Signs & Symptoms are scary- Biopsy Wednesday!

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LutfiePechi
LutfiePechi Member Posts: 4
edited August 2021 in Waiting for Test Results

I have been hesitant to post because I somehow feel "fake". There are people who dealt with breast cancer head-on and my anxiety over a biopsy seems selfish. But here I am on the verge of tears.

I had my first screening mammogram and had an indeterminate area show up (BI-RADS 0). Going into the mammogram, I was prepared to have an ultrasound because I had a breast reduction 20 years ago. It showed a 7mm indeterminate mass (BI-RADS 3). I was going to have follow-up imaging in 6 months. But then I looked at my breast.

I have nipple retraction, nipple darkening, 3 new moles, and areolar skin thickening. I was already experiencing pain and swelling in that breast but thought it was because I'm peri-menopausal. So now my anxiety is through the roof.

I called the Radiologist who decided to biopsy instead of follow-up due to my symptoms. Statistically I should be fine but I can't shake this bad feeling. My husband lost his leg to bone cancer and then spent the past 2 years battling bilateral kidney cancer, so I don't want to scare or burden him. Am I being overly sensitive or do I have tangible reasons to be scared (and not residual from my husband). I appreciate the ability to voice my feeling as I'm trying to be strong for my family.

Comments

  • AMG2
    AMG2 Member Posts: 130
    edited August 2021

    Lutfie, hugs to you. You're not fake; you're justifiably frightened because you feel something is wrong, and breast cancer is scary. Every single one of us was in that scary spot, and every friend I've had for whom it turned out to be benign was also in that scary spot until they had answers. You're in the right place coming to this forum, and you're taking the right steps, and I hope so much that it turns out not to be cancer. Hang in there, and if you're up for it, please let us know how things turn out. Wishing you the very, very best.

  • barbojoy
    barbojoy Member Posts: 62
    edited August 2021

    Lucite. I agree with AMG2, most of us have been there. I had a nipple issue that I was convinced was Paget’s. I went to PCP who referred to specialist- who did a punch biopsy in the office - it came back negative (early 2020). No other testing (mammogram, US)

    It Never healed. I also felt a knot under the nipple and had a palpable lymph node after my Covid vaccine. Went back to specialist May 2021. She didn’t feel the knot I felt on exam and said nipple was dermatitis- prescribed cortisone and referred me to dermatologist.

    Annual mammogram was delayed with COVId - should have been Jan 2021 - wasn’t until June 2021. They did u/s and then biopsy and confirmed breast cancer.

    Everyone’s story is different and I don’t mean to scare you. I share my story to tell you to follow your instincts when it comes to your care. I absolutely knew that something was wrong but when the biopsy was negative and the specialist was flippant about it— I gave in and didn’t seek additional treatment. I felt silly for wasting her time and trusted that if the doc said it’s dermatitis, then that must be it. I wish I had pushed for ultrasound or MRI or second test back in March 2020. I tell all my friends now to advocate for themselves as they would for a trusted friend. Tell your doctor how worried you are and ask them to be as thorough as possible. I think if I had pushed back - maybe my doc would have done more testing. Best of luck!!


  • Firecracker73
    Firecracker73 Member Posts: 14
    edited August 2021

    I agree 💯 with the wonderful women who have responded to your post. Your absolutely not being fake. The waiting is the worst part- anxiety can make your mind go to very dark places, not to mention the experiences you've dealt with regarding your husband. I hope he is doing well. My sister was diagnosed with stage III breast cancer in June 2016 at the age of 39. I will never forget when I got the call. Instantaneously, I knew I was next. I just KNEW it. Immediately my risk had doubled as a result of her diagnosis. I had to see her breast surgeon because now I was considered high risk. I remember her mentioning a thickening- now I had a word for that area I had felt for years. All my prior mammograms had come back fine. But this year I knew it was going to be different- and it was. Had to have an u/s where the radiologist noted calcifications- all these new words. I had never felt a lump and no one had ever talked about thickening and how that could be an indicator. The calcifications were not seen on the mammogram, so who knows how long they had been there. The radiologist ordered a biopsy and he informed me, “It's nothing I would lose sleep over". How wrong he was. Those days between the biopsies and the results were some of the darkest days of my life. AND STAY OFF OF GOOGLE. DR. GOOGLE IS NOT YOUR FRIEND! I already knew when I received the call. Like others have said, everyone's journey is unique. The majority of biopsies come back benign, but they are the only way to know with absolute certainty what is going on. And we are all here to listen, commiserate, offer support and answer questions. We have all been where you're at. We are all rooting and crossing our fingers that you do not have to join our club. Despite my sisters diagnosis, she went on to have a baby last year at the age of 42. Whatever the results may be, we will be here for you. Please keep us updated and don't hesitate to reach out if you're struggling or have a question. Sending cyber hugs and lots of positive energy and thoughts your way.

  • LivinLife
    LivinLife Member Posts: 1,332
    edited August 2021

    I can't add to what the others have already said lutfie.... Just sending support - You're in the "Waiting for Test Results" forum - so appropriate you are here!!!! Please let us know how your biopsy goes and once you hear about results.....

  • LutfiePechi
    LutfiePechi Member Posts: 4
    edited August 2021

    Thank you so much! I'm surprised how much this support is helping me! I appreciate it! I will keep you posted.

  • LutfiePechi
    LutfiePechi Member Posts: 4
    edited August 2021

    Thank you so much! I really appreciate the support!

  • LutfiePechi
    LutfiePechi Member Posts: 4
    edited August 2021

    Update: I had the biopsy and it was not a comforting experience. It wasn't the biopsy itself, but the tech and Radiologist. To make a long story short, they only got one sample (I guess they try to get 4?) because I developed a hematoma that obscured the view making it impossible. The mammogram confirming clip placement wasn't in the correct position but 4cm too high. The Radiologist concluded that the door biopsied may not have been the correct spot after all. THEY TOLD ME NONE OF THIS...I OBTAINED THE OPERATIVE REPORT AND FOUND OUT THAT WAY! I was told the "cysts" ruptured and all is well. My response was "only one was a cyst...the other a mass, and masses don't go away." They obtained a small amount of red (but not blood) aspirate but didn't send that to pathology??? Am I overreacting in being engaged???

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