"Tamoxifen Road" - Support and Encouragement

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  • Waves2Stars
    Waves2Stars Member Posts: 158
    edited August 2021

    My surgeon said it will be before the end of the month, don’t have a date because I need to coordinate with plastic surgeon on Monday. My oncologist know what I take right now, and that I have insomnia. I need to message her to see what the plan is for that.

    I’m so, so thankful everyone on here shares their experiences! You never know how much one small comment can make a big impact on another’s QOL!!

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  • Sunshine22
    Sunshine22 Member Posts: 1
    edited August 2021

    Hello everyone, I am new to this forum and was wondering if anyone is getting monthly Lupron shots and taking tamoxifen.  I have been doing both for a year, but I’m considering stopping the Lupron because of the side affects.  I’ve really been struggling and stressing out about what to do and I have an appointment this week to discuss my options.  Any advice is appreciated!

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  • Jinx27
    Jinx27 Member Posts: 238
    edited August 2021

    @Sunshine22

    I was on Lupron and Arimidex for 4+ years and have switched to Tamoxifen (liquid) two weeks ago. I stopped Lupron and Arimidex because my quality of life lowered due to the side effects. Weigh gain, obesity, hot flashes, night sweats and a huge drop in my mood.

    Right now, the Tamoxifen alone so far isn't too bad. Feel free to private message me with any questions.

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  • Salamandra
    Salamandra Member Posts: 1,444
    edited August 2021

    Hey Arvla,

    That's interesting that he recommended Evista. As far as I know, toremifene has more research to support efficacy and is more broadly used by premenopausal women (at least in Asia). It is also a SERM that doesn't use that CYPD26 enzyme. I was so relieved when I tried it that not only was it easier on my side effects wise than tamoxifen, but also I could go back to my bupropion!

    (This might not be the case for everyone. For some women they will both be intolerable, or tamoxifen will be better. But I think it is worth trying!)

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  • petey111
    petey111 Member Posts: 183
    edited August 2021

    Just an FYI - There seem to be mixed opinions on the Benadryl interaction. I specifically asked my oncologist about it because I depend on it like you for sleep. My oncologist said just to make sure I take my tamoxifen in the morning and my Benadryl at night. Then they won't interact. I trust her opinion!

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