COVID 19 VAX with BILATERAL LYMPHEDMA

I got mine in the thigh. recieved the second shot yesterday. The nurse told me they wouldn't give them in the hip because of issues with it aggravating the sciatic nerve.

I have not been vaccinated yet. I have not had the option until recently because I am young-ish and despite having MBC I was not in the priority groups. However, now I am hesitant because I'd like to find someone who can vaccinate my lower extremities instead.

I was fortunate enough to be warned about lymphadenopathy by my lymphedema therapist. She advised that I should be vaccinated, but that I should be vaccinated in the thigh or hip area because BOTH my upper extremities are so compromised at this point due ongoing LE issues aggravated by MBC.

By the way, BOTH the Pfizer and Moderna vaccines can cause lymphadenopathy, which is the medical term for the condition that is of concern to us with our impaired lymphatic systems. (I think J&J can too, although I personally have not looked into it as much because my MO told me to avoid that one.)

Thanks for starting this thread and I'm sorry for those of you who are suffering with the effects of the Covid vaccine on our already compromised lymphatic systems.

buttons - check with a "doc in the box" clinic or hospital clinic for getting vaccine in lower extremity. None of the pharmacies where I am were willing to. One "doc in the box" clinic was willing to, but I would have had to wait another month or two. I even had notes from 2 doctors requesting lower extremity because of lymphedema. Through casual conversation, it seems like people have had less reaction to Pfeizer than Moderna. Don't know about JJ.

Olma, thanks for sharing your experience. I hope you feel better soon and that whatever it is resolves soon.

If the red and mottledness continues or worsens you might want to get your platelets checked - some people were having that very rare side effect of low platelets. But as you said it could be lymphatic system related too.

I'm still a bit nervous about getting the vaccine, I have to admit. It's just one more medical procedure to go through, with unknown consequences, and I think I'm just worn out these days. I'm so drained from six months of chemo and four hospitalizations this year. I'm afraid of anything else unexpected happening to me, but I know it's not rational. Just my rant, thanks for listening.