Life does not end with a stage IV diagnosis (really!)

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  • sunnidays
    sunnidays Member Posts: 124
    edited September 2021

    Hi exbrnxgrl, I know it's frustrating not knowing as you say all you can do is wait and get in touch with them.

    I am off to a spa hotel for one night my two girls got it for me, spa treatments dont do anything for me but I will use the sauna and jacuzzies, they are having a mud wrap treatment I can't imagine how anyone would think being wrapped in warm mud is fun.

    It will be nice to spend time with them, girl power road trip we have a music playlist ready it will be fun.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited September 2021

    sunnidays, I’d love to try a mud wrap treatment just for the experience! I am totally on board with the sauna and jacuzzi part tho, too.

    Exbrnxgrl, as good as your medical care group has always been, I think it’s possible a delay in results or notification could be caused by a random issue such as technical problem or short staff. Definitely call if you haven’t heard from them.


  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited September 2021

    Thank you all for the good wishes and thoughts. I couldn't wait until morning and messaged my doctor last night. Happy to find a response this morning…benign! Big sigh of relief. I guess the left side of my thyroid just likes to form nodules .

    Susan, both my younger daughter and my oldest granddaughter were born at Kaiser SF. All of my cancer care has been delivered by Kaiser Santa Clara. I know some people don't like being “restricted “ to using only Kaiser doctors, facilities, etc. But I have always been very pleased and the fact that communication between practitioners is seamless and there is no fighting for insurance approvals makes dealing with bc much easier. Just switched to Kaiser Medicare as I turned 65.

  • Chicagoan
    Chicagoan Member Posts: 728
    edited September 2021

    Phew! Relieved it is benign.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2021

    Exbrnxgrl, great news! What a relief. Love to hear the word benign.

  • sunnidays
    sunnidays Member Posts: 124
    edited September 2021

    Exbrnxgrl so happy for you.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited September 2021

    WOOOOHOOOO 💃💃

  • BlueGirlRedState
    BlueGirlRedState Member Posts: 1,031
    edited September 2021

    Benign - always good to hear.

  • star2017
    star2017 Member Posts: 827
    edited September 2021
  • Iwrite
    Iwrite Member Posts: 870
    edited September 2021

    Great news Exbrnxgrl!

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited September 2021

    Thank you all so much!

  • illimae
    illimae Member Posts: 5,710
    edited September 2021

    Congrats exbrnxgrl 🎉.

  • SeeQ
    SeeQ Member Posts: 884
    edited September 2021

    Great news, exbrnxgirl!

  • sunnidays
    sunnidays Member Posts: 124
    edited September 2021

    I have seen fights to New York in February very very cheap, I know it's February so cold snowy, and slushy but on the other hand, it's New York cocktails in some rooftop bar overlooking the city listing to a trio playing some smooth Jazz. Hotel prices are good too. I know my husband would be nervous with covid though.

    hope everyone is well.

  • beth1965
    beth1965 Member Posts: 455
    edited October 2021

    exbrngrl glad you got good news

    I recently had odd thing happen with my thyroid they were looking in on something else with a scan and happened across what they told me was a 1.6 cm mass of some sort

    So then they sent me ultrasound and phoned me and told me my 5 masses should be fine check again in a year

    I was like are you sure that was my results lol they said yes thought it a bit odd it went from one big mass to 5 smaller masses on each side. But I guess I will just roll with it for now and hope everything is correct info

    Glad yours went well

  • Elderberry
    Elderberry Member Posts: 993
    edited October 2021

    exbrnxgrl: coming in late - as usual. Yay that the thyroid is benign. Everything "wrong" is always scary these days. Happy for you.

    beth: fingers crossed for you

    All you musical ladies. My DH plays a lot of different instruments. Every Sunday pre-pandemic he would get together with another friend at our home for ukulele playing (and beer) followed by dinner, wine, talking. Along came the pandemic. They tried playing together by Skpe but found it unsatisfying. Now we are all fully vaccinated and still have a small social bubble they are back together again. Years ago he bought a "D" strumstick on a whim but hardly touched it. I will cut a longer story short but somehow over dinner they decided I should take up the strumstick and play with them. It is a stringed instrument for the musically challenged. That would be me! Go Google Bob McNalley strumstick or other related sites. Talented people do wonders with it. Unlike a beginner on violin playing "Twinkle, Twinkle Little Star" - the strumstick doesn't make dogs howl. I am enjoying it and am hoping for "passable" playing.

    These are three of seven peg doll witches I made a few years back. Most of them were given away to friends. I kept the one in the centre.


    image

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited October 2021

    Elderberry, the peg doll witches are adorable.

    The strumstick story is fascinating! I never heard of them, and now I am intrigued. I checked out the Bob McNallay site and will have to add strumstick to my list of instruments to buy and have fun with!!!!

    I'm having fun with my line dance classes. In addition to the once-weekly daytime one, I'm going to a nightly class that meets for two hours once a week. It's one of the adult education courses offered at the vocational school and only lasts five weeks. I will truly miss it when it's over. The teacher is excellent, great instruction and she makes it fun. It's very relaxed but quite a workout. I haven't lost ten pounds but it feels like I should have after doing those dances for two hours, hahaha!

    There are other adult classes I hope to try at the vocational school. They offer a sign language class. I have always found it to be a beautiful language and it's another thing I wish I'd begun to learn a long time ago. I hesitated taking it this fall due to coronavirus concerns, I want to see how that pans out, but hopefully I can sign up next time. The sign language experts are much in the news these days with so many state governors having an interpreter alongside them as they give routine updates on the pandemic. I crack up at some of the interpreters who can be quite dramatic in their presentation. It's as if they are vying for an Academy Award!


  • Sunshine99
    Sunshine99 Member Posts: 1,680
    edited October 2021

    Elderberry, I wonder if Amazon or Google is getting a lot of searches on "Strumsticks" after your post. haha. I'm going to go see what they are.

    Cheers,

    Carol

  • Elderberry
    Elderberry Member Posts: 993
    edited October 2021

    to those interested in the Strumstick: Youtube has lots of great players. Lew Dite is my inspiration.

    Divine: if you already play stringed instruments you will have a blast right away. It is tuned to Diatonic scale, D-A-D. If you like Mountain Music is is perfect. It is essentially a dulcimer

    Sunshine: the ASL interpreter for Dr Bonnie Henry could take his stuff on the road. I end up watching him closely and only listening to Dr. Bonnie. Wild gestures and facial expressions. He should get the award

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited October 2021

    Elderberry, I have no experience with any instrument! But the strumstick looks like a good introduction to a string instrument.


  • Elderberry
    Elderberry Member Posts: 993
    edited October 2021

    Divine: It is easy. Three strings and just your index for the frets to start. The claim with the strumstick is there are "no wrong notes" It sounds pretty even if you are just going up and down the neck, plunking.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited October 2021

    Elderberry, on a similar note (no pun intended), playing any chords on the harmonica generally always has a good sound even when you’re not playing the right chords. The name “harmonica” means just that, it always lends itself to sounding harmonious.

    I’m currently working on single notes which is apparently more challenging but I find it fun. This winter I’ll work on chords.

    Here’s another bit of trivia: the harmonica is called by various names including harp, French harp and mouth organ. My favorite is “tin sandwich.”



  • mryktn
    mryktn Member Posts: 1
    edited October 2021

    Back 20 +- years ago I was (Triple Negative stage 3B bc). About 2 years ago diagnosed with multiple primary bc tumors . I don't feel good at all. Cat scan shows I may have have bc matastisis to lung.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited October 2021

    mryktn,

    I am so sorry to hear that you might have lung mets. Breast cancer can be sneaky that way, even after many years. This thread is not the best place to address your concerns as we mostly chat about the “normal" stuff we do . Have you seen these threads?

    https://community.breastcancer.org/forum/8/topics/780588?page=70#idx_2098


  • sunnidays
    sunnidays Member Posts: 124
    edited October 2021

    To give everyone a giggle. The oncology day center is always full they have taken away some of the chairs in the waiting area for social distancing reasons.

    There was an older lady standing up so I though I should offer her my seat then realised she is probably only a few years older than me and might be insulted if I offered her a seat, luckley when I was thinking this over a man stood up and offered her a seat.

  • Anotherone
    Anotherone Member Posts: 633
    edited October 2021

    It does not necessarily end indeed;

    My diagnosis was widespread pulmonary and thoracic metastases 2 years ago and since then I have lived a normal life - working, bringing up my daughter (was not even 15 when diagnosed , almost 17 now - could fend for herself if I was to die now), partaking in sports , dating - started a new relationship a year ago, reading books , having usual trials and tribulations of any human being.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited October 2021

    sunnidays,

    I can relate! I am having a hard time remembering that when I think of senior citizens, I’m one of them.

    Anotherone,

    It’s amazing isn’t it? I realize that not everyone is in the same position but despite mbc normal life goes on all around us and from the mundane to the magnificent it’s nice to be a part of it.

  • Sunshine99
    Sunshine99 Member Posts: 1,680
    edited October 2021

    I thought I replied, but I don't see it. My apologies if it shows up twice.

    Sunnidays, I get it. When I look at my chart and see "63 year old woman", I think, "63??? ME??? You must be talking about someone else!"

    Exbrnxgrl, ain't it the truth? We go from thinking we need to go pick out our coffin to thinking "Hey, I'm still here. Guess I don't have an expiration date on my forehead after all."

    BTW, I don't remember if I mentioned it, but I lived in the Bronx for a year when I was in 2nd grade. Went to PS 24. I still remember our address: 3001 Henry Hudson Parkway. Haha! I may not remember where I put my phone, but I still remember that old address. I even went onto Google Earth and looked for it. I found it and it looks just as I remember it.

    Carol

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited October 2021

    Well, I must be old because I’m a grandma. That’s what my oldest grandchild told me! On another note and as part of the “normal” life. My youngest grandchild fell at pre-school today, did a face plant and got a gash on her forehead that will require stitches. Here she is waiting for the numbing to take effect while enjoying her lunch. What a little trooper 😘!

    image

  • star2017
    star2017 Member Posts: 827
    edited October 2021

    So sweet! Hope she feels better soon.

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