Making Dosing More Patient-Centric

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Bestbird
Bestbird Member Posts: 2,818
edited September 2021 in Stage IV/Metastatic Breast Cancer ONLY

So proud to present this outstanding perspectives piece about Patient-Centered Dosing in Cure Magazine as penned by Martha Carlson!

If you've ever suffered from a treatment-related side effect, you need to read this article!

https://www.curetoday.com/view/when-the-maximum-tolerable-dose-of-cancer-treatment-isn-t-tolerable?fbclid=IwAR1MER_VZjN6qdmGsdHK4LhYN1W_gBox9k3YpCiRJ6BdSA4UmT5gBqqZcBQ

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  • Bright55
    Bright55 Member Posts: 176
    edited September 2021

    hi Bestbird thankyou for this article ...yes we are our own advocate ...one size does not fit all

    It gives me confidence to ask questions

    Great work

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  • Bestbird
    Bestbird Member Posts: 2,818
    edited September 2021

    Hi Bright55, So glad to hear the article resonated with you!

    The patient-Centered Dosing Initiative consisting of advocates and medical oncologists has compiled a list of patient attributes that may be considered when discussing dosing options with physicians. If interested, you're welcome to visit: Patients — The Right Dose And the Resources tab has a hyperlink to dosage related studies indicating that lower doses of some MBC drugs are as effective as the standard (highest) dose.

    With good wishes!

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  • nopink2019
    nopink2019 Member Posts: 329
    edited September 2021

    Reassuring article. I may have to return to Xeloda (took previously, but stopped due to SE). This is my 2nd MO and she explained why it might not be so awful on lower dosage. 1st MO dismissively said she might reduce dose, like SE were not debilitating. That was when I switched to research cancer Center in 10/19. Now on A/A and have lowered dose with great relief of SE. Article makes me less nervous that lower dose isn't as effective....maybe.

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  • Bestbird
    Bestbird Member Posts: 2,818
    edited September 2021

    nopink2019, you may want to check out the document called Dosage-Related Studies on the Patient-centered Dosing Initiative's website, since there are a couple of studies indicating that lower doses of Xeloda (capecitabine) are as effective as the standard (highest) dose, and there's also a study about Afinitor that reached the same conclusion. https://www.therightdose.org/resources

    Good wishes!

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