Lymphedema, chills, high grade fever ,neck lymph nodes

Options
siddhivinayak
siddhivinayak Member Posts: 78
edited April 2021 in Not Diagnosed With a Recurrence or Metastases but Concerned

Hi, i was diagnosed with stage 3 tnbc as you all can see from my info section.Past month was not good for me, I had cough,Fatigue, body pain. Now, 2-3 days back i got releif from all of these symptoms. Due to covid-19 i am not able to get appointment to my onco, i am trying again and again. But fortunately i am following my primary care, i got releif from almost all symptoms except my lymphocytes were increased during last blood work, also there were some increased lymph nodes in my neck largest one is being 13.5mm X 7 mm. But that is not the problem, today in the morning when i woke up, i had excruciating pain in my left arm (Same side as ca and lymphedema). I had never such kind of pain in the same hand, even my lymphedema is getting worse, my fever is running high as high as105°F.My left side body is paining as hell. I went to emergency they didn't do any test, they just said try to get appointment of your onco. I am not able to understand why my left arm has so much pain, even mobility is affected, i have lymphedema from starting but never had this kind of pain.

· Share on FacebookShare on Twitter

Comments

  • wallycat
    wallycat Member Posts: 3,227
    edited March 2021

    Fever = infection or illness of some sort. Have you been tested for Covid? fever that high is dangerous so I hope they took you seriously at the ED. Have you had the covid vaccine? I had my first one on Saturday and talk about pain (but no fever or chills) and swelling.

    Aches and pains are very common with high fevers so I think you need to determine what is causing the fevers (diverticulitis? dental abscess? sinus infection??). Lymphedema can vary and if your body is trying to flush out and deal with an illness (lymph glands), it could be added stress to them.

    I hope someone better versed can address this; that's my take on it.

    · Share on FacebookShare on Twitter
  • HersheyKiss
    HersheyKiss Member Posts: 550
    edited March 2021

    Is your arm red, swollen, or hard? Cellulitis is an infection in the deep layers of the skin and is especially problematic for lymphedema sufferers. Please contact your PCP for an evaluation. I hope you feel better soon.

    · Share on FacebookShare on Twitter
  • LivinLife
    LivinLife Member Posts: 1,332
    edited March 2021

    wally and hershey asked good questions! is your onc available by telehealth? otherwise can your primary care offer any other suggestions for evaluation? Something should be happening to further evaluate what's happening.... if that doesn't happen maybe go back to the ER - risk they will turn you away again - if you return there maybe be insistent on something needs to happen there bc no-one else is following up -...??? Feeling for you and hoping you get some answers soon....

    · Share on FacebookShare on Twitter
  • buttonsmachine
    buttonsmachine Member Posts: 930
    edited March 2021

    I am worried that you either have an infection or a blood clot. I had BOTH of these things and had symptoms like you describe. In either case you need to be treated at the hospital, and they need to check you for signs of infection (like cellulitis) and blood clots. Please get help soon, best of luck and prayers to you.

    · Share on FacebookShare on Twitter
  • buttonsmachine
    buttonsmachine Member Posts: 930
    edited March 2021

    But keep calling your oncologist too - maybe he/she can help you faster!

    · Share on FacebookShare on Twitter
  • siddhivinayak
    siddhivinayak Member Posts: 78
    edited April 2021

    Thnq, all Ladies for coming in, Finally I got an appointment to my onco (next week).


    · Share on FacebookShare on Twitter
  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited April 2021

    But IF this is cellulitis or a blood clot, it is not safe to wait that long, is it?

    · Share on FacebookShare on Twitter
  • Sunshine99
    Sunshine99 Member Posts: 1,680
    edited April 2021

    sid, it sounds like you should REALLY be going to an urgent care ASAP. Something is definitely not right and it needs to be addressed immediately.

    · Share on FacebookShare on Twitter
  • siddhivinayak
    siddhivinayak Member Posts: 78
    edited April 2021

    I went to ED, they prescribed to elevate arm and asked to wait and continue with onco, They said there is nothing they can do for this, Meanwhile i got a call from onco, they said to report in ED ASAP if have symptoms like high grade fever, Seizures, headache or speech disability.

    Currently i have no fever, little bit of fatigue is there. But now i have started speaking strange things while sleeping, my son told me,It is quite funny.

    Thnq all for your concern.

    · Share on FacebookShare on Twitter
  • buttonsmachine
    buttonsmachine Member Posts: 930
    edited April 2021

    Thank you for updating us - I just hope you can get some help soon!


    · Share on FacebookShare on Twitter

Categories