How has the Pandemic affected you as a cancer patient/survivor

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2021

    No update on the man who assaulted the nurse.

    Cowgirl13 - I'm so sorry for the loss of your friend.

    Simone - So far it's only me who can't name call. Subtle jabs? Guilty. It happens when people I identify with get dismissed. If I were not subtle, I'd be banned. I admit that I'm barely civilized. I read the article you linked. That doctor needs to speak to an immunologist where he works. He's spreading misinformation. For one thing, those with prior COVID infection need to have at least one vaccine dose to be fully protected. Congratulations. You have hybrid immunity that's found to result in a stronger immune response than disease-generated or vaccine-generated immunity. I linked an article about it earlier in this thread.

    What saddens me? The preventable deaths and long-term effects especially in children all around the world. They are our future.

    Here's an interesting article on a family getting infected:

    https://www.newyorker.com/news/annals-of-inquiry/m...


  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2021

    About the name calling, I have yet to see anything as bad as the names directed at me when I was young simply for looking different. I've been hearing them in the news again because of the virus. Racists are horrible.

  • SimoneRC
    SimoneRC Member Posts: 419
    edited September 2021

    Hey Serenity,

    Sorry you did not find the article at all interesting. I have read in other articles that lengthening the time between injections (for the Pfizer and Moderna) improves the immune response. I have read in other articles that a good surgical mask is far better than cloth. And a well fitting N95 is better yet. I think it is encouraging that people with hybrid immunity have a higher degree of protection. There are a lot of people in society that have that. I feel comforted for society knowing there are so many people walking around with hybrid immunity. These all seem like helpful observations.
    And obviously, I agree with you that there is no room for racists, or bigots, in our society.

    Seems like this thread is turning into a small number of people who only want to name call and disparage anyone who is not exactly like them in every way they think.That was my point. Isn’t there a name for that?


  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2021

    All those other points are good and available from other sources, but you said you hate misinformation. I just pointed one out.

    There are still people here who disagree with each other as the last few pages have shown.

    See what you did at the end of your post? Subtle. It's hard to avoid, isn't it?

  • SimoneRC
    SimoneRC Member Posts: 419
    edited September 2021

    The article clearly states that all of our efforts should be focused on getting vaccines into the unvaccinated. I am not sure what part of the article you found to be misinformation. I like a respectful exchange of ideas and debate. Happy to discuss.

    And no, I don’t think I did anything amiss that pointing out that a few in this group thread are being bullies. Calling out inappropriate behavior is quite different from committing the inappropriate behavior.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2021

    Effort should be put to getting people adequately vaccinated. For people with prior COVID infection, that requires 1 vaccine dose. For elderly and immunocompromised, 3 vaccine doses. A doctor saying disease-generated immunity is sufficient to be exempt from a vaccine mandate is misinformation.

    I was calling out inappropriate behavior when I committed my inappropriate behavior.

  • wrenn
    wrenn Member Posts: 2,707
    edited September 2021

    This claim seems disrespectful of all of the posters on the thread.

    "Seems like this thread is turning into a small number of people who only want to name call and disparage anyone who is not exactly like them in every way they think."

    Speaking of "all sides". Nazis are deplorable. Covid deniers or anti vaxxers are deplorable. There is no getting around it. They deserve to be called out for endangering an entire species with their behaviour.

    The doctor in the article is making false claims and this misinformation needs to be called out.

    Peace

  • wrenn
    wrenn Member Posts: 2,707
    edited September 2021

    The pandemic affected me last night when I fell and couldn't get up. I couldn't call for help because paramedics are busy with covid. I was on the floor for quite a while but managed to shuffle my bum across the room and pull myself up with a rail and my walker. I have some big bruises and sore arm (that I am holding off having checked) but again was wishing that the unvaccinated who can get the shot would get the damn shot. Enough already.

  • Chowdog
    Chowdog Member Posts: 236
    edited September 2021

    Wernn, hope you are okay.

    Was this coz I used “we” in my comment? Okay, maybe I can rephrase this, I don’t see anybody calling names of the ppl on the board or the thread. I see ppl calling out misinformation and unacceptable behavior from unvaccinated (typically from articles in news media).

    I will avoid using “we” going forward.


  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2021

    wrenn - Hope you heal soon.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited September 2021

    Here's the definition of a bully: "a person who habitually seeks to harm or intimidate those whom they perceive as vulnerable."

    A strongly worded opinion, even one that includes name-calling, does not a bully make. I'm of the opinion that the disparaging labels we hear thrown around in social media (covidiots, sheep) are immature, deliberately insulting, and contribute nothing in an adult conversation. But bullying is a word that's become a catch-all for "I don't like what you said."

    If I don't like what you said in this thread, as has been wonderfully demonstrated here, I'm welcome to write a rebuttal and defend my own position.

  • wrenn
    wrenn Member Posts: 2,707
    edited September 2021

    Thanks guys. I am sore but fine. I am only 74 but the neuropathy in my feet, legs and hands from taxotere stops me from always being aware of where my feet are and I don't think I was grasping my walker tight enough. I didn't see it coming but just went down. I am fat so well protected and didn't break anything.

    Now that I finally got up on my own I am glad I didn't call paramedics for help but pre covid I wouldn't have been on the floor as long because paramedics would have been available to help.

    I have an apple watch and it was asking me if I was ok. If I hadn't clicked that I was ok it would have called my daughter and then if she wasn't answering they would call paramedics. So in the end Covid affected how I felt about it all and chemo affected my overall condition.

    Didn't mean to rant here about it. I am good. xo

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2021

    Glad nothing broke, but bruises still hurt. Is there a device to save me from being a klutz? I've always been a klutz. Just this week I jammed my fingers in the kitchen drawer and rammed my foot into a wooden bench. Can't even blame the pandemic or cancer.

  • SimoneRC
    SimoneRC Member Posts: 419
    edited September 2021

    I chose to get vaccinated as soon as I qualified. As I stated before. However, there really is not good data yet, peer reviewed and published, on people who have had prior Covid. And what additional vaccine means to this group for severe disease. As with the general population, the pool of Covid survivors include people with varying levels of immune response. Some human beings just do not mount sufficient immune response. Within the fully vaccinated population, there will be breakthrough cases, just as in the population who previously had Covid. That is how vaccines work. The efficacy rate of vaccines is certainly not 100%. How do we predict who the outliers are, aside from people who are obviously immunocompromised? I would be fascinated to see the percent of severe disease in previously infected patients and in fully vaccinated patients, and see how they compare. So to me, the big question is, for all people who get reinfected (with significant disease, more than asymptotic or cold) or significant breakthrough infection post full vaccine, how can we help prevent that from happening? I would think that if significant reinfection was happening with any degree of statistical significance that we would really be hearing about that. Still, I personally believe better safe than sorry. Every reputable study I have seen published show that well over 90+% of people hospitalized and/passing from Covid were unvaccinated and without having had the virus. I have not seen the peer reviewed studies/information that say that all people who had Covid need 1 vaccination. I do know that people who have had Covid cannot get a vaccine for at least 90 days. Again, I believe in vaccines and I believe in being safe and respectful of others. I know I would not use a cloth mask anymore. I am interested to see if the CDC/FDA/pharma companies adjust the dosing schedule to help improve efficacy. And I hope we see continued improvement in the numbers of people who get the vaccine (especially if they have not had Covid). Vaccines have been proven to be pretty darn safe for most and pretty darn effective for most.

    I have been reading the Friday night updates from Dr. Mike Silverman on Facebook throughout the pandemic. He is the head of the ER at Virginia Hospital Center. I find his posts to be very informative from a frontline doctor.

    The pandemic is bad enough. It would be nice to see more people focusing more on all we have in common, and be more kind to each other. On the greater BCO Board, I have observed so much kindness and support for each other.

  • wrenn
    wrenn Member Posts: 2,707
    edited September 2021

    I don't find facebook that reliable in general so I avoid using it.I don't think it is respectful to slam an entire thread. Avoiding it would be kinder in my view.

  • moth
    moth Member Posts: 4,800
    edited September 2021

    wrenn sorry to hear about your fall. I'm glad you weren't badly hurt.

    I fell on Sunday and I broke my arm. only lucky thing was that the hospital ER was eerily quiet at that time & I was in and out in just a few hours with a cast. All the details are in my blog so I won't repeat them here ..

  • SimoneRC
    SimoneRC Member Posts: 419
    edited September 2021

    Idiots, CovIdiots, Maskholes, Okay Boomer.... “Angry, passionate, sad are all acceptable, disrespectful is not.” Am I missing something?

  • wrenn
    wrenn Member Posts: 2,707
    edited September 2021

    Oh Moth, I am so sorry. Yikes. I am so relieved for you that emerg wasn't busy but damn that had to hurt. It is good to hear you so upbeat. You really are a trouper.

    Off to read blog. :-)

    Take care.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2021

    Simone - "Bullies"

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2021

    For peer-reviewed studies on vaccination after infection, please see references in this article in Science Magazine.


    https://www.science.org/doi/full/10.1126/science.abj2258

    image

    I have never had a FB account. I see he has a YT channel, but I don't use YT for news, mainly music and how-to stuff.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2021

    moth - Sorry to read you broke your arm. Glad it didn't take too long to get the cast. Hope it heals well.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited September 2021

    All the best to the bruised, battered and broken boned! I am a class A klutz and though I haven’t broken anything, I am definitely in the bruised category. I am currently sporting a very ugly colorful bruise on my neck from a thyroid biopsy, 4 samples taken. No due to my clumsiness but another addition to my multicolored bruise collection.

    Simone,

    I know that the current situation fills many with frustration and even anger which sometimes makes us say things born of that frustration, particularly using broad generalizations. The last year and a half has made everyone tense and hasn’t always brought out our best. I have been practicing calming breathing techniques a lot!

  • Trishyla
    Trishyla Member Posts: 1,005
    edited September 2021

    I'll reply directly to you, SimoneRC. I also normally deplore shaming and name calling. But, and there is a but, in my view anyone who initiates a confrontation after being asked to wear a mask is a maskhole. Anyone who bullies someone else for wearing their mask is a maskhole. Anyone who tries to legislate against mask wearing is a maskhole. These are, as wrenn said, truly deplorable people who revel in being ignorant, rude and confrontational. I have no desire to placate these people.

    In the same vein, anyone who tries to convince others not to get a vaccine, whether due to misinformation, willful ignorance, superstition or running some sort of money making scheme, is a covidiot. Again, nearly two years on I have lost the desire to molly coddle morons. I'm done.

    I do appreciate your input, SimoneRC, and I hope you will continue to participate in the thread. Like you, I don't want it to become strictly an echo chamber.

    Be well.

    Trish


  • Trishyla
    Trishyla Member Posts: 1,005
    edited September 2021

    So sorry to hear about your fall, wrenn. I would imagine it's incredibly scary to have that happen when you live alone. Just remember that sprains and strains aren't always immediately apparent, especially when you have loss of feeling from neuropathy. You may want to get checked out, just as a precaution

    BTW, I am so stealing your line "I'm not fat, I'm well protected". Perfect.

    Trish

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2021

    On Tuesday I took the train to and from the hospital for a dermatology appointment. I haven't been around so many people in such close proximity since March 2020. No one gave me a hard time about my masks. There were 2 men on the train who weren't wearing any, but I was there with my younger daughter. She flew past them to put distance between us. She might have done that to keep me from making a scene. 😂 But they were also talking in the Quiet car! 🤫

    Everyone else except that one hospital employee wore masks when appropriate.

    I've decided on a response if anyone questions my mask wearing: "I have cancer, and it's contagious."

  • wrenn
    wrenn Member Posts: 2,707
    edited September 2021

    Trishyla. I fell down the stairs when I wa pregnant and phoned my husband. His response was "good thing you are well padded" I slammed the phone down on him (miss that feature of phones) and called my doctor. . He replied "Well you have a lot of padding. Not to worry"

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2021

    Men! 🤬

    I slipped walking down an icy driveway. Landed on my back with my backpack. As he helped me up, he laughed saying I looked like a turtle.

  • wrenn
    wrenn Member Posts: 2,707
    edited September 2021

    I really am fine. I read Moth's blog and am feeling so lucky compared to what she went through.

    Moth, maybe you need to put on a hundred pounds. Really though that had to be so scary and so painful. I'm glad they hit you up with some good drugs and that it heals quickly in spite of chemo diminishing healing. I am so sorry you had this pile on with everything else you are dealing with. I love your sense of humour (blog). Take care.

  • SimoneRC
    SimoneRC Member Posts: 419
    edited September 2021

    Trishyla,

    Ignorant, rude, confrontational are quite different than name calling. Just my 2 cents. Who gets to decide what name calling crosses the line? In my humble opinion, name calling is just bad and this thread specifically asked that participants not be disrespectful. And, I agree with many of the posters content. It is just the language and ganging up on that I find inappropriate.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2021

    So you've decided you're the decider?

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