I don’t feel comfortable eating indoors. A couple of restaurants were not accommodating but the third one went above and beyond to make us comfortable, seating us outside with a heater. I almost cried that they were so nice to me after the other two restaurants couldn’t have cared less. To top it all off the food was verygood as well.

    If you are ever visiting Page, AZ, go to Grand Circle Grille. It’s rare for people to go out of their way these days.

  • Beaverntx
    Beaverntx Member Posts: 3,183
    edited November 2021

    ShetlandPony, not all cloth masks are equal. Many of the ones on the market are only two layers of cloth and are inferior to surgical masks. Those with three layers can be equivalent to surgical masks. I made our masks following a pattern developed at a medical school and approved by their surgeons.Used tightly woven cotton and a special liner for the third layer. So far so good...

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited November 2021

    Good point, Beaverntx.

  • Rah2464
    Rah2464 Member Posts: 1,647
    edited November 2021

    Wren sorry to hear about the flooding but thankful you are safe.

  • moth
    moth Member Posts: 4,800
    edited November 2021

    I ditched my cloth masks once N95s became widely available. Before that, I was using my N95 for medical appointments and cloth masks outside. Now, I just wear N95s everywhere.

    "Why We Need to Upgrade Our Face Masks—and Where to Get Them

    High-quality respirators such as N95s and K95s are now widely available and provide the best protection against COVID, according to experts. Why aren't more people wearing them?"

    https://www.scientificamerican.com/article/why-we-...

    (my hospital has their own surgical masks they give out & depending who's manning the door, sometimes they insist I take it so I put it on over the N95. No way am I taking off my N95 & replacing it with a procedure mask...)

  • wrenn
    wrenn Member Posts: 2,707
    edited November 2021

    Moth I put the surgical mask over my KN95 too. I don't understand why they don't accept those since they seem to me to seal much better than the procedure mask.

    I have to go for full pulmonary function testing this week and I was told I would be there for an hour (at VGH). The night before will be an Ativan sleep since those nights make the following day easier to manage and I am really nervous about having to go with no mask for some of the testing.

  • moth
    moth Member Posts: 4,800
    edited November 2021

    wrenn, I did a pulmonary function test last spring in Surrey. They did it in a private room with only 1 person in & she was masked the whole time & were sitting quite a ways apart. I felt pretty safe . I didn't have to do the treadmill lung test tho, just breathing into the machine. I hope it goes well for you!

  • wrenn
    wrenn Member Posts: 2,707
    edited November 2021

    Thanks so much for this Moth. You just saved me an Ativan.

  • illimae
    illimae Member Posts: 5,710
    edited November 2021

    I wear the hospital issued surgical mask over mine too. I have a 50 pack of N95 but the head straps are not very comfortable and I have chubby cheeks, however, my KN95’s are very comfortable and seal my face perfectly, they’re the best. DH still uses a cloth mask most of the time though because of his big beard. Not ideal but he is cautious at least.

  • Jelson
    Jelson Member Posts: 1,535
    edited November 2021

    My daughter's fully vaccinated brother in law returned from a paintball convention, or some such nonsense in Florida, this past Wednesday - not feeling well. Wednesdays are the day that his wife, her sister in law, takes our 2 1/2 year old granddaughter, whom we care for M, T, Th and Fridays. He retreated to their bedroom as soon as he returned because he didn't feel well, tested positive for Covid as has the sister in law, since she began feeling ill on Friday. Thank heavens, their symptoms are "mild" which means awful but so far not requiring hospitalization. Since the baby didn't spend any time with her uncle on Wednesday and hasn't shown any symptoms, we don't think she was infected. We are concerned, however, about their eleven year old daughter who has an unresolved congenital heart defect and is not vaccinated.....oiy

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2021

    Paintball convention? That's on my list of things I would never do. I don't understand why he would risk it when he could expose vulnerable people. I hope the kids don't get sick.

    My older daughter moved downtown in September, but she comes back once or twice a week. This week she's going to a gala that requires a vaccine passport. She will quarantine at her apartment afterwards and get a COVID test before visiting us again.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited November 2021

    Why would he risk it, you ask? Because some people will not be denied their own personal pleasure. That's just the way it is for a certain percentage of the population. It's always been there, the pandemic only magnified it to the masses. Look, most of us had those group projects in school where one, maybe two people did all the work yet the whole group got credit for the results and the non-contributors who were off having a good time really made out if the grade was good. A minuscule microcosm of our world today.

    I'm glad your daughter is so responsible, Serenity. We could sure use many more like her.

    The woman who teaches my line dance class went to a 3 day line dance convention in Virginia this summer. Came home, she and her husband got Covid, she was very sick, he died. I cannot specifically claim to know all the details but I can surmise some things. The convention probably required no masks, I know my instructor has claimed she cannot dance wearing one. From what I can tell, she and her husband were probably not vaxxed. Why did she risk it? She was married over 55 years and is having a difficult time as a widow. Is some of that guilt? Did she fly in the face of logic, reason and science? Was that convention worth it?? She's relying on her faith now; did she think faith would keep she and her husband from getting Covid? A couple simple jabs would probably have prevented his death. All I can do is shake my head.


  • Chowdog
    Chowdog Member Posts: 236
    edited November 2021

    speaking of conventions, conference etc,

    "Seven doctors contract Covid after attending Florida anti-vaccine summit"

    https://www.theguardian.com/us-news/2021/nov/23/fl...

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited November 2021

    Chowdog, I'm just nasty enough to find that quite satisfying.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2021

    Divine - The world would be better off with more thoughtful people like my daughter. I’m not biased or anything. 😀

    Chowdog - These doctors must be the ~4% of doctors refusing to be vaccinated.

    Alice - I must be nastier then. Some or all of these doctors are involved with the group pushing ivermectin as part of their protocol. They’ve been doing harm. They shouldn’t be doctors.


  • Chowdog
    Chowdog Member Posts: 236
    edited November 2021

    Serenity, same here. these people are clearly in the wrong profession.

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited November 2021

    I hate to say it but I was thrilled when I read it

  • Jelson
    Jelson Member Posts: 1,535
    edited November 2021

    Update on daughter's brother in law down with Covid after paintball convention.. You know, it might not have been a paintball convention in Fl, but he did attend one in Chicago about 6 weeks ago...Anyway, a week later, he is very ill at home. His PCP has been informed, but I am wondering: we were all advised to stay out of the hospital if possible due to shortages of beds, personnel and vents earlier in the pandemic and because he is vaccinated, the need for hospitalization should not be as necessary. In our area cases are rising but beds are still available. I am wondering if now, vaccinated people with serious symptoms are hunkering down at home and not even considering hospitalization when actually that is where they should be. So far, the eleven year old is still ok.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited November 2021





    US may have a 'game changer' new Covid pill soon, but its success will hinge on rapid testing


    CNN — Within a few weeks, perhaps before many Americans finish decorating for the holidays, the U.S. could have access to a new antiviral pill from Merck expected to alter the deadly trajectory of the covid-19 pandemic — with a second option from Pfizer to follow shortly after.

    Now under federal review, both pills are being hailed by infectious-disease doctors not prone to superlatives.

    "This is truly a game changer," said Dr. Daniel Griffin, an expert on infectious diseases and immunology at Columbia University. "This is up there with vaccines. It's not a substitute for vaccines; we still want to get people vaccinated. But, boy, this is just another great tool to have.

    The new regimens, which require 30 or 40 pills to be taken over five days, have been shown to dramatically reduce hospitalizations and prevent deaths in adults with mild to moderate covid who are at risk for severe disease because of age or underlying conditions. But experts say the success of the treatments would hinge on one uncertain factor: whether high-risk patients infected with covid will be able to get tested — and then treated — fast enough to make a difference.

    "Early, accessible testing and access to the results in a time frame that allows us to make a decision is really going to be key to these medications," said Dr. Erica Johnson, who chairs the Infectious Disease Board of the American Board of Internal Medicine. "It puts the onus on our public health strategy to make these available."

    In clinical trials, molnupiravir, the antiviral drug developed by Merck & Co. and Ridgeback Biotherapeutics, was given to non-hospitalized, unvaccinated, high-risk adult patients within five days of their first covid symptoms. Pfizer's product, Paxlovid, was tested in similar patients as early as three days — just 72 hours — after symptoms emerged.

    Results from the Merck trial, released last month, showed the drug reduced the risk of hospitalizations by about 50% and prevented deaths entirely. It will be considered by an advisory panel to the federal Food and Drug Administration on Nov. 30. Pfizer officials, who requested FDA emergency authorization for their drug on Nov. 16, said Paxlovid cut the risk of hospitalizations and deaths by 89%. Both drugs work by hampering the way the covid virus reproduces, though they do so at different points in the process.

    But those promising results assume the drugs can be administered in the narrow window of time used in the trials, a proven challenge when getting antiviral treatments to actual patients. Similar drugs can prevent dire outcomes from influenza if given early, but research shows that only about 40% of high-risk patients during five recent flu seasons sought medical care within three days of falling ill.

    "That's just not human nature," said Kelly Wroblewski, director of infectious disease programs for the Association of Public Health Laboratories. "If you have a sniffle, you wait to see if it gets worse."

    Even when patients do seek early care, access to covid testing has been wildly variable since the start of the pandemic. U.S. testing capacity continues to be plagued by a host of problems, including supply-chain bottlenecks, staffing shortages, intermittent spikes in demand and results that can take hours — or far longer.

    PCR, or polymerase chain reaction tests, the gold standard to detect SARS-CoV-2, can require scheduled appointments at medical offices or urgent care center, and patients often wait days to learn the results. Rapid antigen tests are faster but less accurate, and some medical providers are hesitant to rely on them. Over-the-counter tests that can be used at home provide results quickly but are and remain expensive. And it's not yet clear how those results would be confirmed and whether they would be accepted as a reason for treatment.

    "Get ready," Griffin said. "You don't want to call someone four days later to say, 'Ooh, you're now outside the window,' and the efficacy of this oral medication has been lost because of problems on our end with getting those results."

    The situation is expected to improve after a Biden administration push to invest $3 billion in rapid testing, including $650 million to ramp up manufacturing capacity for rapid tests.

    Full article: https://edition.cnn.com/2021/11/24/health/covid-antiviral-pills-testing-khn-partner/index.html?utm_source=fbCNN&utm_medium=social&utm_content=2021-11-24T15%3A28%3A07&utm_term=link&fbclid=IwAR3ontGBFdHlWf7ADv_ehkWHNsfA5V-A8ayjDfzWJOgIfmdh4SCnzyji5T0


  • Chowdog
    Chowdog Member Posts: 236
    edited November 2021

    Divine, I was just talking about this with my mom. One of our relatives (not a teen) who had heart valve replacement is convinced that moderna vaccine he took back in March has made his heart condition worse. Now he is refusing to get a booster despite being in the high risk group. He is counting on the oral antiviral if he gets breakthrough COVID. I was just telling my mom that by the time he gets covid results back, an appointment with his PCP, then a prescription, he will most likely miss the window for oral antiviral.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2021

    Chowdog - Yes, I agree. Thi is why treatment options aren't as good as being fully vaccinated. Unless someone is getting tested regularly, it will be hard to get these treatments in time.

    Jelson - Was he not wearing a mask? Hope his daughter doesn't get sick. We're having rising cases while hospitalizations remain stable. I think it's because most of the new cases are in the under 12 and 18-39. They're less likely to be hospitalized, but of course, some are.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited November 2021

    All my cloth masks are 3-layer and some have filter pockets. For the ones that don't, I have self-adhesive filters. And public health experts specifically advise against wearing a procedure or surgical mask over or under an N95, KN95, or KF94. The latter three provide 95% filtration--and any combo that would theoretically raise filtration to 100% would be so uncomfortable as to be not worth it. All the medical offices I visit that insist patients wear the surgical masks issued to them over or under one's own cloth or surgical mask make an exception for those wearing an N95, KN95, or KF94. (At the eye clinic, when the gatekeeper saw my KN95, she said "take the mask anyway--it's free, we have plenty, and you might need a spare one day." Quite a change from early 2020, when surgical masks were being sold at drugstores for $3-5 apiece, and not even doctors & nurses had for themselves). And N95s have to be specifically fitted to one's face lest they leak (Bob had to trim his beard for a close fit); the KN & KF masks conform much more closely to one's face--especially if they have straps or you twist or knot the ear loops.

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