Calling all TNs

Options
1…11901191119311951196…1198

Comments

  • RuthATO
    RuthATO Member Posts: 8
    edited September 2021

    Hi there! Back on breastcancer.org as I've developed lymphedema but I was here many years ago. Just looked at that predictor tool and thought I'd give you a good news story:

    In Nov 99 I started my journey: 5 cm tumour, 17/20 positive lymph nodes, Grade 3, TN (actually wasn't a thing then - herceptin was just getting started). Surgery, chemo and radiation which ended on my 43rd birthday in 2000. My oncologist actually told me a couple of years ago that my risk of recurrence was very low at this time but I remember being frightened of every pain, headache, backache, etc.for many years.

    I hope you get as much help from these forums as I did!

    · Share on FacebookShare on Twitter
  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited September 2021

    Ruth, we love knowing about success stories!

    Mia thanks for the update --  and I hope all goes well.  Lebanese food is insanely good!  

    · Share on FacebookShare on Twitter
  • NorCalS
    NorCalS Member Posts: 288
    edited September 2021

    Ruthato,

    Thanks for letting us know how you’re doing. It really does help to read about success stories.


    · Share on FacebookShare on Twitter
  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited September 2021

    Thinking of you, Mia.  

    · Share on FacebookShare on Twitter
  • MountainMia
    MountainMia Member Posts: 1,307
    edited September 2021

    Thanks much. No news yet. I hate waiting!

    · Share on FacebookShare on Twitter
  • NorCalS
    NorCalS Member Posts: 288
    edited September 2021

    MountainMia,

    I have been worrying about you all day. For some reason I thought you got results today - I’m such an idiot. 🤦🏻 Waiting is very hard. I hope it all turns out to be nothing

    · Share on FacebookShare on Twitter
  • MountainMia
    MountainMia Member Posts: 1,307
    edited September 2021

    NorCal, thanks for thinking of me. I'm doing okay but just would rather know. Either way!

    · Share on FacebookShare on Twitter
  • serendipity09
    serendipity09 Member Posts: 732
    edited September 2021

    Mia - been thinking about you. Hoping you get your results soon and that they came back in your favor.

    · Share on FacebookShare on Twitter
  • Kayce234
    Kayce234 Member Posts: 249
    edited September 2021

    so how much does stress come into play with TNC? My mother moved in with us 10 yrs ago after my dad passed. She has been an alcoholic/addict my entire life...never really acknowledged. She is now 85 and has been impossible the last few years. We ended up locking up the alcohol and making her ask for a drink when she wants it...this happened after she ended up in er from drinking the night before my oldest was having a big surgery. Im at the point where I'm ready to sell my house and put her in an apartment or assisted living. The stress is so much

    · Share on FacebookShare on Twitter
  • MountainMia
    MountainMia Member Posts: 1,307
    edited September 2021

    Stress isn't good, and your situation sounds very difficult. You don't have to sell your house to move her into assisted living (unless that's needed so you can afford it.) I'm really sorry you're dealing with this.

    · Share on FacebookShare on Twitter
  • NorCalS
    NorCalS Member Posts: 288
    edited September 2021

    Kayce234,

    Stress really can impact your health. I don’t know if there is a direct correlation between stress and cancer, but I do think stress can result in lack of sleep, poor eating habits, etc. which may diminish your health. It may sound horrible to some, but I think right now you have to think about yourself first. Are there others in your family that can deal with your mother while you take care of yourself?

    · Share on FacebookShare on Twitter
  • Kayce234
    Kayce234 Member Posts: 249
    edited September 2021

    Thanks Mia and NorCal.

    Unfortunately we would have to sell the house because we sold ours and hers to buy this and can't afford assisted living and this house. Sadly none of my siblings have anything to do with her so they won't help. I just need to focus on my health and have to find a solution...

    · Share on FacebookShare on Twitter
  • MountainMia
    MountainMia Member Posts: 1,307
    edited September 2021

    If there are any elder services in your community, they may be able to help guide you about the options that will be good for her and for yourself at the same time.

    · Share on FacebookShare on Twitter
  • oddboood
    oddboood Member Posts: 32
    edited September 2021

    Hey everyone, I just posted this on the nascent "Weekly Carbo-Taxol plus Keytruda" thread, but thought folks here might be interested as well. I had my fourth infusion yesterday, and saw my PA as well. After just three weekly infusions of Carbo-Taxol (and one of Keytruda), my formerly 2cm hard-as-a-rock, easily palpable tumor can no longer be felt - by me or the PA. Yay!

    The other god news is that side effects have been minimal - nausea controlled easily by Compazine and a few minor mouth sores that don't really hurt and seem to be controlled with a non-alcoholic mouth wash. I had some fatigue in the first two weeks, but the last two weeks my energy has been great. I do try to exercise daily, and that may be helping as well, but still - I was expecting to have a much tougher time of it. I'm going off the steroids and the Benadryl since I've had no signs of allergic reaction to the Taxol. We'll see if that induces a dip in energy, but since I only take three dexamethezone once per week on chemo days, I don't anticipate a huge change. Per my chemo nurse, the weekly regimen can be much easier to tolerate - even though you don't get the rest time between infusions, the lower dosage seems to have a mild impact in comparison to the traditional 3 week regimen. Also, no hair loss yet, and blood work looks very good all around.

    Here's hoping others on this new regimen have a similar experience - at least in the first weeks. I know there's still five months and 20 infusions to go, and I'm prepared for a rough time as treatment progresses - especially after the switch to AC at the 3-month mark. Still, thought this might be a welcome update for others who may be beginning this regimen.

    Love to all,

    Aleta

    · Share on FacebookShare on Twitter
  • MountainMia
    MountainMia Member Posts: 1,307
    edited September 2021

    Wow, Aleta, sounds like you're doing great. Thanks so much for describing how it's going. That takes a lot of mystery out of it. I hope you continue to have a very manageable time of it.

    Thanks for the update, and wishing you many blessings!

    · Share on FacebookShare on Twitter
  • NorCalS
    NorCalS Member Posts: 288
    edited September 2021

    Oddboood,

    Thanks so much for the update. It’s good to hear that the treatment is working and that the side effects are manageable. I’m also glad that you are staying active. Hugs

    · Share on FacebookShare on Twitter
  • Kayce234
    Kayce234 Member Posts: 249
    edited October 2021

    mountainMia did I miss any updates?? Have you heard anything ♥ ❤

    · Share on FacebookShare on Twitter
  • MountainMia
    MountainMia Member Posts: 1,307
    edited October 2021

    Thanks for asking. No, no news yet. I even called this morning, though the instructions say not to call until Monday if I haven't heard. UGH.

    Coincidentally, a friend of mine just posted this in facebook:

    'I was just reminded that the Spanish verb that means "to wait" (esperar) is also the Spanish verb that means "to hope." That's just a bit too on-the-nose, Spain.'


    Yep, that.

    · Share on FacebookShare on Twitter
  • HopeHeal
    HopeHeal Member Posts: 204
    edited October 2021

    MountainMia you are in my thoughts and I am truly praying for you that it's nothing.

    · Share on FacebookShare on Twitter
  • MountainMia
    MountainMia Member Posts: 1,307
    edited October 2021

    I JUST got it back. Benign! Weird, but benign. It says

    "Benign breast tissue with fibrosis and foreign body giant cell reaction."

    Fibrosis is scar tissue, which makes sense because it was in my lumpectomy scar. Foreign body giant cell reaction might have to do with the surgical clip, which got sucked out with the biopsy. I dunno. Will wait for a phone call from the radiologist to explain this.

    Anyway, benign. Very good news and happy way to end the week. Thanks to all for sticking with me this week.

    · Share on FacebookShare on Twitter
  • Kayce234
    Kayce234 Member Posts: 249
    edited October 2021

    MountainMia - Amazing, awesome, fantastic!!! So happy for you!!

    · Share on FacebookShare on Twitter
  • Poppy_90
    Poppy_90 Member Posts: 105
    edited October 2021

    So happy to see this, Mia! Hoping you can relax and enjoy the weekend.

    · Share on FacebookShare on Twitter
  • ScotBird
    ScotBird Member Posts: 650
    edited October 2021

    Brilliant news for the weekend Mia, so happy for you. Many of us, and perhaps most of us, have such worries and it’s so great when it turns out to be nothing to worry for. Phew! I’m over 5 years from finishing treatment and have NED but still worry about every tiny thing. Anxiety defintely seems to reduce a little with every year that passes thoug.

    I can’t shake the feeling that cancer will get me in the end - just hope that it’s many years away yet.

    · Share on FacebookShare on Twitter
  • NorCalS
    NorCalS Member Posts: 288
    edited October 2021

    Mountainmia,

    Thank goodness it is benign. Enjoy your weekend.

    Scotbird,

    Great to see you checking in. I love to see the 5+ year club come back and let us know that you guys are doing well

    · Share on FacebookShare on Twitter
  • Trishyla
    Trishyla Member Posts: 1,005
    edited October 2021

    Yay, MountainMia! Here's to weird findings that aren't cancer.

    · Share on FacebookShare on Twitter
  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited October 2021

    Yay for news on Friday-- and Hip Hip Hooray for GOOD news!

    · Share on FacebookShare on Twitter
  • serendipity09
    serendipity09 Member Posts: 732
    edited October 2021

    Mia - that's awesome!!

    · Share on FacebookShare on Twitter
  • Martaj
    Martaj Member Posts: 325
    edited October 2021

    So happy for you!

    · Share on FacebookShare on Twitter
  • HopeHeal
    HopeHeal Member Posts: 204
    edited October 2021

    Yay Mia!

    · Share on FacebookShare on Twitter
  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited October 2021

    YAYYYYY Mia!!

    · Share on FacebookShare on Twitter

Categories