22 Years old: Evaluation and Consultation Tomorrow

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nharrison13
nharrison13 Member Posts: 2
edited July 2021 in Waiting for Test Results

I KNOW breast cancer is very very rare at my age, that a lump found is likely Fibroadenoma or a cyst. However I pride myself in being able to read rooms and people and energy. No doctor or nurse at any point has tried to tell me this is a cyst or use my age to convince me of a specific diagnosis, which is GOOD as is how doctors should act. It is not typical though and does however leave plenty of room to freak out.

Age: 22

Birth control: Nexplanon Implant-1 yr, Blisovi- 2yrs, Kyleena IUD 2 yrs [Now]

Breast cancer in family: Paternal Aunt, Paternal Great Aunt

About 1 month ago I was sitting on the couch with my friend and found a small lump, about the size of small pee. My friend felt it, she'd had cysts before, and said I should get it checked but no big deal they are common. I made an appointment for the next week, but I overslept the appointment so I missed it. At this point I was mid-packing up my apartment and life to move out of my college town to Upstate NY. I just finished my masters and have a full time job offer starting in September. As soon as I got to NY I scheduled an appointment at the local planned parenthood.

6/28/21: Planned Parenthood NP did a breast exam, prior to the exam I did my best to explain the lump. When I felt about two weeks prior it felt like a pretty distinct sphere. At this point it felt like the area around it was becoming denser as well, like the sphere was emerging from the area under. Not sure what "moveable" means but the pea was definitely attached to what was under it. She immediately felt the lump and agreed with the fact it was encroaching on the area around it. Waiting in the room, a nurse came in to update me on their efforts to find me a sooner appointment for a radiologist. They were able to get me one at a breast and wellness center the next week with a prescription for "Left breast diagnostic ultrasound with bilateral mammogram as indicated, Left breast mass at 10'o clock 1.5cm x 2.5cm, 1.5 inches from areola".

7/8/21: I went in for my appointment and the radiology nurse said we would start with an ultrasound and then get a mammogram if indicated. As soon as we started the ultrasound she began to take photos for the radiologist and left the room. She came back and took a few more including a heat scan. Before my 7/8 appointment I did lots of obsessive research, naturally. I wanted to know what to look for, I wanted this knowledge going in. I honesty wanted to know what a cyst and Fibroadenoma LOOKED like, on an ultrasound, so that if I looked I could stop freaking out on my own. In turn, I also learned what cancer looks like. During the ultrasound I peaked (can't decide now if I wish I hadn't) but what I saw did not even remotely resemble either a cyst and fibroadenoma. What I saw looked like a bright star, in medical terms the mass was very spiculated and had a bright white halo around it. I was not round or oval at all, it wasn't all black or fluid filled, and by my best look id say taller than wider.

I was then lead to the waiting room for the mammogram. The mammogram technician brought me in and made sure I felt comfortable since this was my first time. We did the first scan, and then she told me she wanted another from a 45 degree angle because she thought that part of my breast was dense. I got dressed and she went to the radiologist, he sent her back from another mammogram photo from another angle. I was then allowed to leave.

7/9/21: 24 hrs later I got a call from planned parenthood saying my results were suspicious and I was getting referred back to the breast oncologist at the same breast center. About 30 minutes later I received a phone call to schedule an evaluation and consultation(7/15), not a biopsy but was told that one would be facilitated from that appointment, which is tomorrow morning.

I need guidance or helpful/related experiences. Really just anything to get me through the next 24 hrs until I know for sure what I happening.

Comments

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited July 2021

    nharrison,

    Since you already know how rare bc would be at your age, I’m not sure what to say to comfort you. Although you pride yourself on reading the room, people, energy etc, this is really not a reliable way to decide whether you do or do not have breast cancer. Trust me, reading the tea leaves has proven to be very inaccurate in most cases. As far as learning what cancer looks like on imaging, if it were possible to learn how to do this via the Internet then why would anyone need a radiologist to interpret mammos or any type of scan? Although a lot of info can be gleaned from the Internet and although you sound very bright, you are simply not qualified to interpret these things. This is not intended as an insult to your age or intellect. It is simply reality.

    I can imagine how worrisome this must be and I know you want definite answers (we have all been there) but please let everything play out and stay away from Dr. Google who has yet to prove he’s a very good doctor! If for some reason you don’t have trust in your current doctor you can always change doctors. BTW, what is a heat scan? After 10 years of living with breast cancer, and having almost every scan known to humanity, I have never heard of a heat scan. Could you possibly mean thermography?

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited July 2021

    I am sorry you deleted your original post. Wishing you all the best .

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