Severe Reaction to Aromatase Inhibitors

I was diagnosed 4/30/21 with Invasive Lobular Carcinoma, I am not BRCA 1 or 2 or any family there of. However, I was advised high risk because I come from undefined family of breast cancer survivors. Great Aunt had first breast at 40 then second breast 50 and died with lung cancer at 80. My mothers side of family. She got cancer at 67 died from heart attack 68. Her sister older got at 67 one breast and 74 second breast. Died bone cancer 90/ and alzheimers. Sister got at 47 and has been clean for 20 years had both breast insitu diagnosed in nipples. My breast cancer was seen april 2019 as undefined cyst by radiologist who did 3-D mammogram april and december along with ultrasounds. Then got MRI done june of 2019 and still they said nope not cancer. I had pain in fall of that year in right breast and ob gyn said all she felt was calcified milk duct. I saw Breast cancer surgeon who said it was so small he wasn't worried in July of 2019.

Pandemic 2020 I got into see American Radiology for third mammogram in year and yeah its finally diagnosed with core biopsy that no one would do for me in 2019. but not in the lobular area but in-situ they say. MRI reveals nope its spread....I had 8/11/20 bilateral mastectomy cancer only in right breast but opted for both to be removed, thankful not in other breast. Axillary Nodes 17 removed after first 5 had cancer but next 12 did not. Vascular involvement. Did AC to T chemo for 16 infusions over 4.5 months. Then two months off while PT to move shoulder muscles, and orthopedic surgeon says not frozen its necessary to have shoulder replacement, one day...somehow radiologist manages to still get my radiation done under arm and right breast for 5 weeks 5 x a week. Now anastrozole is rx advised to take, extreme reaction as time goes on after 5 months blisters, hives, rashes, headaches, blood blisters, orthopedic pain to the extreme, stiffness, bone pain, and clicking in joints, felt like 90 years old. Oncologist has taken me off and will see her end of October. I am considering going off permanently rather than trying another type.

Online calculator helps predict risk of hormone receptor positive breast cancer returning elsewhere in body says if I survive 5 years I get two more possibly before reoccurence.

I am ER+, Progesterine +, HER2 negative. CTS 5 put in tumor size 4 since they round up from 3.5 tumor grade 2, 69 age at onset of discovery, nodes 5 involved. CTS5 score 3.57 5-10 year risk 7.6% CTS5 risk group intermediate.

Predict Breast Cancer NHS says five years no difference in survival without hormone therapy. Only at 10 year mark does it go up 2% if I have done 3rd gen chemotherapy its 76% survival and 78% if add hormone therapy...

Not sure after my extreme reaction its worth it. If I only am predicted to have maybe 7 more years to live, why torture myself?