It’s my own fault

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DelightfulJade
DelightfulJade Member Posts: 24
edited June 2021 in Waiting for Test Results

I feel like this is my own fault. I neglected mammograms for many years. Had none of the usual risk factors. No family history. I spent years taking care of my husband before he passed away 1.5 years ago. I avoided doctors mostly because of health anxiety and fear of any diagnosis. I recently found a lump which brought me to the doctor. I now have a Bi-Rads 5 rating after diagnostic mammograms and ultrasound. There will be a few weeks waiting for a biopsy.

I remarked to the radiologist and tech that I was ashamed of myself, and they reassured me that I was in a no judgment zone and that they see many women in the same situation.

Is anyone here dealing with the same thing? How did you cope with the feelings of guilt and shame? I’m afraid I will be treated “differently” by the breast team because this probably could have been caught earlier.

I’m glad I found this forum. Your posts have been very encouraging

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited June 2021

    Margo, welcome to BC.org! We're sorry you find your self here and waiting, but you've come to a wonderful, supportive place for doing so. We're sure that many, many members here can understand what you're feeling right now, and hope they'll be able to give you some support and advice soon.

    Good luck with biopsy. We hope that next few weeks go by quickly and keeps you busy! We'll be thinking of you!

    The Mods


  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited June 2021

    Margo221,

    Even if you'd had mammograms religiously since age 40 or age 50 or whatever, your cancer might not have been diagnosed until later. In the beginning, your cancer was so small that it wouldn't have been "seen" by imaging.

    Like you, I was busy taking care of others when I should have been getting mammograms. My OB/GYN wanted me to start getting them at age 40, but I have twins with autism and a lot of my energy went to them. So, when I felt a lump at age 46, yes, there was guilt. But, I did what you did -- noticed a symptom and got it checked out. In my case, it was cancer and an aggressive one at that (triple positive). Still, I went through treatment and here I am, almost seven years later.

    There's nothing you can do about the past. You just have to keep doing what you're doing now -- going to appointments, getting things checked out, considering treatment options (if it's cancer). ((Hugs))


  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited June 2021

    Margo, you almost described me to a tee with your post. Please do not blame yourself. It wasn't your fault. BC happens, it takes time to grow, so even if we had gone in sooner doesn't mean the staging or treatment plan would end up any different. I find in most cases, the treatment is the same, so that's when I stopped kicking myself in the arse! Right? What if I was diagnosed stage 1 instead of 2? My treatment would be the same. Once you get the info on what you are dealing with you should just focus on the road ahead and let the past go. If any medical professional treats you with any sort of judgement, then go find another. I'm glad the radiologist was reassuring. That's being professional.

    My sister is metastatic. Diagnosed in late 2014. I should have been going way back then! That year my Dad died and I was taking care of Mom. Mom passed in 2015, then my mother in law and father in laws situation changed, and like you caring for your husband, I was caring for family as well. I wonder if the stress threw off my hormones? Anyway, as you see I finally went for a physical with a new GP (since I didn't have one!) And the journey started. I have health anxiety too, but it has gotten a little better.

    I hope that helps you, you are not the only one. You will not and should not be treated any differently. I hope in time you will go forward and not blame yourself. Best wishes to you. Let us know how it goes. Sorry you had to join.

  • DelightfulJade
    DelightfulJade Member Posts: 24
    edited June 2021

    Thank you ElaineTherese! It really helps to know I’m not alone. We can’t go back in time but can only move forward. Hoping that sentence will sink in soon. I’m sorry you had to go through this too. I can’t imagine dealing with this while caring for twins with special needs. I feel frozen in place and can’t seem to do my regular day to day activities. It feels like time has stopped.

  • Aram
    Aram Member Posts: 417
    edited June 2021

    Margo221,

    I have done imaging religiously starting from 35. Last one was November 2020. They didn't find anything. I felt a lump in January 2021 and here I am. Even if you would have done all the imaging, there is always a chance that at the time it can't be seen.

  • historygeek
    historygeek Member Posts: 46
    edited June 2021

    Margo, I think we all feel that way at some point. You are definitely not alone. I found mine by finding a rather good size lump. In the beginning, I kept thinking about why didn't I find it earlier. Or that I didn't do self checks well enough. And I will say this waiting period after finding a lump is the worst. I couldn't focus or enjoy anything. Good luck!

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited June 2021

    I’m another one. I didn’t like the image facility my insurance said to use. So wouldn’t go for Mamo. Got new PCP, said something is going on, do I have to go there? He said go here instead. Yep, stage 3, grade 3.

    Guilt? Maybe a little. But then, instead of poor, stubborn me, why not me? It’s a crap shoot. If not cancer, then something else.

    You don’t have to be brave, you just have to show up. If you’re anxious or can’t sleep or function ask your PCP for some chemical help. Lots of ladies here do, and that’s ok too.

  • DelightfulJade
    DelightfulJade Member Posts: 24
    edited June 2021
    Ctmbsikia - thank you! Our stories are so similar. It helps to know that I’m not alone. My arse is all kicked out by life so far and it doesn’t need my foot, too!
    I also wonder if the stress of caring for and losing loved ones has contributed to this but we will never know. Like you said, BC happens. We have no control over it. We just deal with it as it comes and do what needs to be done. Even if it had been caught early, the treatment and outcome could be the same.

    I’ve also thought that If it had been found earlier, I would have carried thatworry but as it stands now, I’ve spent those years where this hasn’t even crossed my mind. Grasping for straws! But I’ll take whatever I can get to ease my mind right now.

    It sounds like you’re doing ok and I hope it continues. I wish the best for you and your family.

  • DelightfulJade
    DelightfulJade Member Posts: 24
    edited June 2021

    The waiting is the hardest part for sure. What am I dealing with? There’s a 2cm highly suspicious mass on the right and a smaller, less suspicious one on the left. Both the radiologist and the mammo tech said my nodes looked normal. I know that’s not a guarantee but it was something to hang onto. But then I started doubting that it’s actually true and wondered if they sugarcoat their findings at this point in diagnoses. But why didn’t they sugarcoat anything else! So much anxiety. I think I might ask for some chemical help but not sure if my GP will give me anything because he just saw me one time. I can’t eat and my mind won’t stop.

    Very happy I found this forum.

  • buttonsmachine
    buttonsmachine Member Posts: 930
    edited June 2021

    Margo, I also found my own lump because I was "too young" for routine mammograms yet. I've definitely met other women in your situation - one who had a lapse in health insurance coverage for a long time, and another whose PCP told her it was okay to get mammograms every two years instead of every year. Then there are those who get mammos religiously, but then the mammos don't catch their cancers! Do NOT beat yourself up about this. The important thing is that you're dealing with it now. That is all any of us can do. I wouldn't worry about being treated differently by your medical team either - they've seen it all already. ((Gentle hugs)) and please keep us posted.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited June 2021

    I had an appointment with my PCP in May of 2018. She nagged me to get a mammogram and a few other things I'd neglected. At that appointment, she did a breast exam and felt nothing. I had the mammogram just a week or so later and it showed a mass that turned out to be cancer. Remember, mammograms don't prevent cancer, they find it, so I'd have had cancer whether or not I'd had yearly mammograms.

  • gamzu710
    gamzu710 Member Posts: 214
    edited June 2021

    Margo, I hear you on the sugarcoating fears and I'm right there with you. I'm in the phase between suspicious ultrasound finding and biopsy and have convinced myself that the radiologist was lying to me when he said he didn't know what it was, because with 40+ years of experience there's no way he hasn't seen everything, and that a bomb will be casually dropped on me at the biopsy by the next radiologist assuming the first one already told me. This waiting game sends your mind racing off in all directions constructing all kinds of narratives to fill in the gap in information. It's awful.

  • GlobalGal
    GlobalGal Member Posts: 63
    edited June 2021

    Dear Margo221:

    I never neglected my mammograms for the last 20 years.

    Then, two years ago, I had papillary thyroid cancer with thyroidectomy, including removal of 3 central lymph nodes in my neck, which upon further analysis revealed a second primary cancer, namely breast cancer.

    As a result, I subsequently had every test and scan imaginable, but breast cancer was not found in my breasts or elsewhere (this is called "occult" or "cancer of unknown primary").

    Since diagnosis, I've had four PET scans with no evidence of disease, but due to the neck location of the breast cancer, my cancer is considered metastatic.

    By the way, genetic tests, in my case, revealed no genetic mutations (so, it's "sporatic" cancer rather than "familial").

    Margo, you can do absolutely everything by the book, including mamograms,ultrasounds, and MRI's, but diagnostic tests don't always show breast cancer. Please don't beat yourself up!


  • edj3
    edj3 Member Posts: 2,076
    edited June 2021

    Yeah you can do everything right and still get smacked with cancer. I got mammograms every year, I'm a clean eater, I work out 6 days a week (very avid runner), I didn't ever really get sunburns or bake in a tanning bed, I've got brown eyes and had dark hair.

    Yes, I was dx'd with melanoma and then two years later with breast cancer.

    Good thing I was doing all those other things so-called right because maybe it would have been even worse? I don't know and I refuse to play the blame game or the what if game. The fact is, the random number generator popped cancer for me twice. That's the net/net of that.

  • LivinLife
    LivinLife Member Posts: 1,332
    edited June 2021

    Hi Margo... I did regular mammo's... had several callbacks and 2 stereotactic biopsies on my right breast over the years. Then my left breast showed concerns, including on 2 callback diagnostic mammo's... My third sibling was dying of lung cancer, was weeks from the end and I was (as I had been) making frequent trips to Ohio to help and spend time with her.... The radiologist encouraged a biopsy that October though there was no way - had enough going on, all the others (diagnostic mammo and biopsies) on my other breast ended up being fine and I just needed to focus on my sister. Then COVID hit when I had my next 6 month follow-up diagnostic mammo - so extended to late June/early July 2020.... then biopsy... Stage 3, Grade 3 with comedo necrosis expected invasion (there was none thankfully). And it was DCIS which is certainly much better than any invasion soooooo.... it all worked out and I have no regrets - we can only be where we are.....(or were.....).

    Still a chance yours comes back benign though smaller chance at this point.... so if not benign I hope it's something like a precancerous (still benign) condition or DCIS..... I'll validate your guilt while also want to convey it's (guilt) overrated..... You'll get through whatever this happens to be for you and we're here with you and for you!

  • Rah2464
    Rah2464 Member Posts: 1,647
    edited June 2021

    Margot - please do not harbor any feelings of guilt or shame. Cancer is a metabolic misfire in your body and you did nothing to create that. Could life stressors add to the speed of which it develops? Possibly, we don't truly know. Could routine imaging have found your lump sooner? Maybe not. Didn't for me. I did mammograms, then the special 3D mammograms plus ultrasounds for years. I had clean images two months before my diagnosis. You performed a self exam (good for you), found a mass, and sought appropriate medical care. There is a smaller chance this could still be benign and I wish that outcome for you. If not, well we are all here to walk with you. Hugs and so sorry about the passing of your husband.

  • Annabelle2
    Annabelle2 Member Posts: 44
    edited June 2021

    Echoing everyone else here, please go easy on yourself. You are not to blame.

    I went in for a lump in March 2017 at the age of 38. Nothing was seen, the doctor (who my husband had worked with for 20+ years) dismissed me because I was "too young". I walked out of there knowing something was wrong, but in the interest of my husband's job and wanting to be nice and pleasant as always, I did not follow up. 10 months later I was diagnosed stage 3C. I did everything I was supposed to and still ended up in the hot seat. Cancer is a tricky sob and imaging is not a perfect science.

    Hang in there and take comfort in the fact you are in the right place now and all you can do is keep going. Sending big hugs.

  • Sunshine99
    Sunshine99 Member Posts: 1,680
    edited June 2021

    I'm there, too. Clean mammogram in May, found lump in October, cancer diagnosis in November. Playing the blame game won't help (she said with a gentle hug). Life long non-smoking, vegetarian, non-drinking, exercisers get cancer. Smoking, drinking, sedentary carnivores don't. Someone asked me early on, with my first cancer, why I thought I "got it". My answer was because I was born.

    And while we're on the subject, "positive thinking" may help your mental health, or your day to day attitude, but it won't cure your cancer, if in fact you do have cancer. Sheesh, what a load to add to someone who is already dealing with health issues.

    I do wish you well. I'm glad you've found this site. It's a wonderful source of comfort and information, unlike Dr. Google (and you know he's not a REAL doctor) who would have us picking out our coffins tomorrow.

  • Each_day_2018
    Each_day_2018 Member Posts: 154
    edited June 2021

    Margo - I am so sorry you find yourself here, sick with worry.

    I initially went to the doctor for a palpable lump two years before my diagnosis. I had mammo and ultrasound and everyone could feel it...but it didn't show up. Due to my age, the dr said I'm too young for it to be cancer (I was 29 at the time) and he didn't recommend a biopsy. I trusted his expertise and never went back for a check up, never got a second opinion...nothing. I was even a little embarrassed for making a big deal out of something that was obviously nothing (or so I thought at the time).

    I partially blame the dr, because he should have never told someone they can't get cancer because they're too young...but I share that blame as well, because I could have pushed for more or sought another dr. Either way, I can understand what you're going through. Don't beat yourself up over it...that'll make everything so much more difficult for you. You need to be kind to yourself. Even if you had done the mammograms all those years, there's no way you can know for sure that it would have even been picked up anything concerning.

    Annabelle - looks like we have similar stories!

  • Salamandra
    Salamandra Member Posts: 1,444
    edited June 2021

    The human tendency to take the blame for circumstances seems to be related to a need to feel a sense of control over our fate. It seems that however bad it feels to feel guilty, the prospect of accepting the truly unfair and arbitrary nature of life, and that even if we do our best and do well, we may still suffer greatly.

    You found a lump and you got it investigated. Do not underestimate the strength/courage that alone took, especially if you deal with health anxiety.

    Is there any way to know that keeping up with mammograms would have led to a different outcome? Absolutely not. Is there anything helpful to your peace of mind that comes from thinking that controlling this was in your hands? I doubt it.

    The book "Loving What Is" really helped me with rumination like this.

    You are doing great. Be proud of yourself. It's ok to look at your life and just think, 'whoah, haven't I had some bad luck!'. We have a culture of manic personal responsibility, but I see no virtue in assuming responsibility for cancer.

  • DelightfulJade
    DelightfulJade Member Posts: 24
    edited June 2021

    salamandra, thank you for mentioning the book. I will look it up for sure because it sounds like it will offer a healthy perspective.



    I agree that society does tend to push a manic sense of personal responsibility upon us! Even woman who comply with yearly screenings must feel chased by the inevitable diagnosis that just needs to be found ASAP and then all will be well. I often worried because I was noncompliant with recommendations so in some ways I was still chased by the specter of an eventual diagnosis. And there is no guarantee either way. It really is a crap shoot. On this thread alone there are women who did all the “right” things and still ended up here.

    The replies on this post have been a tremendous help in relieving some of my guilt. And the shame! It’s embarrassing when they ask when my last mammogram was. Well it just so happens it was as many years ago as my last doctor visit and I checked out fine - even though we’re always advised to see a doctor every year or so!

    The only control we have is in how we deal with what we’re given.

    Thank you to everyone who shared their experiences ♥️
  • Mamainsmalltownusa
    Mamainsmalltownusa Member Posts: 16
    edited June 2021

    please don’t feel bad- I think many of us are in same situation- that’s just life sometimes. I delayed mammo for too long because of covid, and in that time, things changed since last mammo, so now needing a biopsy. :/ but honestly, I don’t think I could have changed my waiting. We have a very vulnerable person in my house that can’t afford to catch covid, and our community spread has been high until just now. I def realize waiting 2 years was not ideal, but that’s how it goes sometimes with what life throws at you. ❤️I’m sorry for the loss of your husband- prayers and good vibes forgood results for you. ❤️

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