Herceptin maintenance done, now what?

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Perea66
Perea66 Member Posts: 3
edited August 2021 in HER2+ (Positive) Breast Cancer

I wrapped up a year of treatment on July 22nd with my final herceptin infusion. Yay, so glad that's over!!! My diagnosis was stage 1 and triple positive; post surgery I'm cancer free. I'm wondering what others have experienced after the herceptin infusions are over. I'm experiencing more aches (muscle and joint) now than during the infusions. I read that it takes about 2 + months for the herceptin to completely leave the body. Hopefully this will be over soon. Would love to hear from you.


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  • SpecialK
    SpecialK Member Posts: 16,486
    edited August 2021

    perea - are you on anti-hormonals? If so, that could be responsible for the muscle and joint aches. There is an active triple positive thread on this site, here is a link:

    https://community.breastcancer.org/forum/80/topics/764183?page=1320#idx_39584

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  • Perea66
    Perea66 Member Posts: 3
    edited August 2021

    Hello SpecialK,


    I am not yet taking hormone suppressant therapy. I wanted to make sure that the herceptin has time to come out of my body so that i don't confuse the side effects of the suppressant with the waning levels of herceptin. From what I read, it can take 65 days +/- for herceptin to leave the body so I plan to give it a try in October. Thank you for your guidance!

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  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited August 2021

    Perea66, I hear you about wanting to separate out what's causing what side effect but do know that there is an optimum of time to start the anti-hormonals. Do talk to your oncologist so you don't miss that window of time or if it's most important to separate everything out, at least you will have the information and be confident with your decision, whatever you decide.

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