I am scared!

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LoverofJesus
LoverofJesus Member Posts: 255
edited May 2021 in Not Diagnosed But Worried

Ok so I know I've been here before and wasn't received well because of maybe the way I worded my concerns.

So with that said I will preface with my back story.

In December of 2019 age 49 I noticed a hard lumpy area in my right breast along with puckering underneath . I kinda chalked it up to fibrocystic breast. I do have lumps in my left breast but you can just tell that it has a lot more fatty tissue because it is softer and more what I call squishy.

I went for a 3D mammogram in May 2020. Which came back as extremely dense breast and small round coarse calcifications in both breast Birads 2 with no sign of malignancy in either breast.

Fast forward to current. Both breast are painful but the right is more so. Also the right breast sits higher and not as saggy as the left. I again was thinking fibrocystic breast and that the right was likely just a lot more fibrocystic than the other which made it higher than because it is more firm. Then I googled (I know horrible) and it said that shrinking breast can be cancer. I don't know that my breast has shrunk as much as it just seems smaller because it doesn't sag like the other. I still have the dimpling or puckering at the bottom much like wrinkled skin kinda sagging. The only new development is I have two very small pink spots on my breast that do not itch or hurt, or anything like that. Which this is a year after my 3D mammogram.

I am of course terrified. I can't enjoy life and I'm in tears a lot. I made an appointment with a breast surgeon to get a better idea and hopefully an ultrasound. I refuse another mammogram because after my last one I was actually bruised in the same places the pink spots are and sore for two weeks. Besides with sure dense breast I figure an ultrasound will be better anyway.

I'm not looking for diagnostics here. I'm just looking for maybe similar experiences and need to know I'm not crazy. I know Birads 2 is good. But I also know that from what I have read that mammograms even 3D ones can miss cancer. Especially ILCOr maybe that is a low percentage. That is what I'm trying to find out here is an I scared for nothing can all this happen with fibrocystic breast at age 50?

I pray daily for everyone on here. And I know this is one of the best places for information that is why I'm here.


Comments

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited May 2021

    lover,

    Let me clear up one thing. I don't think that you weren't “well received". Many of us try to lower the anxiety level of those who are worried and waiting on testing by putting it in perspective. Yes, even thinking that you might have bc can be scary but sometimes new members jump to the worst possible scenarios (catastrophizing) when they have almost no facts to justify that. Not saying that's what you did but there is little value in encouraging a new members anxiety. *
    Can things be missed on imaging? Yes, but with multiple means of imaging, mammo, ultrasound or MRI, plus manual examination, it would be unlikely and IDC, unlike ILC, is less likely to be missed. Comparing yourself to someone else may be comforting but is ultimately pointless since we are all so different.

    You say you are terrified and can't enjoy life and I can understand to some extent but all the info you've received so far is favorable! As my mother often said, “Don't borrow trouble!" I hope the breast surgeon can help you out and lower your anxiety level. Take care.

    *The vast majority of bco members have already been dx'ed with various types and stages of bc. Encouraging health anxiety is simply bad for your health. This a very good reason to maintain some perspective

    PS: I just re-read your earlier thread and suggest that you re-read it as well. No one posted anything that could be interpreted as not “ well received”, but we were being honest about your situation. As adults, we understand truth is what everyone deserves even if it is uncomfortable to hear. Not being upfront doesn’t make a health condition disappear. Do take very good care of yourself

  • SparkleTBD
    SparkleTBD Member Posts: 20
    edited May 2021

    I don't know if you will get the answer you look for on a forum. I have had a BIRADS 5 turn out to be non-cancer and a BIRADS 4A turn out to be DCIS.

    I didn't get a clear picture of what I really had until I talked with the breast surgeon and had an excisional biopsy. Even with the DCIS the radiologist at the ultrasound assured me it was a complicated cyst (and was very wrong).

    The breast surgeon will be the most knowledgable and helpful for you, so I am glad you made the appt. I think that will resolve the issue for you.

  • Rain88
    Rain88 Member Posts: 167
    edited May 2021

    LoverofJesus, it is sometimes impossible to ignor fear that to other seem irrational, so what is important is not to ignor it, but rather to deal with it in a rational way. I know, it sounds like a paradox. But here are a few thinks that were going through my mind after I read your post. Since you cannot stay away from Google, (I couldn't either) it would be best to make a list with all the conditions you come across and you worry that they might apply to you. Present them at your appointment with your surgeon and have them explain why none of them is relevant in your case. This way you would gain assurance from a specialist and that will put your mind at ease. You might also want to ask your surgeon about the difference between a mammogram, an US and even an MRI and when are they recommended (in your case for dense breasts). All that to say that you need to take a deep breath, exhale and trust that you will get your answers soon. Best of luck! (((Gentle hugs)))

  • DutchieGirl
    DutchieGirl Member Posts: 103
    edited May 2021

    My mammogram did not catch my cancer. An ultrasound 6 months later found my cancer (a lump I discovered was being investigated). I would suggest an ultrasound if you’re worried (or MRI if you can get it). I truly hope you don’t ever have to join us here, but you will continue to be anxious if you don’t get some final answers. Best of luck to you.

  • flashlight
    flashlight Member Posts: 698
    edited May 2021

    Hi, I have had fibrocystic, dense, breast tissue all of my life. At first my MO wondered why I didn't feel the lump until she did a breast exam. Sometimes they still seem to change daily! Weight gain/loss and fluid retention can add to your issues. Do you have children? Did you breast feed? All that can make your breast sag. I have always had one breast that was larger than the other. Your consultation with the breast surgeon will hopefully answer all your questions. 3D mammo is always uncomfortable and I'm usually in some discomfort for a few days, but it is so worth it to have some piece of mind. Sending best wishes your way!

  • LivinLife
    LivinLife Member Posts: 1,332
    edited May 2021

    Glad you have an upcoming appointment with a breast surgeon to get things checked out! Glad you came back with your new/additional concerns.... Please let us know how the appointment goes..... We do care.....

  • LoverofJesus
    LoverofJesus Member Posts: 255
    edited May 2021

    Hello everyone! Thank you all so much for your advice and warm wishes.

    My Appointment is May 19. I am not going to lie I'm terrified. I know I should not worry till I have something to worry about, but I cannot help it.

    I do have a question though, has anyone had puckering, wrinkles skin and an indention with benign fibrocystic breast? Or is this statistically more of a cancer thing? I can feel a ton of little lumps all in my breasts but my right one that has the puckering has a lot of little lumps. No one large lump but a lot of lumpy bumpy firm breast tissue.

    I know I cannot diagnose on here. It is just quite honestly calming to hear of anyone who has had similar experiences that turned out to be ok. And you guys have already done a lot of research and know more than I do

    Again thank you and I'm going to try to keep busy so I won't stress so much. Tears have been coming a lot today.

  • LoverofJesus
    LoverofJesus Member Posts: 255
    edited May 2021

    Ok guys my mind is all over the place today! I cannot stop crying! I think that is could be ILC with skin involved. It really doesn’t have any of the tell tell signs of IBC except for two small pink spots on my breast.

    Of the ILC people how many of you had the “shrinking breast”? Mine is visibly shorter. I thought it could be because it has so much fibrocystic/dense stuff going on and the other has more fat than lumps so therefore it hangs lower. But after reading I see that is not typical for fibrocystic dense breast. But it can be for ILC.

    Someone needs to talk me off this ledge. I am truly praying that I’m overreacting. But I’m so scared. I am so afraid I’m not going to get to see my children get married or watch my grandchildren grow up or grow old with my hubby. I am venting I know and I’m sorry if I’m hurting anyone. I just need someone to talk to.

  • duchess78
    duchess78 Member Posts: 5
    edited May 2021

    I don't think that you weren't well received. I honestly don't know how to respond though. I certainly did not have what you are describing with puckering or red spots. It sounds like you need further reassurance from a medical professional. And possibly some help with anxiety. With so much anxiety it could be a never ending cycle of constantly worrying over nothing. Even if you are told again after this next appointment that it is nothing to be concerned about, will you be able to accept that? I can tell you after being diagnosed with triple negative and then later on ER +, I too have moments of panic. You have to live your life though. Don't let these thoughts take over your life! I promise I say this all in kindness. Let us know how your next appointment goes 😊.

  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited May 2021

    lover. Find your faith. When you are scared give it to the lord. He will not give you more than you can handle. Let him calm you and guide you.


    In a faithless world, knowledge is power and I hope the info you have received here can put you on a more rational path. Try not to waste your time worrying. I’ve been there. Wish I would have lived my life and not wasted a single second on something I have absolutely no control over. Your fears are validated and now that you recognize it and are getting checked that’s all you can do. Doing anything else is wasting your precious time enjoying life.
    I have had both cancer and benign findings. It’s quite trying at times but I am fine. I give irrational thoughts and worry about 30 seconds a day now and that’s it! Good luck with your appt. Let us know how it goes.

  • LoverofJesus
    LoverofJesus Member Posts: 255
    edited May 2021

    Thank you! And you’re so so right! I know God has this and me. He has always been so very faithful to me. (Even when I wasn’t when I was younger)

    My fear comes from seeing friends and family suffer with this miserable disease that is straight from hell itself. I know I should not have all this fear. And I know the Bible says that God did not give us a spirit of fear... I know fear comes from the enemy. I guess for today I let the devil in my back pocket. I allowed his lies to infiltrate me.

    Thank you for reminding me! I’m truly trying to just stop worrying. I admire all of you. You guys are so strong.
    praying for you all and thankful for you al

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited May 2021

    I’m going to leave G-d out of this as I am not a Christian. However, do whatever you need to allay anxiety over things that are not yet known or that you cannot control. If you do have cancer? Definitely not wonderful but bc treatments are doable. Not enjoyable but doable. Though I may not be typical I have lived, not died, for almost 10 years at stage IV.

    Yes, cancer is a scary prospect but you are a grown up and I know you can and will rise and deal with whatever comes your way. Take care

  • LoverofJesus
    LoverofJesus Member Posts: 255
    edited May 2021

    Thank you for the encouraging words! You are right I am a grownup I can do this. And honestly I’m a strong person. And very strong willed. I don’t know why this has gotten me so crazy. I honestly just hate cancer which I’m sure you all agree.

    Have a wonderful week!

  • LoverofJesus
    LoverofJesus Member Posts: 255
    edited May 2021

    Hello everyone! I don't know if I'm supposed to change to waiting on results or not. If so just let me know.

    Went to the BS today. He did an US and said he didn't see anything that looks suspicious really. And of course Mammo from 11 months ago was fine. But he decided to go ahead and do a core biopsy. As he did it he said that unofficially he didn't see any tissue that he pulled out that looked like cancer. But of course he had to send it to pathology anyway. I'm praying and believing that this is all good news!!!

    I would like to hear your opinions on this though about what you think his words meant. Or how you all would have taken that. The BS has been doing this for years and I super trust him. So I am believing tomorrow will be a good result.
    I think this is great news. What do you guys think

    Thank you guys and I'll check back in tomorrow.


  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited May 2021

    I have to ask, where are you located that the BS does the ultrasound and also the biopsy? That's kind of an odd one-stop business. And being able to eyeball a tissue sample with the naked eye and say it didn't look like cancer? I'm sorry, but there are red flags, flashing lights, and screaming sirens all over that doctor.

  • LoverofJesus
    LoverofJesus Member Posts: 255
    edited May 2021

    Well first of all. Most of the time you do go to the breast center to get the US and biopsy. But, if you’re already at the office (which I was) he will do it for me rather than making me wait again and go to the breast center. He is the head of the clinic for breast care. Which is where I was. He has been doing breast care and breast surgery for over 40 years. That is all he does is breast care and breast surgery. When I go for my next mammogram and US I of course won’t go to him I’ll go to the imaging center. But, he is a specialist for just breasts.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited May 2021

    Hmm, usually interventional radiologists do biopsies; it takes specialized training, and they do not guess about tissue or at least discuss it with the patient before it's been examined by the pathologist. And ultrasounds are done by people who have specialized training in that field. I've come across some horrible doctors who have been in business for decades. Longevity doesn't equal excellence. Some of the ones who've been practicing for years don't stay current with best practices.

  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited May 2021

    Sorry to say but I agree. That Dr. in no way should have given you any sort of opinion one way or the other on what the tissue sample looked like. You do understand it needs to go under a microscope at the pathology department. That will be your answer, and I guess he thought he was re assuring you, but that is a very unprofessional way to do it. What if he's wrong? I have heard of BS offices doing US and biopsy's although that's not how it works where I go either. The docs at the radiology center do the biopsy's and all the imaging and report back to the surgeon.

    All in all, I hope for benign results and soon!

  • LivinLife
    LivinLife Member Posts: 1,332
    edited May 2021

    Agreed on radiologists being the experts with these kinds of things....

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