Awaiting MRI appointment after atypical FNA

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Annake
Annake Member Posts: 43
edited April 2021 in Not Diagnosed But Worried

hi all, I hope I can get some responses.

last year July I felt an obvious lump on my left breast above my areola. I actually also had a lump that I wasn't too sure of in my right breast centre outer. I realised then I had felt a bit uncomfort and warmth, but thought it was my bra hurting me before

The doc told me it is probably hormones, but sent me for a mammogram and sonogram because I am 37....nearing 40.

it came back as fibroadenoma.

In Sept I noticed my areola was indented and I could feel a part(edge) of the lumo inside my areola. both lumps has grown as well.

I went back to the doc and he said he won't send me to the hospital because it is full of covid patients. He told me my lumps needs draining.

My lumps grew even more and I went back in Feb and he referred me to a breast specialist, still telling me it is hormonal.

Specialist did a FNA - results atypical and she said she is reffering me for a breast MRI as my cytology report is "too busy".

Clinical history on my cytology report: Ultrasound negative. except for thickening ducts. Mammogram negative but skin retraction on left side. A few notes on my report: Breast 1 - Abundant red blood cells, Occasional cohesive groups of breast duct epithelial cells are present with myoepithelial cells noted. Mild atypia present. Breast 2 - Abundant blood present in background. Cohesive groups of breast duct epithelial is present. Focal crowding of nuclei are present with atypia.

Masood's score 15.

My medial insurance don't cover MRI, but the specialist is motivating it. She mailed and said if they decline I must not pay up until I have results as it may be a PMB.

My right breast - I can feel thickening of the skin over the lump, I noticed my pores around has enlarged a bit, I see ridges on the thickening.

I just don't understand why these 2 big lumps are not being picked up on a ultrasound. The fibroadenoma on the mammogram is not where these 2 lumps are. It is deeper inside where I can't even feel it.

I am just concerned this might by IBC. I must go for the MRI on the 30th only because of my cycle. The waiting game is driving me nuts.

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  • LivinLife
    LivinLife Member Posts: 1,332
    edited March 2021

    Welcome Annake! Sorry you are dealing with all of this though glad you found us! I cannot really comment on all of the medical aspects you described.... I just don't know enough. It does sounds like something is certainly going on. MRIs can pick up more than ultrasounds or mammo's so hopefully that gets approved. Hopefully others will come along who can give you more feedback.... Please let us know as there are more developments or if we can provide additional support....

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  • Moderators
    Moderators Member Posts: 25,912
    edited March 2021

    Annake, we're sorry you are here worried and waiting, but so happy you decided to join in! We hope you find our Community to be a place of support and helpful information

    If you are concerned about IBC, check out this topic, it may be of help: Topic: Worried About Inflammatory Breast Cancer? Start here.

    Good luck with tests and results. Please come back to let us all know how it goes. We're thinking of you!

    The Mods

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  • Annake
    Annake Member Posts: 43
    edited March 2021

    Thank you for responding. I will keep you guys in the loop.


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  • Annake
    Annake Member Posts: 43
    edited March 2021

    Post a reply

    hi all, I went for the MRI today and then they wanted to do an ultrasound after that too. The docs who looked at my scans and did the ultrasound said he can't say it is cancer and he can't say it isn't cancer. he doesn't really understand or know what is going on with my scans. he asked me if I am a diabetic, I am not, but have that a lot in my family. he also asked if I have any other illnesses, which I don't. he said he will compare all the scans again and get a second opinion. he said mine is an interesting case. he will send his report to my specialist and she will decide the way forward,

    I am so confused why these giant lumps don't show clearly what it is on the scans. my specialist will only see me next week.. I don't have an appointment yet

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  • kathabus
    kathabus Member Posts: 205
    edited March 2021

    Sorry you're not getting answers, but it sounds like you're on a path to getting some. I wanted to say.....some scans can pick things up. Some don't. It's very normal. Happens all the time, which is why we get breast mammograms AND breast ultrasounds AND breast MRIs when diagnosed.

    I'll give you an example. My MRI picked up a suspicious finding. When we went back to the ultrasound, we couldn't see it because the areola was creating a shadow. So I had to get an MRI guided biopsy. Only saw it on the MRI. (And it wound up being a benign finding!)

    As far as diagnosing you with breast cancer from a scan....a biopsy will almost always have to preceed that diagnosis. Suspicious finding? Yes. Biopsy recommendation? Yes. Cancer diagnosis....Not usually.

    So until the radiologist sees something suspicious enough to recommend a biopsy....I would try not to panic. And even if you do need a biopsy, most come back benign.

    I know it's hard, but it sounds like they're working very hard to find answers for you, which we love hearing. Keep us posted!



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  • 2019whatayear
    2019whatayear Member Posts: 767
    edited March 2021

    Ugh! No one wants to be an interesting case! big hugs

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  • Annake
    Annake Member Posts: 43
    edited March 2021

    thank you Kathabus, but I just don't understand or accept that theses 2 giant lumps can't have answers.

    They are not fibroadenomas. I know this now. so what are they? they have doubled in size in less than a year. I have read lumps in both breast are rare though.

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  • Annake
    Annake Member Posts: 43
    edited March 2021

    thanks 2019whatayear...… I don't know what to think.

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  • kathabus
    kathabus Member Posts: 205
    edited March 2021

    I don't think you should accept no answers. I hope I didn't come across that way.

    I have had two suspicious "lumps" in my life. No diagnosis until they were biopsied. One was cancer. One was a papilloma. Until they look at it under a microscope a lot of times they can't speculate. Scans can show suspicious areas and you can speculate certain characteristics....but often times you need a biopsy for a firm diagnosis. Does that make sense?

    Is there a reason why they wouldn't biopsy it if they feel it might be cancer?

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  • LivinLife
    LivinLife Member Posts: 1,332
    edited March 2021

    kathabus is correct in all she is conveying.... and it sounds like the radiologist is on top of things! He just needs to gather more information and it's a really good thing he is consulting too. You may indeed need a biopsy and as kathabus said most of those come back benign. I hope that is true in your case though it 's still an unknown and unknowns lead to greater anxiety for most folks. I hope you get answers soon - they are indeed working on it....

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  • Annake
    Annake Member Posts: 43
    edited March 2021

    hi Kathabus, no you didn't come across that way. I was just uttering my frustration..sorry.

    They might do a biopsy, I don't know yet. I will prob hear what the plans are next week when I see my specialist.

    Wish I didn't have to wait till next week to see her.

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  • Annake
    Annake Member Posts: 43
    edited March 2021

    Thank you Livinlife, yes I was grateful that they actually were honest with me yesterday. I didn't think I was going to get answers until I see my specialist. The lady who did my MRI was in high school with me lol. who would have ever thought.

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  • Annake
    Annake Member Posts: 43
    edited April 2021

    Email I received:

    I have seen your MRI pictures and the radiologists are concerned that the contrast uptake and washout are both enhanced, ie the blood supply. They are not seeing any masses on masses on ultrasound either, so we could be looking at a precancerous change, but that is unlikely to happen on both sides at once. The other possibility is a lymphocytic mastitis which is autoimmune. I will need to do some blood tests - will send you the form which you can get done at pathcare ( various places) and they also recommend core biopsies which I can do in my rooms. Will ask Nadine to make a time with you next week to do this, then I can also compare if anything has changed in the time intervening.

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  • LivinLife
    LivinLife Member Posts: 1,332
    edited April 2021

    So I guess my question for you is "How are you feeling Annake?" The fact you posted without giving any opinion has me thinking you either want to see what others think or you're kind of freaked out - likely both? So when will the blood work and core biopsies happen? You posted 13 hours ago so I'm hoping you've heard from someone about scheduling since then..... The unknown likely adds to your anxiety at this point.... I hope you get some specifics, vs. speculation, soon.... they are working on it..... Gentle hugs and support sent your way!!!!

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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited April 2021

    ANnake - glad you're getting GREAT feed back on the other thread you started. It's hard to follow of the same thing.

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  • Annake
    Annake Member Posts: 43
    edited April 2021

    Hi Livinlife, yes sorry, I thought I will just post it and see if someone else had a similar issue. I am doing the blood tests Tuesday and the core biopsy on Thursday. Both speculations are very rare. Then I found something else that is also very rare disease and wonder if I can mention this to my specialist to consider. I just don't want to annoy a doctor with something I found will googling these two options.

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