STEAM ROOM FOR ANGER

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited October 2021

    I call him DeathSantis. Mr anti science. Wonder if he will agree chemo “poison “ could help. Or if she will glow free rads.

    Timings is funny too, on puketober

  • candy-678
    candy-678 Member Posts: 3,950
    edited October 2021

    I had not heard this yet about the Florida Governor's wife. But he is anti-science about Covid. Now, he will need to rely on science. Ironic.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited October 2021
  • candy-678
    candy-678 Member Posts: 3,950
    edited October 2021

    I do not want this for her. For anybody.

  • MountainMia
    MountainMia Member Posts: 1,307
    edited October 2021

    I won't wish breast cancer on anyone. I hope she does well with her treatment.

    This morning my BS's nurse called to talk to me about my pathology (biopsy results back Friday afternoon, BENIGN.) In truth she didn't know much and I had a bunch of questions. She told me she'd check with the BS and someone would get back to me.

    So a little after that, the BS called me herself. (I am a big fan of hers anyway, even more so now!) So she took the few minutes to answer my questions about the report and the follow-up for the next few months. This isn't a proper steam room rant. :) Just thought you deserved the rest of the story, though.

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited October 2021

    Cancer is the worst all around. Do not want anyone else to suffer if they do not have to. Makes me mad when you can't get your own family to do their screenings for their own good so it is caught early too because they are afraid to get a a mamogram! It is is not that bad and cancer is sure worse!!

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited October 2021

    bcincolorado,

    Not to mention that bc doesn’t care if you’ve gotten a mammogram or not! If you do indeed have bc, not having a mammo doesn’t make it disappear

  • SeeQ
    SeeQ Member Posts: 884
    edited October 2021

    And having a mammo doesn't always find it. I think people forget that and assume de novo patients didn't do their due diligence - which truly pisses me off! (This is expressly NOT directed at anyone in this forum!)

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited October 2021

    seeq,

    Exactly! I had my suspicious mammogram 13 months after a clear mammo. When my bone met was found a few short weeks after my bmx more than a few folks questioned how diligent I had been in getting mammos. Even my own mother thought this happened because I waited 13 months between mammos.

  • SeeQ
    SeeQ Member Posts: 884
    edited October 2021

    Exbrnxgirl - My mammos , including some 3D, were always on schedule and clear. They only found the cancer, because I was diligently chasing some slightly wonky liver enzymes, that I think some would have blown off, especially being "between PCMs". By the time I had a biopsy, I was fully expecting liver cancer (based on liver u/s and MRI), not bc.

    Breast imaging center (2 weeks ahead of schedule) did u/s only after requiring a copy of the PET-CT imaging. Only then did they confirm a lump that lit up slightly on PET-CT; it was small, very low against the chest wall in the 6 o'clock position. Even on manual exam, GYN described it as "very subtle". I only successfully found it once or twice.

    Mammos help a lot of people, but they aren't the perfect tool most people think they are (as I used to believe, myself). So, I'll join the "Stage IV needs more" corner for Pinktober.


  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited October 2021

    Normal mammogram in June, Stage III cancer in September. I know it's a reasonably good screening tool, but that's all it is.

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited October 2021

    Been pondering Mrs. Desantis all afternoon. She may not want the entire world to know about her breast cancer. It is a personal thing. I sure to do not tell everyone I meet I have one boob now and had one chopped off because of cancer. The whole world now knows about this and she has a long road ahead now. I feel for her in a lot levels right now as a result. She deserves the privacy to make her own decisions about her treatment and her husband needs to not tell everyone.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited October 2021

    It’s all over the state and nation news. She was in tv or some high profile position before marriage. She will be done tx at Moffitt in Tampa.

  • nopink2019
    nopink2019 Member Posts: 329
    edited October 2021

    sbelizabeth - Thanks for your well worded stmt about "not fighting hard enough". Do peope say this to folks with glioblastomas? Sometimes, no matter how many attempts we make, treatments fail us. I saved your words as they were so concise and truthful.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited October 2021

    selizabeth, I am totally on board with your using “treatment failed" in place of “lost the battle". It puts the blame where it belongs. You're right, no one goes around saying, “poor Paul, he lost the battle against that bus."

    I'm sorry this governor's wife received a diagnosis of breast cancer. I wish her well.

    What I have a problem with, and it's nothing new, but the issue again is how “celebrity" breast cancer is covered by the media. We will not learn what kind of bc she has or the extent of the treatment she will receive. Once again the general public is left to believe bc is a one size fits all disease.

    Some members of this forum have surgery only, no chemo or rads. Some women are triple negative. Some have metastatic bc. And there are more types. The public is never given any context surrounding a celebrity's bc diagnosis, so they don't grasp the complexity of bc. That lends people to make these kinds of assumptions:

    “Well, my neighbor's brother's daughter never had chemo after she had bc 10 years ago, and she's still alive. Chemo isn't really necessary and besides, it's poison."

    “My uncle's wife had bc and even tho she had chemo and radiation and surgery, she still died of it two years later. Treatment does not work."

    “Well, as long as it's caught early, you don't die from bc anymore."

    The media dumbs bc down to make it easier for people to digest, like pureeing food for a baby to eat. Make it nice and bland so you don't know what it really is, you only know that it is.





  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited October 2021

    This place has provided me with so much knowledge on bc. I was one of those people totally oblivious, even after my younger sister was diagnosed stage IV at age 50. Fingers crossed for good/stable scans she has this week, btw. I feel like a real shit sometimes complaining here, yet reading what you all go through is primarily why I'm health anxious around imaging and appointments. As far as celebs w/bc, I'm not sure even they know what we know. Maybe they just show up and do what their team advises them to do? I'm sure most don't though. They learn about their disease. It would be something to see one of them start spewing out their stats during an interview. Unless the reporter was a patient his or herself, they too have no clue. None. Shame.

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited October 2021

    Agree. We are all different too even at the same stages in our decisions in our treatment and how our family histories affect them. We can support each though and learn from each other. Those who have not been through this really does not know how life altertering it is and how ongoing the anxiety is for anyone no matter what stage they were in.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited October 2021

    I must be an old grouch. I remember that Fran Drescher had cancer and always seeing the words battle, survivor, fighter, etc. used about her, and how she is a spokesperson and has written a book and articles. So I finally googled her. She had stage 1, grade 2 endometrial cancer, which she always refers to as uterine cancer. Some doctor on her site says they're the same. My doctor who did my hysterectomy said it's endometrial until it breaks through to the uterus. Mine had a small invasion to the uterus, but it never occurred to me to call it uterine except when people don't have a clue what "endometrial" means. Anyway, Fran had surgery (a hysterectomy) and went home. Like me, she had no other treatment. Maybe it's just me, but I just can't call myself a survivor for having an uncomplicated surgery. That hysterectomy wasn't life-threatening and the cancer was early stage. I didn't "survive" a damn thing. Can I say "experiencer" since I experienced cancer and surgery? I didn't fight anything, I didn't battle anything. I mean, good for Fran for talking about it, but I think over-expressing her experience can also scare people when she uses or accepts terms like battle, fight, survivor. There's a fine line between yay, some celebrity is sharing their experience, and boo, they're making it sound worse and more dramatic than it was.

  • molliefish
    molliefish Member Posts: 723
    edited October 2021

    my mammo never picked up my bc

  • moth
    moth Member Posts: 4,800
    edited October 2021

    Alice, I'm with you because I hate how some really over dramatize their situation. I'm also seeing a lot of drama llamas on social media making their disease sound way worse than it is.

  • Trishyla
    Trishyla Member Posts: 1,005
    edited October 2021

    The biggest one for me was the hoopla Hugh Jackman made when he had a basal cell carcinoma removed from his face. Talk about drama. He was posting about his battle with cancer and how he just wanted to survive.

    He finally backed off when thousands of people mocked him on social media for mistaking a glorified skin issue for a life threatening cancer. Wanker.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited October 2021

    My favorite cancer celeb? Suzanne Summers…NOT! She keeps saying she had whole body cancer as well as bc, which was her initial dx. I have no idea what that means but she’s made a pretty penny writing and speaking about it.

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited October 2021

    Suzanne Summers is a lunatic. pure and simple.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited October 2021

    and an opportunist!

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited October 2021

    Whole body cancer? WTF is that? Shit, maybe that's what I should call all my missing parts! 😆

  • Beesie
    Beesie Member Posts: 12,240
    edited October 2021

    My top breast cancer drama queen is Sandra Lee. She has created an industry out of her "breast cancer journey". She had DCIS, a BMX and reconstruction issues.

  • Sunshine99
    Sunshine99 Member Posts: 1,680
    edited October 2021

    I'm wanting to respond here but don't even know where to start...

    "Whole body cancer" is one I hadn't heard of before. Beesie, I had heard about Sandra Lee, but didn't know her details.

    I think what I hate the most, is that they survive or fight or struggle or whatever and minimize what others are going through. Sheesh! If someone told me to keep fighting just like Sandra Lee, Suzanne Somers or whoever did, they'd probably get an earful from me.

    I'm not discounting anyone's experience with cancer (OK, maybe I am), but drama queens really annoy me and I just want to roll my eyes.

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited October 2021

    Even though I get mad sometimes about things I am not not a drama person at all. In fact because of the medical stuff we've been through the doctors think we should be put in a rubber room sometimes because we are NOT freaking out about stuff when they think we should be.

  • December11
    December11 Member Posts: 379
    edited October 2021

    Someone I know who got bc about the same time as me documented everything on their facebook including "another step in my journey, my first haircut after chemo" Really?

  • moth
    moth Member Posts: 4,800
    edited October 2021

    oh the first haircut after chemo is big for many - I remember mine in 2018 went badly & I posted about it here. I think for many it's the first step of feeling like things are going back to normal. My cancer was having a laugh probably, given that I'd soon get mets & will probably die bald but at the time, it seemed like turning the corner, closing a chapter...

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