BI-RADS 5, just received biopsy results
Dear all,
I received my results. I had a BI-RADS 5 and underwent a core ultrasound guided biopsy. The gynecologist just called me to tell me that there are only pre-cancerous findings: a radial scar and an atypical lobular hyperplasia that will most likely need to be excised. She gave me a referral for a breast surgeon. I dont understand and I almost dont even feel happy because I was absolutely sure it was cancer. And I feel horrible for others who are still waiting for results or have had already a cancer diagnosis. Thank you for your support. This site has been a blessing.
Comments
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Amazing news! I'm so happy for you 😊
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Dear SaraJay, I am praying for you, please keep me posted. Thank you very much. I am still here.
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Well, we're happy for you.
"I dont understand and I almost dont even feel happy because I was absolutely sure it was cancer."
Please don't say things like that. You do know that most of us here have had cancer, right? And we'd give a LOT to not have had it? That's borderline offensive. Now go enjoy yourself.
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I am sorry for saying it like that, please forgive me. What I meant to say is that I was in complete shock, because the chances of it not being cancerous were 5%.
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I lost my father to stomach cancer at a very young age, I did not meant it in that way. So sorry.
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ltrinidad, with a BI-RADs5, a non-cancerous result is considered discordant. This is why it's been recommended that you see a surgeon to have an excisional (surgical) biopsy. The needle biopsy only picks up cells from one part of the suspicious lesion, and lesions often contain a mix of different conditions. So the excisional biopsy will remove the entire lesion, to see if anything else is hiding. I don't know about ALH, but after a needle biopsy finding of ADH (atypical ductal hyperplasia) there is about a 20% chance of finding either DCIS or invasive cancer in the excisional biopsy pathology.
I've been here a long time and over the years have seen lots of BI-RADs5s come back benign. Most often the benign finding is confirmed by the subsequent excisional biopsy. Hopefully that will be the case for you. Good luck!
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Dear Beesie,
Yes, that is what I had read (about discordant results) and I am now in the process of finding a breast surgeon and follow up on this. I will keep posting. Thank you very much for the good advice.
Laura
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Itrinidad,
I'm so happy and thankful for your results. Thank God! You are so supportive. I'm really glad for you!
Humblepeace
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Thank you all, you have helped me so much through these difficult days. I will keep coming back to report on any developments.
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Not to put words in your mouth, but I took your comment to be more like, you can't trust the apparent good news you got because you thought for sure it was cancer and now you are worried maybe they are wrong and it is and also nothing is fully solved yet?
I hope you get the junk excised ASAP and it turns out to be all a bunch of benign cells and such!
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2019whatayear, yes, that is indeed what I thought, since I had read about "discordant results", when the pathology report does not match the radiological findings. And I found it hard to believe I would be in that 5% of false positives. I am copying and pasting my results, in case this is helpful for anyone else. My gynecologist referred me to a breast surgeon and I just called Memorial Sloan Kettering this afternoon for follow up and surgery.
Final diagnosis (from the pathology report):
Breast, right, 11:00, 4 vm from the nipple, ultrasound-guided core biopsy:
- Complex sclerosing lesion / Radial scar
- Atypical lobular hyperplasia (ALH)
- Fibrocystic changes with stromal fibrosis
Comment: Immunostains for p63, calponin and E-cadherin confirmed above diagnosis.
Clinical History
Rignt breast, 11:00, 4 cm from the nipple, 1 cm irregular mass with high suspicion. BI-RADS 5
Received in formalin are three cores of yellow-white soft tissue ranging from 1.7 cm to 1.9cm in greatest dimension.
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Itrinidad I am very very happy that you had benign results in your biopsy but I am also very pleased that you are continuing the process. I do understand your suspicion about the good news. I sure hope you are in that select 5%. It has to be someone, right? Why not you? Thank you for posting about your results and next steps because it may very well assist someone else that has discordant results.
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Rah2464, I have been reading about discordant results, especially when there are radial scars together with atypical hyperplasia... I am cautiously optimistic and will wait for the excision biopsy, as others in the forum have suggested. I will keep posting. Thank you so much for your support.
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Ah, the radial scar is more significant than the ALH when it comes to explaining the BI-RADs 5. Radial scars are the primary cause of discordant results because they have a very clear appearance of being cancer on imaging. But usually a radial scar is just a radial scar. The ALH, which does have the potential to be accompanied by DCIS or ILC or IDC, does add a complicating factor in your case, and probably increases the risk a bit that something more might be found. But with luck this will turn out to just be the radial scar and ALH.
One thing to be aware of however is that ALH is a high risk condition and will require more monitoring in the future.
Atypical Hyperplasia
.
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Dear Beesie,
Thank you so much for the information and support. Waiting to schedule an appointment with the surgeon. I will keep posting.
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