Stage IV bones, chemo treatment and epilepsy?

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Sunshineplease
Sunshineplease Member Posts: 3
edited October 2021 in Stage IV/Metastatic Breast Cancer ONLY

Hello,

excuse my english as it is my second language.


My mom has been diagnosed in 2014 with bone METS ( ribs ) and has been on Letrozole since that time. She had Xneva at the start of her treatment too but then was given something elsa that was less strong as the cancer seemed to be dormant.

This summer (August 2021) the cancer woke up. We know it is in her bones (ribs, femur, spine, hips) they are requesting more tests to know if it has spread to other organs. We don’t have the results yet. In the past month my moms pain has gotten worst and we are getting impatient for them to try another treatment. They said they want to try chemo (pills) but my mom also has epilepsy and they are struggling to find a chemo pill that would work with her epilepsy medication. For now, they have put her back on Tamoxifen (she was on Tamoxifen for about 7 years after her radiation and chemo for her initial breast cancer diagnosis) .

My mom can not sleep because she is in too much pain. The oncologist said there was now rush because the cancer wasn’t moving “that” fast, but I can see my moms in much more pain and I am quite anxious for them to find what chemo treatment can work for her.


Anyone have epilepsy and has treated stage IV breast cancer with chemo??? 🙏🙏🙏


thank you for your help!!

Vanessa

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  • Moderators
    Moderators Member Posts: 25,912
    edited October 2021

    We just moved this post from the Caring for Someone With Mets forum to the Stage IV ONLY forum in the hopes some of our most helpful members can weigh in here. Bumping for Sunshineplease.

    Can anyone weigh in?

    --The Mods

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited October 2021

    vanessa,

    I am sorry to hear about your mother. I can’t offer any advice or experience regarding epilepsy and cancer meds. My concern is your mom’s pain. Can you speak to her doctors about finding good pain relief for her while they look for a treatment that works for epilepsy patients? Take care.

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  • Sunshineplease
    Sunshineplease Member Posts: 3
    edited October 2021

    Hi!

    Well they are currently looking into changing her epilepsy meds so they can change her blood thinner meds and be able to give her the right chemo and pain meds. It is so much to take in… she had met with an oncologist about three weeks ago and he said there was no rush, the cancer isn't agressive and today she met with another oncologist (same hospital and team) and she said the cancer is now agressive (spread to liver and lungs) and theres an issue with METS in her lumbar spine they started cortisone right away and she is going back tomorrow and the day after that for radiotherapy. So far no symptoms or pain related to the Mets in her spine that the drs are so worried about , so this keeps me hopeful. Still no news from her neurologist and so still no chemo … it has now been more then a month since her cancer woke up, we now know it is more agressive and still no conclusion on her meds for the chemo.. at least the radiotherapy is starting quickly. I had even asked the pharmacist if she could take cbd and because of her blood thinners and Epilepsy meds its a no go 😢 she was allowed 1 tylenol per day thats it, now with the cortisone for the spine Mets she can’t even take that. Really hoping the radiotherapy helps with the pain from all over not just the spine.

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