How are people with liver mets doing?

BAP, that is really encouraging. Can't remember, but did you talk to them about diuretics? There is some combo of two, that cancel out some of the side effects. If you are interested, I can ask my wife.

Nicole, that is crazy about an abraxane shortage. How can that happen? Offshore production?

BAP, you are really amazing, your doctor is right! Saulius

Grannax2, So sorry about your situation. Some mistakes are more serious than others and your MO taking it to the top is important. I hope your next options turn things around quickly!

Grannax,

What a mess. Have they checked with MD Anderson about trials? I know you don't go there, and I don't know where it's located with respect to where you are, but my impression is that they have so many trials, it's a likely place for a search?

Good luck. I hope it works out for you.

hey husband ,

I was in diuretics once but they took me off I can’t remember why. But now I have an indwelling drain so I can drain whenever which is helpful !

Grannax, oh I'm so angry on your behalf. HOW could they make such a mistake?? Ugh. I'm glad your MO has a plan B and I'm glad you're feeling calmer about this. This disease throws enough curveballs that we don't need them from the medical team that's supposed to be helping us...but I guess we're all fallible and make mistakes. Still. Grrrrrr

Putting this here, even though it could go a bunch of places. Many of you know my saga from this past spring, with 44 days in the hospital, etc. I had a CT scan in June as a baseline after all of that. I had another one today (3 month scan) and the report was up an hour later. I have bone and liver mets. The bone mets were basically stable from the June scan. The liver mets, however, said this: "Marked interval improvement in hepatic metastatic disease" and then the report gave a bunch of measurements showing decrease in size of liver mets.Since my surgeries in April a week apart, I've also had evidence of pleural effusions, but those, too, seem to be decreasing.

I am so relieved by this. I feel like I've gotten a reprieve (why do we always have to feel this way?) I am currently on neratinib and xeloda, but a low dose of each.

Just wanted to let you all know.

BecJen- fantastic news!!

awesome news Bev! so happy for you

Good news BevJen

BevJen and BAP, I'm doing a happy dance for both of you!

Bev soo soooo happy for you!!!

Woohoo BevJen !!!!!!!!! So happy for you !!!!!!!

Wow. Well that was unexpected! I had my first infusion of Vinorelbine today. I had zero nausea but immediately had a bit of an odd sensation in my body, felt it a bit in my chest but particularly in my stomach and gut. By the time I got home, I had a definite stomach ache which persisted for several hours. Well, by about four hours after the infusion… BIG D. WTH?

I actually find it a bit amusing (sometimes you just have to laugh at the “crap” we have to deal with - forgive the pun). I was so focused on the typical SE of constipation (it was a huge issue for me when I was first diagnosed due to Zofran - I remain convinced that it could be used as a weapon of mass destruction) that I was considering taking proactive measures. Thank goodness I decided to wait and see…. It could have been epic. LOL.

Otherwise so far so good. Now, let’s hope it shrinks those little fiends in my liver

sadiesservant, hope the diarrhea goes away quickly & you tolerate the treatment well otherwise

Ohionana - oh frustrating when you get results before the weekend. Generally in the report look for the section labelled "impressions" or similar. The rest is just radiologist talk. Even drs just skim that and skip to the impressions part. Hope that helps you with it...