DES Daughters with advanced breast cancer

Hi everyone, thanks for writing in, I feel like DES has really been forgotten as the first major endocrine disruptor and is "off the radar" in the breast cancer research community. Definitive evidence of increased risk but very little about what specific types and/or treatments might be more or less relevant.

Do any of you experience frustration that every single gosh darn site/conference/support network takes money from Lilly? Or worse, that many of us have to take oncology meds made by them? I've asked for some clarity from the advocacy organizations but have never gotten a clear reply (except from Susan Love who is "aware and working on it").

best to you all : )