TNBC w/significant lymph node involvement

Hi Kimbie.

When I was first diagnosed, the BS and MO initially thought I would be stage 2b or c. As more tests came in, I was staged 3c/4 because the lymph nodes in the supraclavicular area were involved. MO wanted to switch my treatment from curative intent to palliative. I, with the help of the breast surgeon, pushed for curative intent. I had AC, then taxol. The cancer responded to the chemo pretty well, but I did not get PCR, so after my lumpectomy and radiation, I was on Xeloda for 6 months. It’s been 2 years since DX, and so far I’m NED (no evidence of disease). I’m still holding my breath and crossing all fingers until year 5. I’m glad I went with curative intent. All the chemo wasn’t easy, but it wasn’t as bad and I feel like it gave me the best chance at survival.

Kimbie, sorry that you are here and dealing with all this new information. You haven't shared much with us (which is fine!) so we don't have much to go on, but this seems to be a situation that calls for a second opinion. It's quite possible your MO has a good plan for you and you should hear the doctor out, and ask about the options. But having another approach from a different doc might help you understand better and be able to choose your treatment plan.

All the best to you.

Just a voice of hope here.

I had a 4 cm, 2-part tumor, several malignant nodes in armpit upon diagnosis.

I got a pCR from chemo (had Lx & rads too)-- and am three years out with no problems. PUSH for curative intent. TNBC responds to chemo!!

Are you getting ready to start Xeloda, NatureYogi? Oral capecitabine (Xeloda) was far easier on me than IV chemo, especially after I got a dose reduction. They will usually start you on some outrageously high dose, like 2500mg 2x a day, but will normally reduce dosage if the side effects get to be too much.

The worst issues for me were gastrointestinal upset (take with food, preferably something with protein and a little fat, like yogurt) and hand foot syndrome. Both were manageable if you stayed on top of them.

There are a couple of threads specifically for Xeloda. You may want to check them out.

Good luck. Hope it's an easy regimen for you.

Trish

Trishyla and NorcalS, thank you for the info on Xeloda. I just finished chemo and Taxol has left me with numb fingers and toes, hope it goes away. My surgery is July 23 and after that radiation. The oral chemo will come later.

Kimbie, let us know your update.