STEAM ROOM FOR ANGER

1262263265267268346

Comments

  • Elderberry
    Elderberry Member Posts: 993
    edited May 2021

    bcincolorado: I was an army brat too. Pay, pack and travel. As a household we kept things to the basics. Every two years, pretty much, a different neighbourhood, a different school, different friends. The only "constant" in my life were my toys as a little kid and other favourite possessions. I still have silly attachments to some things.

    runor: we still have the Thorenz turntable we bought in the early mid-eighties, and Mordan-Short speakers (small and powerful) . They were considered high-end back then and are still excellent. We do dust off records. Eclectic taste: blues, rock-a-billy, jazz, mountain, country, folk, classical (can you get much different than Miles Davis and Commander Cody and the Lost Planet Airmen?) Oh and I dance. I love to dance. Our CD collection has also grown to crazy numbers. I think I should go put on Meatloaf's "Bat Out Of Hell" :-)


  • Beesie
    Beesie Member Posts: 12,240
    edited May 2021

    Jaycee, I am so sorry. I will be one of the many of us holding your hand through the radiation treatments.


  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited May 2021

    Jaycee, wishing you the best results from the radiation, and I hope you tolerate them well. Many people seem to, which is encouraging.

  • BlueGirlRedState
    BlueGirlRedState Member Posts: 1,031
    edited May 2021

    Jaycee - wishing you great results from radiation and kicking the big C.

  • jaycee49
    jaycee49 Member Posts: 1,277
    edited May 2021

    My new RO last name is Call. Think about the ramifications of that.

  • cm2020
    cm2020 Member Posts: 615
    edited May 2021

    jaycee49...I am so very sorry. I hope the radiation works and your symptoms improve. Many hugs.

  • Beaverntx
    Beaverntx Member Posts: 3,183
    edited May 2021

    Jaycee, bummer but at least there is something to try, especially in " normal person"mode. Hoping for the very best outcome for you. Stay in charge!

  • edj3
    edj3 Member Posts: 2,076
    edited May 2021

    Jaycee, sending you strength & peace b/c this just sucks.

  • Chicagoan
    Chicagoan Member Posts: 728
    edited May 2021

    Jaycee,

    The insomnia sounds awful. Best wishes for your radiation treatment.

  • flashlight
    flashlight Member Posts: 698
    edited May 2021

    Jaycee, I am so sorry. exbrnxgrl has a post about cannabis. Have you thought about using it for insomnia and nausea? keeping you and JCSLibrarian in my thoughts.

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited May 2021

    Jaycee, I am adding my good thoughts and wishes for you, hoping the WBR gives you relief and helps you function better. You have really been through the ringer lately.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2021


    Jaycee - wishing you all the best with WBR and that your able to get some ZZZZ's too. Thinking of you my friend.

  • runor
    runor Member Posts: 1,798
    edited May 2021

    Rhosgobel - well. Don't I feel dumb. Here I thought I got cancer due to cosmic shitty luck. All along it was me not washing my vegetables. Now I regret not smoking cigarettes knowing that it was vicious veggies that were going to take me out.  She couldn't talk about herself like that? I do not know how passive aggressive people can say this shit with a straight face. I really don't. 

    I am pissed off and gobstopped on your behalf.

  • KIDI919
    KIDI919 Member Posts: 425
    edited May 2021

    well said runor

  • JACK5IE
    JACK5IE Member Posts: 760
    edited May 2021

    Jaycee and JCSLibrarian...my heart goes out to you both. (((hugs)))

    Yes, well said runor.

  • jaycee49
    jaycee49 Member Posts: 1,277
    edited May 2021

    Things are moving very quickly right now. I had my radiation planning yesterday. Now I am off until Tuesday. I need the break. Lots of issues and questions but I plod along. I put this in steam because I have a nurse at this new doctor's that I really don't like. Her name is Shirley. She talks to me like I am an idiot where it is actually she who is. I will have her every day the entire time. Sigh. Otherwise, my new RO is wonderful. We talk forever about all kinds of things. The steroids are keeping me awake all night but they got rid of the brain swelling so all other symptoms are gone. I am incredibly wired. Jumping out of my skin. But I don't feel bad at all. No pain, no sickness at all. I will post in steam, death and dying, and wherever. I will NOT have my own thread. People don't last after that.

    You people need to calm down. You are all too jumpy.

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited May 2021

    Oh no! I as someone who has logophenic variant progressive aphasia which is also an FTD disease I know some of this one too. My heart goes out to you. I do not know how much you know about it but there is a good website at Johns Hopkins about it. https://www.hopkinsmedicine.org/health/conditions-and-diseases/dementia/dementia-with-lewy-bodies

  • Elderberry
    Elderberry Member Posts: 993
    edited May 2021

    jaycee: we are jumpy because we care. I am sure we are all glad that the swelling is down and you are doing better.

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited May 2021

    Hey, Jaycee, you could tell that nurse off and then blame it all on the steroids. Just think of the possibilities.

  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited May 2021

    Wishing you the best jaycee. They gave my husband a dementia drug along with the steroids for the WBRT. He also took Ativan everyday. I'm glad the steroids are helping and hope that's all you need med wise to get through these treatments. I'm scared for you, it was brutal for my husband, but that was a different situation. I see many here have gone through it with good results.

    We do chuckle thinking back and remembering the non stop talking. I never heard him talk so much in all those years!

  • runor
    runor Member Posts: 1,798
    edited May 2021

    Jaycee, I like Shetland's advice. Tell the nurse to piss off then say it's the drugs talking. And yes I am jumpy. I'm jumpy because the medical tape I use to stick my cotton pantiliner in place came unstuck from my panties and glued itself to my pubic hair. When you find your panties are taped to your pubes by tenacious medical tape you jump, then you yelp, then you walk very, very carefully, with your knees touching each other and thighs not moving, to the bathroom to perform a delicate yet awkward rescue. This usually only happens as I'm striding through a mall then all of a sudden, yikes, holy shit, something is ripping my pubes out!  It's tape. Medical tape. No way to be cool while this is happening. (rooting for you, you know this. In your pocket to pocket punch nasty nurses)

  • LW422
    LW422 Member Posts: 1,312
    edited May 2021

    runor--how nice it must be to have pubic hair. #chemoproblems :P

    Jaycee--another vote for Shetland's excellent solution to the Nurse Shirley. Glad you're better.

  • KIDI919
    KIDI919 Member Posts: 425
    edited May 2021

    Jaycee: Elderberry said it all. We do care. Maybe we only know each other from this site but i think about you ladies everyday as I'm sure we all do.





  • edj3
    edj3 Member Posts: 2,076
    edited May 2021

    Oh hey put me in the punching pocket. I can do that for you also.

  • Piggy99
    Piggy99 Member Posts: 229
    edited May 2021

    Janet, I don't post much anymore, but I read every day, and I'm thinking about you and hoping that the radiation beats back those brain mets and gets rid of the terrible symptoms you've been having for the last few months.

  • Sunshine99
    Sunshine99 Member Posts: 1,680
    edited May 2021

    runor, you need to write a book. I was holding my stomach with laughter reading your latest post. Not that it is funny to be in pain, but to read your oh-so-relatable description had me doubled over in sympathy laughter.

    jaycee, let 'er rip and let her have it. If you want pocket duty from a bunch of us, I'm sure she'd hear shrieking from your pocket(s) from all of your ticked off sisters!

    Carol

  • BlueGirlRedState
    BlueGirlRedState Member Posts: 1,031
    edited May 2021

    runor - made me laugh to find out that I am not the only one to have a panti-liner stick to pubes rather than the panti. Even though I don't have many after chemo, it still hurts to rip it off.

  • Beaverntx
    Beaverntx Member Posts: 3,183
    edited May 2021

    Runor and BlueGirlRedState count me in as a third one who does not enjoy that pulling sensation!

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited May 2021

    Ooh, I remember that nasty crotch tangle! One great thing about hysterectomies is no more pads or plugs, although I've kept a small supply of each for years because my brain can't wrap itself around the idea of never having daily leaks or gushers ever again. But as tenacious as those adhesive strips are, maybe it's time to hang the minipads on the patio as a more stylish alternative to flypaper or no-pest strips. 😀

  • Beaverntx
    Beaverntx Member Posts: 3,183
    edited May 2021

    Alice, please post a picture when you do that. I keep some of those supplies around for when granddaughters visit!

Categories