Mastectomy pillow - yes or no

Options
AprilAnn2533
AprilAnn2533 Member Posts: 5

My double mastectomy is coming up and I am trying to begin pulling together the things I need and want for the hospital and recovery. I am not sure what to think about the mastectomy pillows I am researching on Etsy and amazon. The reviews are often glowing, but at $50+ - are they truly necessary, or can the same effect be achieved with any other bed or throw pillow? These are the pillows with the arm holes and a padding across the front. I know I will need something for the drive home to provide cushioning from the seatbelt and to help with standing up for those first few days and weeks, but again, is this really a must-have product?

Those of you who used them, did you use them long, feel they were worth the price, and/or feel you could have achieved the same level of comfort with a pillow you already had around your home? I want to be comfortable during my recovery, but I am not really interested in spending $100s of dollars on pillows, lanyards, shirts with drain pockets, surgery bras, and all this other stuff that I ultimately I hope to get out of my life as quickly as possible. I'd rather save that money for some fun stuff like a weekend away or new clothes once this is all behind me! Thanks for any insight!

Comments

  • SpecialK
    SpecialK Member Posts: 16,486
    edited June 2021

    Honestly, I spent zero dollars on any commercial products geared toward mastectomy. I used regular pillows, in particular a soft feather one for the car ride home from the hospital, slept in my own bed with extra pillows all around, wore fitted tank tops I could step into and pull up and zip up lightweight hoodies. Used a clean shoelace to string my drains on for showering, a handheld shower head, Press N Seal plastic wrap to cover my bandaging to keep it dry. I pinned my drains to the side seams of my shirt, or wore an inside out hoodie and put the drains in the pockets or front kangaroo pouch. I woke up from surgery in a mastectomy camisole and alternated it with the tank tops so I could wash things and have clean supplies. All of that worked out just fine. When one of my good friends had a mastectomy I did purchase a buckwheat pillow from Bed, Bath & Beyond for about $20 and $5 of fleece fabric and made a little pillow case for it. She loved it, but she was also given some little kidney bean shaped pillows while in the hospital that were good to put under the SNB arm, or between the chest and the seatbelt. Good luck with your surgery - I like your attitude and plan for afterward!

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited June 2021

    I did not buy special pillows but wanted to have pajamas that buttoned up and did not go over my head when I had drains. I was not allowed to shower per my surgeons instructions and had to do a sponge bath until the drains came out. I was on a lot of pain meds so slept a lot anyway and often felt more comfortable in a recliner chair actually.

  • historygeek
    historygeek Member Posts: 46
    edited June 2021

    I had a double mastectomy. I did buy button up pajama shirts so they are totally worth it. The pillows I used were just many pillows I already had. It helped to have a few couple of smaller pillows to put under my arms or to help reposition myself. I'm still using a seat belt pillow even though I am 2 months out from surgery.

    With the drains, I ended getting a cheap set of drain clips & clipped them to my shirt or waistband. It made them much easier to handle for me.

    https://www.amazon.com/dp/B08HLTNZBF/ref=cm_sw_r_other_apa_glt_i_RZ71571W5WJGGFRG9X9V?_encoding=UTF8&psc=1

  • Redkitty815
    Redkitty815 Member Posts: 44
    edited June 2021

    I used mine for the ride gone from the hospital and that’s it. It wasn’t worth it IMO.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited June 2021

    Like many who have commented, I did not buy any special pillows or many other specialized post mx products. I did take advantage of some things that my provider prescribed at no cost to me such as camisoles with drain holders and a very soft front closing bra. For the car, I just used a small pillow that I already owned. Being able to rest comfortably is important but the post mx period passes quickly for most so don’t invest a lot of money in specialized items. Take care.

  • MsMonster
    MsMonster Member Posts: 27
    edited June 2021

    I got a pillow. I used it some and was glad to have it but it wasn’t required. I did like that it had 2 pockets. I put my phone in the outer one and and an ice pack in the inside one. I think mine was less than $30 on Amazon.

  • mtspacekace
    mtspacekace Member Posts: 157
    edited June 2021

    I had someone gift me a pillow with the arm holes and it was a life saver for me. Something about the hugging of the pillow really relieved the pain for me, especially in the car (but I had a 2 hour car ride to get home from the hospital). I also slept in a recliner for probably a month, and slept with that pillow, having it around my body was the only way I could get comfortable!

  • AprilAnn2533
    AprilAnn2533 Member Posts: 5
    edited June 2021

    Thank you all - this is so helpful! Just been looking at all these articles for recovery and their lists of recommended items, it started sounding like a lot and honestly was getting a little frustrating - didn't like the idea that products might be hitting me up in a moment of vulnerability. At the same time, I didn't want to be kicking myself for not having something important or genuinely useful.

    @SpecialK - the inside out hoodie is genius! Definitely have plenty of hoodies that I actually like and would rather use that having to get an extra one just because it has the drain pockets.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited June 2021

    April,

    So glad that everyone’s tips have been useful. There are probably hundreds of post-mastectomy products available but unless money is not important, most are nice but unnecessary. You can often find things around your house that will serve the same purpose. Take care.

  • LivinLife
    LivinLife Member Posts: 1,332
    edited June 2021

    The only pillow I bought was a very small one in case I wanted to use it to cushion the seat belt on the 4 hour ride home from the hospital. I bought it at Walmart - just a cheapy. I did purchase about 4 of the cheapest button down tops I could find b/c nearly all of mine are pull over. I found those very helpful the first 3 or 4 weeks. What I really valued was a very cheap mesh holder for my drains in the shower. I bought it on Amazon and it made such a difference!!! Best to you with your upcoming surgery....

  • saltmarsh
    saltmarsh Member Posts: 227
    edited June 2021

    I was gifted a mastectomy pillow, a sweet zip-front jacked with inside pockets for drains, and a hip-belt for drains. I bought myself a shower shirt and some extra compression bras.

    While I loved having the mastectomy pillow, you absolutely could achieve the same effect with a small blanket folded up or other comfortable-feeling pillow of your own, and it really was only essential in the car, and it was nice-to-have when I felt like I needed a hug or going to bed.

    I love the jacket and it will be always be one of my faves, but it was def non-essential.

    The hip belt was helpful when I was being active, keeping my drain bags from catching on things, and hiding them from view from my very-sensitive-to-seeing-blood child.

    If you like feeling as clean as possible, a shower shirt at least will help you feel HALF clean (your lower half), but I did find that water leaked under the arm bands if I reached over my head, so if you have a detachable shower head, detach it before you get in!

    The extra compression bras were essential. Including the three I got from he hospital, I now have six, having picked three out on sale from HERroom. Considering you have to wear them full-time for months, I think it's well-worth the extra expense if you can afford it, so you aren't constantly having to wash one to have a clean one. Pro tip that someone else shared on one of these threads: Ask your nurse or doc at the hospital if you can have an extra compression bra! I asked for an extra and they gave me two extra!

    Truly what I found most essential were the shower shirt, hip belt (but any clips that work for you would be fine), and extra compression bras. Your mileage may vary. Best wishes!

  • Lille
    Lille Member Posts: 34
    edited July 2021

    I did buy a set of mastectomy pillows from Etsy. They were really cute and I never used them except for the car ride home which I could have just achieved by bringing a soft pillow. In truth I realized that I had no desire to try and wrap a pillow around my chest and was confounded on what the arm holes were even for. Because I have cats and I wanted no "accidents" of chest jumping I did sleep on my back and placed a regular fluffy pillow on my chest. One of my cats did actually bound over me and it was sufficient enough to absorb the impact. As for the drains I was given a bra at surgery that had loops to attach them too. That is something that was incredibly helpful just to keep them in place at my sides so I didn't lay on them or get tangled with the tubes but you could probably achieve the same thing with a sports bra and just pinning a hair tie, ribbons, or some other such thing. Best wishes.

Categories