Starting Chemo in JAN 2007

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  • Lynn12
    Lynn12 Member Posts: 1,008
    edited March 2007
    Quote:

    So are we all considered high risk? I was listening to something on NPR about it yesterday and I still cannot figure it out. My surgeon said I would get alternating MRIs with mammos every 6 months. My tumor never showed up on mammo. The oncologist said that they would probably just go with mammo. I'm not convinced this is the answer. I think I will push for MRI at least once a year. I think it's the surgeon who decides, right? They do the scans? I will have to ask.



    My surgeon said I'd have MRI every six months because they saw small enhancements in my LB they need to keep an eye on. I also had ILC in right so a higher chance it'll be in my left. However I'm getting the left removed next fall anyway so I probably won't get one this summer I assume. I truely hope that annual MRI's can be approved for high risk women. Mammo's are wonderful but just don't catch the cancer as well as MRI does.

    Speaking of surgeon's...I have an appt. with my surgeon in a couple of weeks. I think it's the post post op. I'm really feeling like I don't want to go to yet another Dr. appt. My mastectomy scar seems fine. Anyone else have this type of appt. coming up or have any thoughts?
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  • skyedivine
    skyedivine Member Posts: 839
    edited March 2007
    Hi All,
    I'm on day four of second Taxol week and it's much better than the last one...considering I'm not also dealing with a ruptured ovarian cyst. Had a tough day with fatigue yesterday, and also had that wobbly leg syndrome. Have to make it to the hospital today for a MUGA heart scan to make sure my heart is strong enough for the Herceptin for a year. As far as I know Herceptin does not affect hair or cause illness symptoms but can be hard on the heart. Caya, Viddie and Brenda, maybe we should start a Herceptin thread. Brenda, you should DEFINITELy keep fighting to get that paid for, it's a necessity for HER2.
    Robertin, I'm glad to hear you are doing so well on the Taxol. I am finding myself queasy and also still some gas pains, besides the bone pain and fatigue.
    Jan, the barfing man in chemo trumps the lady with ostomy bag. But at least you weren't in there for 4 hours. I am just hoping I get the other end of the room next time.
    Viddie, congrats on your last A.C. That's major!
    Melia, the herceptin is given by infusion, so I'll be keeping my port awhile.
    Nancy, I kept my lashes and brows through AC too but still have them after 2 taxol. I'm thinking it's the nettle leaf tea, I don't know what else it would be. My onc said my hair would start coming back during taxol too, although my legs are staying smooth. Other parts too, LOL. What I can't wait for is to get off the steroids so I can sleep well again and my middle stops thickening. I'd like to say Decadron sucks but know we all need it.
    My book is due in the mail tomorrow so I'm spending all available time on that. Cheers to everyone as always, - Skye
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  • Lynn12
    Lynn12 Member Posts: 1,008
    edited March 2007
    How's everyone's taste buds doing? Mine are going bad real fast. I used to really like tea and would enjoy about 3 cups per day but now can't even drink one cup. It tastes awful. Also, everything else is tasting pretty bland lately. I can't imagine what it will be like in May. Darn Taxotere!

    Also, I'm finding I have muscles that I never knew I had. I'm laying in bed last night and it was like a muscle war going on. Even the bottom of my feet were twitching.

    I don't think my muscles are weak or wobbly from the Taxotere but I do feel them sore as if I worked out too much lately.

    I have very little eyebrows left and eyelashes are starting to go, enough so that putting mascara on looks pretty silly.
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2007
    Ilene – how is your son?

    Shorti – my genetic test was done through a genetic counselor too – I was referred by my surgeon.

    Brenda – congrats on finishing chemo! I hope you can find a resource for the Herceptin. It’s crazy that it wouldn’t be covered.

    Viddie – congrats on finishing up today!!!!

    Joni – I love the garden turtles. I have to fix up my pond this summer. The dogs have done some damage to it over the winter. A turtle might be just the perfect finishing touch. Think I will copy your idea. It would probably make me giggle at the turtle face reminder every time I see it. On the neulasta shots – I don’t think there is any need for it if your blood work is OK. I didn’t start getting them until my white counts dropped and I got a fever and infection.

    Rebecca – that stinks that you have to ask for help with side effects. My onc and especially the onc nurse seem to take side effects as a personal challenge. My onc nurse is fond of saying that they have a drug or shot to fix anything in the se department. I’m starting to think she likes giving me shots!

    Robertin – glad you are getting energy back.

    Amera – you mentioned that you were supposed to do Herceptin – why the change?

    Lynn – I have 3 month follow up with the surgeon in a couple of weeks. I don’t mind going – I figure the more monitoring I get the better.

    I was glad to hear the news about MRIs. Even though the cancer for me was found by mammogram the MRI found an additional tumor that never showed up on the mammo. It was in a different area and wouldn’t have been found or removed if I hadn’t had the MRI.

    No port yet. I was too chicken to call about it this week. I will ask my onc tomorrow when I see him before chemo. Hopefully they can find a vein for tomorrow. I always have a ton of anxiety right before each treatment that something will happen (no vein, bad blood counts) that will postpone the tx. I’m hoping if I do have the port that my surgeon will do it. She’s done 2 surgeries for me already and she is so wonderful.

    I still have eyebrows and eyelashes – but they are very thin. I’m so sick of them ending up in my eyes. I want them to grow back. But I guess I’ll have to wait.

    I feel lucky that I haven’t had any major insurance coverage problems yet. It’s enough with the co-pays that the few things they haven’t covered. I got excited yesterday because we will be getting a tax refund this year for the first time in several years. But the fun didn’t last long. Our air conditioner needs repairs and the bill will use up most of the refund. Easy come easy go I guess.

    Tomorrow is chemo #4 for me and my birthday. Several women from my local group are coming to the infusion room with me to celebrate. I have no idea who is showing up or what they have planned. It should be fun if we don’t drive the nurses crazy. I just realized that this week I will probably be the annoying person in the infusion room!!!
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  • Amera
    Amera Member Posts: 452
    edited March 2007
    Quote:

    Amera – you mentioned that you were supposed to do Herceptin – why the change?



    The onc I saw originally didn't go through the entire path report, just the most recent. She was all set for me to do Herceptin as the re-test came back slightly positive. My current onc read through the entire thing (duh) and found out that I had actually had 3 Herceptin tests with 2/3 negative and the last one only slightly pos. So she ran it by the other bc oncs at Dana Farber and they all decided it wouldn't benefit me.

    I still cannot figure out if it's better to be positive or negative.
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  • sharon56
    sharon56 Member Posts: 220
    edited March 2007
    jan happy bithday tomorrow hope ya have a good day my lst chemo will be on my sons birthday on April 23rd . Chemo and birthdays mix too bad wine could not be provided too
    The gardening thing is looking at me i have been outside everyday this week doing a little bit of cleaning ..... my cleaning right now is all the doggy doo from the winter ... our "pup" has monsters I also have a perenial garden that needs cleaning up in the front its a little chilly up here yet to be planting we have to wait until the end of may to do that . Meanwhile I am getting an old birdhouse fixed up so I can watch the birds from my deck .... saw a robin yesterday good sign
    This weekend its getting the bikes fixed up ... maybe I will get on one soon ....
    Caya : hope your tax treatment goes well today ... for me it was better than the fec though the steroids may keep you buzzed for a bit
    As for the MRI thing .... I would have had mine caught if I had a ultasound along with my mamo , i have fibrocystic breasts and the tumour was not seen , MRI's here in Canada are only in a "few" locations right now , so even having a ultasound helps . I complained for a year about my arm being sore , my family doctor did exams , the hospital did not see it . It spread quickly in one year ? How could i tell ???? Mamo's are there and ok BUT we need more for high risk women uncluding ultasound and MRI's . I am one of those added to the stats ..... and my sister passed away from BC 13 years ago ... what more info did they need .... the fight goes on .... advocate yourself I know I will be speaking up to all my drs !
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  • jonimb
    jonimb Member Posts: 900
    edited March 2007
    Hey Jan...have a great Birthday tomorrow!! Hope you have a good infusion, and that everything stays nice for your day.

    Amera, my Onc says it's better to be HER2 negative, because the Herceptin can be hard on your heart. Although I know how you feel, as Herceptin is really making strides and so is Tykerb, and they are both for HER2 positives, which I am not.

    Shorti, I had a clean Mammo and Ultrasound 5 1/2 months before they found my 4.8 cm tumour, and I do believe the MRI would have found it.

    Melia, those darn mouth sores must be just awful, I have only had one, and got rid of it with the Club soda, but it was very painful.

    Viddie, good to see you back!! Hope you're doing well.

    Love your kitty Nancy.

    MizSissy, are you okay, haven't seen a post today. Hope your infections are all clearing up.

    All the ones having infustions this week, hope you all have as good a one as I'm having....still feeling good, only trouble is, can't sleep with the steroids. Going for a nice long walk along the irrigation canal this afternoon, then hope to have a bit of a snooze before the hubby gets home.

    I'm going to Look Good, Feel better next Tuesday, so I hope I have fun like you did Caya.

    A friend of mine sent me over a whole bagful of scarves, and some of them are just beautiful. Some are silk, so how do you keep these from sliding off your head? Velcro...stick it to my shiny pate, and then to the scarf?

    Yikers...

    Have a great day everyone....I'm going to!!!

    Pics please...joanblack@shaw.ca


    Hugs...Joni
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2007

    Joni - I haven't had much luck with keeping silk scarves on. I tie them tightly, but feel like I have to fiddle with them a lot. I save them for special occasions and when I know I'll only have to keep them on for a few hours.

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  • sharon56
    sharon56 Member Posts: 220
    edited March 2007
    Joni
    so we need more MRI machines are in Canada , wait times are too long .. what about CT scans ? I know our local hospital has one & another being installed just know mamo's only do not cut the cake for me
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  • Rebecca
    Rebecca Member Posts: 971
    edited March 2007
    Quote:

    How's everyone's taste buds doing? Mine are going bad real fast. I used to really like tea and would enjoy about 3 cups per day but now can't even drink one cup. It tastes awful. Also, everything else is tasting pretty bland lately. I can't imagine what it will be like in May. Darn Taxotere!

    Also, I'm finding I have muscles that I never knew I had. I'm laying in bed last night and it was like a muscle war going on. Even the bottom of my feet were twitching.

    I don't think my muscles are weak or wobbly from the Taxotere but I do feel them sore as if I worked out too much lately.

    I have very little eyebrows left and eyelashes are starting to go, enough so that putting mascara on looks pretty silly.



    I am with you Lynn...My tastebuds appear to be alternating between MIA and feeling like I burned my mouth. YUCK. Nothing really tastes like anything anymore...even my iced tea that I have been drinking for hydration. I found that VERY COLD water was actually pretty good and soothing. I have also been freezing fruit juice popsicles which are nice as well. They do not have much of a taste, but the cold sensation is pleasant.

    My eyebrows are an absolute disgrace I had been wearing mascara to emphasize the lashes I DO have, but gave up late last week because it was hopeless (too many bald spots). I just wear lipstick and blush now, and hope nobody notices.
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  • Amera
    Amera Member Posts: 452
    edited March 2007
    I have about 12 eyebrows left and hardly any lashes.

    I am finally getting my taste back a little. I still cannot tolerate coffee and plain water is gross. I've been drinking diet orange soda. Not healthy but it's something at least. My tongue feels burned too.

    I have found myself being not nearly as careful about germs and things during this last round. I have to keep reminding myself that I am not out of the woods. My body doesn't know that I'm done and my immune system is still vulnerable.

    My eyes are really dry too. I cannot wear my contacts and my glasses are circa 1985. I feel so pretty these days
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  • Brenda_R
    Brenda_R Member Posts: 509
    edited March 2007
    I talked to my Onc yesterday and gave him a copy of what the insurance will pay and what he's charging for the Herceptin, and he said he'd look into it and see what he could do.
    If he would waive the extra I'm getting charged, that would be great. Otherwise I'll ask him for a letter of necessity and appeal it with the insurance co.
    I don't know what else to do.
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  • Lynn12
    Lynn12 Member Posts: 1,008
    edited March 2007
    Brenda,

    It's all so confusing with the insurance companies. I'm pretty sure that most of the insurance companies don't pay what the Dr's charge, but I'm not sure that you should be charged either. When I go to my insurance plan web site, I can see the charges submitted by the Oncs office. For example, my last visit the Onc charged the insurance co. $4,735 for the appt., infusion, etc. The insurance co paid $3,483 and has me responsible for the $10 copayment. I don’t know what happens to the difference but I do know that I’m not charged for it. Perhaps the Oncs office eats the amount not paid by insurance. This has been true for all my treatment. A total of around $50,000 for everything so far including surgeries, but insurance co has paid about $35,000 as the 'allowed' amount. But somehow I'm not responsible for what isn't paid.
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  • jonimb
    jonimb Member Posts: 900
    edited March 2007
    Amera, just want to send a "thank you" note out to you. You made me realize that I too am being too lax lately about where I go, and how much I can handle. I seem to forget that when I'm feeling good, it doesn't necessarily mean that my immune system is working 100%.

    Just a nice reminder, that I should go back to being a little bit more diligent in what I'm doing. I don't want any setbacks now.

    I have found that my tastebuds vary back and forth, but water for me is just a big NO. I can't even force it down, as I just seem to gag. One thing I seem to be able to eat regardless is ice cream, so been chowing down on alot of Chocolate ripple...yummy.

    Cheers...Joni
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  • Ihopeg
    Ihopeg Member Posts: 399
    edited March 2007
    Hi everyone,
    Jan,
    My son is fine, for now. I have to go thru all kinds of precertication with my ins. just to get the appt. for his MRI and scanogram of his leg. I googled the cyst on his leg and it sounds benign, but I still think I have a black cloud hanging over me, so we will see. Thanks for asking. Happy Birthday!!
    Lynn,
    My taste buds have been bad since #1. It seems like I need salt or sugar on everything. I also have like 10 eyebrows on each. The only other place I have hair is about 10 down below. It feels really wierd. The tip of my tongue also feels like sandpaper.
    Miszissy,
    Glad you got your laptop back. I need to change my #6 TAC (last) to May 2. Yeaaa! I thought it was the 9th.
    Lynn,
    I had a checkup with the surgeon at one month, then none. That doesn't sound right. I think I will call.
    Hope everyone has a great weekend.
    ilene
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  • NOLONGERREADINGORPOSTING
    NOLONGERREADINGORPOSTING Member Posts: 778
    edited March 2007
    Hi Folks,

    Would you believe I broke my laptap the day after I got it back? I was carrying it and tea tray happily to bed to sit down and read all of your posts...tea pot started to jiggle, turned over, spilled onto bed...I had put the laptop on the bed and was trying to dry the sheet and the laptop fell off the bed, onto the floor, plunk!!!! The video doesn't work now. Actually, I can see it very faintly and I think maybe there's a way to adjust the brightness that got shook the wrong way but I haven't figured out how to get it back...

    Anyway, I've been busy trying to get a sewing project done for a runway competition. My deadline is tomorrow...so I haven't had time to read or post.. Will check in later...

    Love to all,

    Mizsissy
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  • Rebecca
    Rebecca Member Posts: 971
    edited March 2007
    OK everyone...I have a bunch of useless (until now) trivia that maybe would make the whole insurance thing a bit less confusint (not any more FAIR, however)

    Insurance companies make contracts with providers in which they agree to accept a certain amount of money as payment for specific services. It is a global contract, so when they sign they may not necesarily KNOW how much they will get paid for any specific thing, so it winds up as a guessing game, with the providers just billing high and hoping. They also agree, in these contracts NOT to bill the patient for the difference between what they BILLED and what the insurance actually PAID, hence the "insurance adjustments" that often appear on bills.

    OK, so far so good...but of course nothing is that simple, because what happens if you go to a doctor that has not signed a contract with that insurace company? Out of network benefits can vary from plan to plan even within the same insurance company. Usually, however, insurance companies will pay (eventually) for services provided out of network...but they will not just pay what the provider bills, they pay a "reasonable and customary rate" which is based on the average cost of a particular service in the geographical area in which it was provided. (whew) So when this charge does not match up with what the provider actually billed (and it rarely does) the patient is then responsible for the difference because the provider never agreed NOT to charge them!

    The whole thing is really annoying, and in fact the details can vary quite a bit, so you need to go and pull out that dusty folder that you got when you first signed on with the carrier and read it. YECK.

    As far as what is happening with Brenda, I am thinking that she may be out of network (you can correct me if I am wrong) OR there is something non-traditional about her healthplan that is allowing her provider to balance bill her in that fashion. Brenda, it is very important that you call your insurance company and find out why and if the provider can bill you that way. AND if it still turns out that they can and you can not resolve it any other way contact the company that MAKES the drug....they often have programs. It is vital that you get this drug, and it would be criminal if you do not. STAY ON IT!!!!

    I hope that this is helps!
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  • Lynn12
    Lynn12 Member Posts: 1,008
    edited March 2007
    Rebecca,

    Wow, I'm impressed! Thanks for the information! I'm exhausted just reading it! but think I understand, chemo brain and all!

    Those darn insurance companies..I hate insurance, not specifically medical, but am generally grumpy about insurance as a whole.
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  • mer1957
    mer1957 Member Posts: 534
    edited March 2007
    Here is my insurance beef! I just found out I have to go to special stores for my prosthesis and bras after my mastectomy and can't pick and chose where I go. Then in order to save the $250 inpatient deductible, I have to have my surgery late in the day and get out in 23 hours or less to avoid the cost. My surgery date got moved back today to May 1. My surgeon will be on vacation on the prior date. I guess waiting 4 more days is not so bad. I really like my surgeon and she had to move her vacation because of something that came up. I can't even go get the prosthesis or bras until after the surgery so what do I wear home from the hospital (I'm not having reconstruction yet). The camisoles with soft inserts look nice but they cost $60 and my insurance won't cover them. Enough complaining.

    Happy Birthday tom Jan

    Good luck to Viddie, Caya and tlc with your chemo and s/e. Hopefully they will not be too bad.

    I have one more taxol to go and still have my eyebrows and eyelashes so I consider myself lucky.

    My poor dh is having a rough time, problems with work, my bc and now his brother who has been on chemo for almost 2 years for Stage IV lung cancer (nonsmoker, 47 years old) is doing poorly. The cancer has gone to his liver and the doctors aren't optimistic. Sometimes our family suffers with this more than us.

    I have to have a CAT scan before my surgery to make sure nothing else is happening in my body. My liver and a very small spot and they want to recheck that. That makes me nervous but I know it's necessary.
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  • IowaCindy
    IowaCindy Member Posts: 341
    edited March 2007
    That's a very clear description of the insurance set-up, Rebecca. Thank you for putting it in words for greater understanding!

    Cindy
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  • Rebecca
    Rebecca Member Posts: 971
    edited March 2007
    Ugh Lynn I know what you mean. My insurance co has been more or less ok, EXCEPT with anything associated with my reconstruction or a prosthetic. They pay for all my medicines and testing, but lord save me if I want to have two breasts. They suddenly clam up and start quoting circular logic at me. Definately worth being grumpy about
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  • IowaCindy
    IowaCindy Member Posts: 341
    edited March 2007
    That's the pits!

    Hope your project goes smoothly and it comes out to your satisfaction.

    I have been toying with the idea of getting a sewing machine. I used to love to sew and I think that would be a good hobby for me to rediscover. That's after I get done bike riding this summer, and cleaning out the gardens and cleaning out the garage and the back room in the basement!

    Cindy
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2007

    Mary - what size do you wear? I have a post surgery camisole with the soft inserts and if it will fit you I will gladly put it in the mail to you.

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  • Rebecca
    Rebecca Member Posts: 971
    edited March 2007
    Oh...IowaCindy My pleasure to do that!

    Oh, and happy birthday Jan...I hardly think that a little good natured party will be annoying to anyone! I would be delighted to have something festive go on in the infusion room when I am there. Enjoy.
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  • Lynn12
    Lynn12 Member Posts: 1,008
    edited March 2007
    Mary,

    I just wore a large zip up sweatshirt home from the hospital. I really didn't care how I looked at that point and didn't mind being lopsided. Dont' think anyone notice anyway. My surgeon would not give me the presription for the prosthesis until about a month after my mastectomy. You really don't want to rush it because you need to be pretty much healed before attempting to wear a prothesis.

    Lynn
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  • t4t
    t4t Member Posts: 28
    edited March 2007
    Hi everyone,
    This is day 7 after the first Taxol. It has been hell week here. We thought Taxol would not be as bad as AC. WRONG! At least for Tae. It was torture. She has a low pain tolerance anyway, but that bone pain has been unbearable. Tae was using some pain narcs that put her in a stupor. Onc ordered some other stuff that was very scary. Internet research said not to use if you recently had pain narcs or nausea meds. Why did he order that stuff? Is anyone else getting blisters on their fingertips?
    Tae has also had that ringing in her ears, usually at night when she lies down. Sometimes it lasts all nite. Three more Taxol to go. We are seriously considering asking for a milder dose, even it it extends the treatments.

    Tae has the Nioxin hair treatments. She thought she should wait till chemo was over to start using Nioxin, but thanks to the info in these posts she will start right away. Maybe a little fuzz on top will take her mind off the Taxol.

    cheers,

    Terry 4 Tae.
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  • IowaCindy
    IowaCindy Member Posts: 341
    edited March 2007
    She's 24 and has been a rock through all of this, with understandable episodes of meltdown - like the rest of us.

    She told me she'd ordered something online for me. When it arrived she brought me a bottle of vitamin B17. It's an alternative treatment used for cancer. It's the same family of product as Laetrile. Anyone remember that?

    I told her I'd take it to my treatment appointment on Friday (tomorrow) and speak to the onc.

    Has anyone investigated these types of products?

    Cindy - thankful for my two daughters who've cried and laughed with me through this whole thing
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  • IowaCindy
    IowaCindy Member Posts: 341
    edited March 2007
    I'm hopeless at most computer things.

    Cindy
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  • Brenda_R
    Brenda_R Member Posts: 509
    edited March 2007
    Quote:

    OK everyone...I have a bunch of useless (until now) trivia that maybe would make the whole insurance thing a bit less confusint (not any more FAIR, however)

    Insurance companies make contracts with providers in which they agree to accept a certain amount of money as payment for specific services. It is a global contract, so when they sign they may not necesarily KNOW how much they will get paid for any specific thing, so it winds up as a guessing game, with the providers just billing high and hoping. They also agree, in these contracts NOT to bill the patient for the difference between what they BILLED and what the insurance actually PAID, hence the "insurance adjustments" that often appear on bills.

    OK, so far so good...but of course nothing is that simple, because what happens if you go to a doctor that has not signed a contract with that insurace company? Out of network benefits can vary from plan to plan even within the same insurance company. Usually, however, insurance companies will pay (eventually) for services provided out of network...but they will not just pay what the provider bills, they pay a "reasonable and customary rate" which is based on the average cost of a particular service in the geographical area in which it was provided. (whew) So when this charge does not match up with what the provider actually billed (and it rarely does) the patient is then responsible for the difference because the provider never agreed NOT to charge them!

    The whole thing is really annoying, and in fact the details can vary quite a bit, so you need to go and pull out that dusty folder that you got when you first signed on with the carrier and read it. YECK.

    As far as what is happening with Brenda, I am thinking that she may be out of network (you can correct me if I am wrong) OR there is something non-traditional about her healthplan that is allowing her provider to balance bill her in that fashion. Brenda, it is very important that you call your insurance company and find out why and if the provider can bill you that way. AND if it still turns out that they can and you can not resolve it any other way contact the company that MAKES the drug....they often have programs. It is vital that you get this drug, and it would be criminal if you do not. STAY ON IT!!!!

    I hope that this is helps!



    Rebecca, my Onc is part of my insurance co's HMO. That's why I was thrown and upset that I got charged so much for my part. Up until then everything had paid been for 100% with the exception of a 15$ co-pay for the office visit.
    I was charged $3745.50 for the Herceptin, with a $608.30 provider discount. The insurance co paid $2529.18, leaving me with a amount not covered of $608.02.
    I did call the insurance co and they said that they based what they paid on what the Herceptin would cost if the Onc ordered it through the contracted pharmacy they use for their mail order drugs.
    I called the Onc's billing spoke with them to try to determine why the Herceptin was so high, thinking it could be because it was a "loading dose". They couldn't tell me anything other than I would be responsible for the unpaid amount. I asked if they could order the Herceptin from the "contracted pharmacy" and was told no, because it would present problems with ordering it specifically for me, and they would have to store it and be responsible for it, and that the ONC WOULDN'T MAKE A DIME ON IT. I kid you not, he actually said that.
    In the back of mind, I'm thinking "they are pitting the Onc's not making any extra money, against me not being able to afford one the only 2 known drugs that will prolong my life". The other being Tykerb, which just got FDA approval, and I'm fairly sure the insurance co may not cover yet.
    He just said to talk to he Onc, and he was more sympathetic, so we will see.
    I told them there is no way I afford $608 out of pocket every 3 weeks.
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2007

    t4t - sorry to hear that tae is continuing to have such a hard time. It's just not fair. I'm glad you are such a great support for her. How are you holding up?

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