Looking for Her2 Positive survivor stories

No, the DCIS had invaded, essentially, the whole breast. This was based on the initial biopsy and MRI.

Upon surgery, they found invasive cancer, but it was only .7 cm. DCIS often turns into HER2+. Surgeon was not surprised.

I am 4 1/2 years out from initial diagnosis (DCIS with invasive) and treatment . Recently diagnosed with DCIS again in the same breast. Had a single mastectomy. Final diagnosis was DCIS only that surgery cured. Although the cancer did return it was caught early and I hope that is encouraging to others. I am very grateful to not have to go through chemo and radiation this time around.

kimm - congrats! That is awesome!

I am a 7 year survivor! Here is my story..

June 19th 2014 I was DX with a 1.7cm Triple positive breast CA.

I chose a bilateral MX and requested to keep my nipples, despite them being breast tissue. I chose this because I refuse to do radiation because it was on my L side directly near my heart. Nope..Also, RADS would affect my cosmetic outcome and I am vain.

Was supposed to do 6 rounds of TCH, but I quit at the 4th round. Continued Herceptin for 5 more months until the fatigue from lowering LVEF lessened my quality of life..It wasn't too low, but low enough for side effects.

I tried OS plus an AI, but my quality of life was no good. Tamoxifen was a no go because I had been on prozac for over a decade and my mental health is everything to me.

I declined hormonal therapy.

I do not see an Oncologist, my family doctor orders yearly breast MRI's and offers me anything needed. I see no point in seeing an Oncologist when I do not need their service.

I am FANTASTIC. After quitting chemotherapy, getting the hormone therapy out of my system, and focusing on feeling better, I am 99% of what I was pre cancer.

It took 4 years to feel 80%, and I am just now feeling 99%.

So far I have seen women that DID EVERYTHING I did not do have recurrences, so I personally believe that doing everything is a crap shoot. If my cancer wants to recur it will, regardless of what I do. I am dedicated to living well.

I did not follow the regular path, but the path I have followed has given me so many GOOD years that I wouldn't change anything.

I do take DIM supplement, as well as Cinnamon.

Life is good..I am still ALIVE.

Just had my 10-year post cancer checkup. Triple positive, 6 cm tumor, 9 positive nodes, and had to quit Herceptin after 3 months because of heart issues. I did not think I had a chance.

My oncologist told me that even though I had three months of herceptin, God knew what I needed and he believed it was enough. Literally, I repeated that every single day of my life to this point and believed it.e

Here I am 10 years later, I still have the heart issues, but I'm doing well. I have been on anastrozole for 9 years and no longer have any side effects.

My oncologist and I had a long talk this week. It was good to celebrate 10 years.

It always shocks me how when I get to the Cancer center how those flood of memories come back in a rush. Things I thought I forgot are front and center in my brain.

There is hope! Don't give up!

deniseg - welcome to the 10 year club!

I

6- year survivor here.

Found a lump summer 2015, had mastectomy and axillary nodes removed, then 6 rounds of chemo, then about a year of Herceptin. Still taking letrozole, although doc said I could quit after 5 yrs. Had a scare from a fast-growing cystic mass on one ovary just before last Christmas (don't ignore stomach pain that doesn't go away!). I got that out last January (both ovaries and tubes) and pathology showed no cancer, just the same kind of cyst I used to get often before menopause, but super-sized and like a bunch of grapes. Then about a month ago, there was an abnormality on my 6-yr check-up ultrasound on my remaining breast; mammogram was clear. Luckily the 6 needle biopsies from the weird area all came back NO CANCER. I have had so many recurrance/other cancer scares over the years, was ready to break down over the latest breast lump, but glad I didn't have to. Doc said I could actually wait 2 yrs before another check-up - but I'll be back next year, just to be sure

So yes despite aggressive initial pathology, I'm still here, and very grateful for the support I've received on these pages

Hi Sisters,

My name is Liz, I work in a nursing home, and am writing on behalf of one of our residents who asked me to post. I wasn't Her2+ but Ardith was. She is now 76 and was diagnosed with MS at age 16. In 2005 she was diagnosed with triple + BC and it was in 4 axillary lymph nodes. She underwent chemo then took Herceptin. She wanted me to post on her behalf to say that life is good. She is in great shape (save for the debilitating effects of MS) and loves every single day. She wanted me to pen that she wishes you all the strength and confidence in the world and to remind you that we are sisters with an experience in common and, as such, are never alone in our journey through breast cancer.

We are stronger and more fierce than the storm, more determined than the winds and more powerful than the waves.

Thank you Liz for posting on her behalf. Her message is full of hope and yet another reminder of the quiet strength of women facing illness.

Liz and Ardith - thank you so much for sharing!

canadaliz: God bless both of you for this inspirational post! Thanking you from the bottom of my heart as I embark on my own survivor quest!

Today is my three year “cancer-versary”! I’m doing really well and am now at the point where my mind doesn’t jump to cancer when I have an ache or a pain. I remind myself that I am getting older (which, in itself is a gift!) and so I’m going to get older people conditions. My life is really good too. I’m working, I’ve joined a dragonboat team, I’m in good shape (finally!) and I have two beautiful granddaughters to keep me young. Those were some dark days in the beginning and, without going in to detail, there were mistakes made. But I’m here and I now try to enjoy each day as it comes. It took a lot of therapy and some meds to get me here but I’m hoping for many more years. Her2+ feels scary as does HR-. But it can be done! Best of luck to those who are just starting this journey. It does get better!

Hello ladies

Just like tessu was diagnosed in August 2015 and we started our chemo September 2015. Six years survivor, still here, still NED and now I am having regular yearly mammograms like the general population.

Hugs and more hugs to all

Flower68

Welcome, Blessedwoman! We're so glad you've joined us and hope this community can be a source of support for you!

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