CONSTIPATION--problem with so many of our drugs

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Comments

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2021

    AK - thanks for sharing your story. Glad that you found something that works - large dose of Mag. I didn't have such serious 'back ups', but that worked for me too.

    Interesting - I'm mostly vegetarian too. If I eat two slices of bread (any kind), I gain two pound - but it's also enough bulk that I have happy poops.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2021

    bumping again.

  • cm2020
    cm2020 Member Posts: 615
    edited February 2021

    I am just now joining this thread. This is a problem I have never in my life had and it is quite frustrating. Many years ago I had my gallbladder removed. So my issue has been the exact opposite of constipation. This is....well.....ugh....I am at a loss. A daily prune has worked for months but doesn't seem to be enough. I added a prune. Still not enough. Time to try other things.

    Treatment for breast cancer is the gift that keeps on giving isn't it?

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2021

    cm - great to see you. Hope you find something that works in the previous pages. Lots of "home remedies" - and some funny jokes.

    I take 250 mg of magnesium a day, mostly for leg cramps but it seems to help keep me 'regular'. I recently switched from Magnesium Oxide to Magnesium Citrate since it's supposed to be absorbed more easily. I usually do OK if I eat a salad at least every other day. But I expect I'll always have to watch it.

  • cm2020
    cm2020 Member Posts: 615
    edited February 2021

    MinusTwo... Thank you. I may try the magnesium (i think it helps with sleep too) once I get closer to finishing the bottle of miralax. I haven't been able to eat salad since I had radiation. I was eating a giant salad every day when I was undergoing radiation. Well radiation did a number on what tasted good and what didn't (even though it was only to my breast and lymph nodes). Even the thought of a salad turns my stomach now. I struggle to eat even most raw veggies. In order to get veggies now I make veggie soup and eat it every day. Hopefully one day I will be able to eat at least raw veggies, if not salad.

    The miralax and smooth move tea worked initially but I am not convinced I am in the clear. I didn't take miralax today, but did drink the smooth move tea. I should have taken miralax too (i will tomorrow). I am also going to increase the number of prunes I eat.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2021

    Good luck. Let us know if it works.

  • AKColleen
    AKColleen Member Posts: 20
    edited February 2021

    MinusTwo..thanks. This journey isn't over yet. You'd think being on 1500mg magnesium citrate daily and i'd be regular. I've not had to use a fleets enema in a week, YEAH! But still not yet having normal poo...moose pellets and hard or lightly loose. Can't find normal yet. I've been told I need to eat daily salads...That seems to help when I have salad material....just normal veggies don't do it. I'm still taking 250mg colase daily and 50mg Sennekot daily!! Sheeez.This aromasin is rough stuff but better than Femara for me. No more N/V. so that is good. I'm going to add the Smooth Move tea...I've been downing a cup of prunes every couple days.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2021

    AK - let us know. I think I read the preferred method is stewed prunes, but that was too many memories of my canned vegetables from my childhood. So I just popped a couple dried prunes every day.

    Glad to see this thread active again. There are some great tips.

  • YesIamaDragon
    YesIamaDragon Member Posts: 363
    edited February 2021

    I am now 6 weeks out from my last Kadcyla, started with the HORRIBLE constipation (which lead to a fissure and terrible hemorrhoids as well) during TCHP. Of course most folks getting perjata get horrible diarrhea, but I had to be different. The constipation has continued. I use loads of colace and mag citrate and dulcolax daily, and miralax mostly only on weekends, but sometimes multiple times a day. I eat a generally high-fiber vegetarian diet, lots of homemade yoghurt (no sugar) and kefir. Drinking prune juice and eating dried prunes and apricots.... and still need glycerin suppositories. Even those sometimes don't work! This week had two days doubled up in pain with bloating. At what point do we say this is not just a side-effect, and sign up for a colonoscopy? I am not even sure if I could get myself cleaned out enough for one!

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited February 2021

    I tend toward the constipation side of any meds. It’s miserable. I had to switch from zofran to compezine that I take every week as premeds before my infusion. Ive used most of the OTC meds and agree that enemas and suppositories are not a long term solution

    I didn’t know I could take two of the senna every night. That’s made a difference plus the magnesium. I also eat a couple of prunes and a handful of almonds as my nighttime routine. This seems to keep me regularish.

    Otherwise I’ll add baked beans, broccoli, bran cereal or more prunes. They make a difference. My intestines after chemo don't seem to move. There is a senna with a stimulant.

    I have a gf that takes 4 colace and 10 prunes a day.

    As a side note. You can swap a cup of soaked bran flakes for a cup of flour when baking. I make this swap when making banana muffins.

    And as always drink, drink, drink. I find it harder to drink a lot in the winter.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2021

    Zills & Yeslama: Thanks for your thoughtful posts. I too find it hard to drink water - but for me it doesn't depend on the season. I just don't like water. Sigh.

    As I said earlier this month "I recently switched from Magnesium Oxide to Magnesium Citrate". My immediate reaction was that I had less constipation with the Oxide - but now 2 weeks in, I can't make that definitive statement. Jury still out.

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited February 2021

    Well poop. Lost my post twice. My MO recommended a probiotic. I read about one and found it on Amazon. It swung me the other direction. Back door trots for a few days before my infusion.

    https://www.amazon.com/Day-Supply-Probiotic-Prebiotic-Effective/dp/B00N1G17GG

  • cm2020
    cm2020 Member Posts: 615
    edited February 2021

    Zillsnot4me...Did you dr give you any guidelines on which probiotic was better/what to look for in one? Did the one you linked keep giving you "too good results" or did things stabilize?

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited February 2021

    she said any OTC would work. I picked that one because of the reviews. My system is so wonky. The trots weren’t all the time but it was mushy almost all the time.

  • cm2020
    cm2020 Member Posts: 615
    edited February 2021
  • sbaaronson
    sbaaronson Member Posts: 230
    edited March 2021

    Stumbled on this thread. I have been using a product called SHINYALab, Intestinal Youth, recommended by another Piqray taker. It has botanical ingredients, probiotics and prebiotics. Bought it on Amazon, it has been really great in keeping my gut stable.

    Best

    Stacey

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited March 2021

    Thanks for the recommend Stacey. Always good to hear about things that are working.

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited June 2021

    OMG! I found something that works! I’ve had a bag of chia seeds in my cabinet for awhile. I didn’t know what to do with them. I made a milkshake the other night and added them. I prefer them crunchy. They remind me of strawberry seeds. I also added a scoop of protein. I feel so normal. No cramping. No wishing for poop. No in/out/in/out etc of the bathroom.Just normal.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited June 2021

    ZillsMeNot - thanks for the report. I'm going to add Chia to my arsenal.

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