7.5 Years Out

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NicInTexas
NicInTexas Member Posts: 22
edited September 2021 in Second or Third Breast Cancer

Hi all,

Been off the boards for a long time. All smooth sailing up until 2 weeks ago: found a lump near my lumpectomy scar. Got in quickly for an ultrasound and then a biopsy. Confirmed as IDC with lobular features. Do I treat this (in my mind) as if it's ILC? They are calling it a new primary.

Waiting for all of the scary tests and their results right now, but I'll be getting a bilateral mastectomy at a minimum. Sigh.

Sad to be back.

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  • MountainMia
    MountainMia Member Posts: 1,307
    edited September 2021

    Oh, Nic, I'm so sorry! Looks like it is smallish and grade 1, which is definitely in your favor. Even so, I can't imagine how disheartening this might be for you. :(

    Let us know when you find out more.

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  • AMG2
    AMG2 Member Posts: 130
    edited September 2021

    Hi Nic, that is terrible news, and I'm so sorry. Only your oncologist can tell you how to treat it (lobular vs ductal), but mine was IDC with lobular features and is being treated as ductal, not lobular. It seems there was some part of the pathology report from the biopsy that made that distinction.

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  • AMG2
    AMG2 Member Posts: 130
    edited September 2021

    Looking back, I'm pretty sure it was the E-cadherin expression that distinguished ductal from lobular; mine was "retained/positive": https://www.ncbi.nlm.nih.gov/pmc/articles/PMC36810...

    Again, though, talk with your oncologist for confirmation.

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  • NicInTexas
    NicInTexas Member Posts: 22
    edited September 2021

    Thanks for the replies! Yes, that E-cadherin expression value was what they cited on my pathology report to call it IDC. It was absent (or not visible most likely) on my March mammo.

    Bone scan and CT next week. Meeting with one surgeon this week. Still can't believe I'm going down this road again, but I'll keep my chin up. :)

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  • NicInTexas
    NicInTexas Member Posts: 22
    edited September 2021

    Just for clarity, I meant the lump was not visible on my March mammo.

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