Oncotype Questions
I have met with 2 oncologists, and my BCS and I am confused...
I only have biopsy results right now, my surgery has not yet been done, so the only thing we have to look at is a prelim from the ultrasound that says the "area" is 6mm.
The first oncologist said that if the tumor is under 5mm I do not qualify for Oncotype. He said the at greater than 6mm I qualify for Oncotype and that depending on other features of the tumor, different therapies would be considered.
When I mentioned Oncotype to the BCS, she told me that all the "breast cancer gurus" - Dana Farber, MD Anderson, Sloan Kettering, etc. say if the tumor is under 1cm, it should not be sent for Oncotype and that they actually could be criticized for sending it as being too aggressive with testing. She did say though that if it's between 6mm-10mm the oncologist would have a discussion with me.
The 2nd oncologist I met with told me if it's under 5mm, no chem and no Oncotype. He said if it's 5mm-1cm we would have a long discussion about chemo, but said nothing about Oncotype, and said if it's greater than 1cm but less than 2cm and less than 3 nodes involved, we would "talk about Oncotype". So he seems to be leaning toward not sending for Oncotype in the 6mm-1cm range, where the first oncologist told me I qualified over 6mm.
I looked at the NCCN treatment guidelines, and all the treatment guidelines for ER+, PR+, HER2- tumors are based on tumor size of 0.5cm, which if my math is right is 5mm. it says if tumor is larger than 0.5cm and gene test not done, either chemo followed by endocrine therapy is recommended or just endocrine therapy. But if gene testing was done, it gives very definitive treatment guidelines such as if score is less than 26 no chemo is recommended, when it's 26-30 it could be either chemo followed by endocrine therapy or just endocrine therapy, and if score is 31 or more, chemo followed by endocrine therapy is recommended.
So it seems like Oncotype is a a valuable tool. When I tried to get into more detail with the 2nd oncologist, he told me there were a lot of rabbit holes we could go down, but we don't know the final size, so right now I should focus on my surgery.
The problem I have now is that my surgery is on 9/14 and the BCS told me that when she has the final path and has reviewed everything she contacts the oncologist with the results and he and I should have already had an "if this then that" conversation so he will know to send for Oncotype or not. Well since he didn't go into detail with me about that, we haven't had that conversation and I don't meet with him until 9/30. Whether I need chemo will hinge partly on Oncotype which I read takes two weeks to come back, so now we're at 10/14, and the radiation therapist told me she wanted to see me for my "planning" appt 2 weeks after surgery after my BCS post op, but I can't see her until I know if I'm having chemo first, right? Because chemo would be before radiation.
I'm so confused....
Comments
-
Hi macdebbie, I am newly diagnosed with cancer similar to yours but post-surgery now. My surgery was the day before you were diagnosed. They did an oncotype test after surgery, it took just over 2 weeks, and my score is 28. That is over the score of 25 (70% of women score 25 or less and can safely avoid chemo). At first, pre-surgery and the genomic test, it was thought I would only need radiation and hormone therapy. .
I talked to the radiation doctor yesterday for a full consult over the phone. He said "if you decide to do chemo, we will talk in about 3 months about scheduling radiation. If you don't decide to do chemo, call me back right away to get set up for radiation." He didn't pressure me either way, just spent about 30 minutes on the phone with me to get his intake questions answered, leaving only the physical exam to be done later. I felt much better having the oncotyping done before the conversation with the radiology doctor.
My next step is a muga scan of my heart, ordered by the doctor who will do my chemo workup. I was still undecided to do chemo when that was scheduled for Sept 14. I am now pretty certain I will do chemo.
I hope you can have a discussion with your team members to get your tumor oncotyped after your surgery.
-
macdebbie, your tumor appears quite small and will soon be removed. Take a take a deep breath, because then the waiting game begins. We've all gone through this and it will likely be the hardest part of your ordeal. But there is a method to this madness and once all your tumor's info is gleaned and a treatment plan acknowledged, you WILL breath easier.
Here's hoping surgery goes well for you and you soon have all your answers...
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team