Breast Biopsy and Brain/Head MRI - Support Needed Please

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  • LivinLife
    LivinLife Member Posts: 1,332
    edited April 2021

    Awesome news on both results!!! Fantastic! So I guess you have no need for the AI comments I was going to share? That is a good thing!

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  • Humblepeace
    Humblepeace Member Posts: 118
    edited April 2021

    Thanks Rah2464


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  • Humblepeace
    Humblepeace Member Posts: 118
    edited April 2021

    LivinLife- I would like to hear of any AI experiences or facts. I have been on AI’s for almost two years and my body has changed so much. Currently on Letrozole for a month and a week or so and I’m tingling all over and some itching feeling where the tingle happened. I’m available for any insight. PM me if you want.

    Humblepeace

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  • LivinLife
    LivinLife Member Posts: 1,332
    edited April 2021

    Ohhh Humblepeace my comments were not really going to be that helpful to you. I am weak ER (2%) and PR (5%) + so all I could really say is that is why I chose NOT to undergo AI treatment. I learned on this site, esp. from Beesie, that it would have been much of the toxicity and likely no (or extremely limited) benefit. My onc initially questioned that though now has been completely on board. She said unless I was 30% positive she would not have recommended it - likely b/c I had a BMX..... couldn't have radiation so hopefully the big surgery has resolved things.... time will tell as I've seen so many times on this site..... Best to you!

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  • Humblepeace
    Humblepeace Member Posts: 118
    edited April 2021

    Hello All,

    I'm screaming inside!!

    I received a call from the breast surgeon's office this morning stating that the radiologist added an addendum to the pathology and the results are discordant. I will have an appointment to discuss and arrange removal of the area in question, appointment will be May 5, 2021...Wow. This seemingly started with having a couple of fibriodadenomas removed.

    US Breast Biopsy w/ US Guide Left

    ******** ADDENDUM #1 ********

    1. Negative for malignancy at the 12:00 position. Fat necrosis and chronic inflammation and joint cell reaction.
    2. Negative for malignancy at the 2:00 position, fat necrosis, chronic inflammation, giant cell reaction.
    3. Pathology is discordant with imaging findings.
    4. Clinical surgical consultation is advised.
    The above findings were communicated by Dr. ________ to Dr. ________ on 4/9/2021 at 11:35 AM.
    ******** ORIGINAL REPORT ********
    Ultrasound guided left breast biopsy.
    Clinical

    History: Suspicious mass at the 12:00 and 2:00 position left breast

    I have read a bit on here and would like to know if there are others who have had any similar experiences?

    Thanks everyone

    Humblepeace

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  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited April 2021

    Hi there. I have had ONE good score on any type imaging and that was in year 1. With the post op changes which I learned by being on here they can happen over a period of years, and I am pretty sure I injured my left one in Mar/Apr of 2019, having alternate mammo's and Mri's at Birads 3, went for a biopsy in Jan 2020 and was fat necrosis with giant cell reaction. Sept. 2020 Mammo-Birads 3. Jan. 2021 MRI-Birads 3. Going Thurs for mammo of just the left side, seeing the BS next Monday. If it's not resolving, I'm done with going every 6 months, so if offered surgery to remove it, you bet I am pretty sure that's what I'm doing.

    Good luck with your appt. At least you know what it is. For now.

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  • Humblepeace
    Humblepeace Member Posts: 118
    edited April 2021

    ctmbsikia - Thank you for your response. I was told by the breast surgeon's assistance that surgical removal would. be discussed. During my appointment I will know more of what will be recommended. I'm happy that you have been clear during this time.

    Humblepeace

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  • LivinLife
    LivinLife Member Posts: 1,332
    edited April 2021

    Geez Humblepeace and ctmb! What an emotional roller coaster with all of this. Humblepeace we were just celebrating with you which is to your point (recent post)... What??? I know it's a lot to continue to go through.... I cannot imagine the ongoing scans every 6 months... yet another reason I'm glad to have had a BMX (to your point ctmb....). Best to both of you! please let us know how things go.... Gentle hugs to you both as well.......really feeling for ya!

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  • jhl
    jhl Member Posts: 333
    edited April 2021

    Hi Humblepeace,

    I'm a bit confused since you mentioned the radiologist added an addendum (#1). Was there an addendum #2? In any case, it appears you have this addendum attached to a tissue sample in which a pathologist gave a recommendation.

    Was this addendum actually a radiologist, which might have been before a biopsy or a pathologist, who might on a second pass have seen more areas of concern.

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  • Humblepeace
    Humblepeace Member Posts: 118
    edited April 2021

    jhl- The first report was what lead to the core needle biopsy. At which time the radiologist thought the images were not benign. He was aware that I had just had fibriodadenomas removed November 2020. He made phone calls to my breast surgeon just prior to doing the biopsy to get information about the area and how she entered, but she was unavailable. It would appear to me that he is well aware that scarring would be in this area. Also, I was told that the radiologist placed the addendum after reviewing the pathology. I’m praying he is just being extra thorough, an the findings will remain benign. The appointment is about three weeks away for the breast surgeon consult.

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  • Rah2464
    Rah2464 Member Posts: 1,647
    edited April 2021

    Well rats, Humblepeace, that this issue is still unresolved. But kudos to your team for following up and making sure that you have definitive information. Sounds like next steps are an excisional biopsy with a breast surgeon. Hang in there.

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