Implants -- what was the worst part?

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Hey all! I'm scheduled for my DMX on June 7. I'm 99.9% sure I will go flat. But for that little part of me that considers implants, what is the worst part of having them? Aside from the potential of leakage and illness... which are bad enough.

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  • Beesie
    Beesie Member Posts: 12,240
    edited March 2021

    I have silicone implants - today's silicone don't leak. And I've never worried about illness - yes, it's possible but it's rare.

    The worst part was simply adjusting to having it. At this point I rarely even notice.

    You might want to post this question in the Reconstruction Forum rather than the Living Without Reconstruction Forum. If you send a private message to the Moderators, they can move it for you.


  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited March 2021

    Hello,

    Leakage of implants that are silicone is a virtually non-existent problem these days as almost all of these implants are cohesive gels. If the shell should rupture, very unlikely, the silicone remains a solid, like a gummy bear. They don’t leak or run. If saline implants leak, it’s just saline. As for overall illness, yes, it exists but does not effect the vast majority of women who choose implants.

    That aside, even with implants there are different ways to go about it. Temporary expanders, one step (no expanders), over the muscle, under the muscle etc. I have had my implants for almost 10 years and they were one steps, no TE’s and are under the muscle (over the muscle was rare 10 years ago). I had surprisingly little discomfort and wouldn’t even use the word pain. Yes, muscles were being stretched, the Alloderm slings felt tight and, of course, I was recovering from surgery but I was happily surprised at the fact that it wasn’t really painful. Here’s the thing, my experience or anyone else’s, may have no bearing on what you experience. Also, I avoided TE’s which is the less common route as I know quite a few folks hated TE’s but dealt with them knowing it was only temporary. All the best with whatever choice you make.


  • BeauJoMom
    BeauJoMom Member Posts: 9
    edited March 2021

    Thanks! I was hoping to hear from ladies who had implants then decided to go flat as that where I am leaning. I wonder if having implants feels strange... can I tell they are there, does it take awhile to get used to having something foreign in your body? This is why I am leaning towards flat. I worry that implants would just feel fake.

  • Beesie
    Beesie Member Posts: 12,240
    edited March 2021

    You only want to hear from women who had implants and then removed them? Only a small percent of patients who get implants have problems that are significant enough to choose to deconstruct. So you are not really interested in what it's like to have implants, you are only interested in hearing about the problems because that will convince you that you are right to go flat.

    If you want to go flat, that's great. Do it.

    Make your decision based on what you want to do, not based on what happened to someone else who hated having implants. There isn't much that is guaranteed about this process, but one thing that is certain is that what happened to someone else has absolutely no bearing on what will happen to you. Your experience will be unique to you.





  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited March 2021

    beajomom,

    What do you want? Ultimately that's the question you need to answer. Are you looking for affirmation that implants are painful or harmful? There will be some who can attest to that, but that's the minority. Yes, there are whole threads devoted to uncomfortable implants and explanting, but folks who are happy with their recon tend to fade away from bco as they put their bc experience behind them. The reality is that most women with implants are quite happy but a small number are not. Neither of those scenarios should factor into your decision as you will have no way to predict how you will be be effected should you choose implants.

    Yes, I do know they are there if I think about them but after the first few months I barely noticed. So, tbh, it was weird at first but things normalized fairly quickly. One thing to remember is that after a Mx/bmx all underlying breast tissue is removed so you will lose sensation. Many of us find that skin sensation returns but that's about it so in that sense things don't feel the same, which you might consider “fake" and indeed, implants are not breast tissue. Externally, they feel like the firm breasts of a younger woman but are warm.Since I'm almost 65, I am happy with that “side effect". My implants are now a normal part of me and I rarely even think about them.

    Go flat or do recon, it's up to you but other peoples experiences are not predictive of what your experience might be. Nothing can predict that! It sounds as if you are looking for bad implant experiences to justify your desire to go flat. Please look at what you want. Going flat is an excellent choice for many as are implants. You have to decide what will be best for you.

    Exbrnxgrl (Ten years out, thrilled with my implants

  • BeauJoMom
    BeauJoMom Member Posts: 9
    edited March 2021

    Thanks Beesie and exbrnxgrl,

    You made some great comments and gave me a lot to think about! I completely respect everyone's decision... it certainly isn't an easy one on top of dealing with the uncertainty of cancer. If someone would have told me I'd be going through this a few months ago, I wouldn't have believed them.

    One thing I know for sure, sharing thoughts, fears, and victories with others who have or are going through the same thing makes all the difference!

    Thanks so much :)

  • delbo
    delbo Member Posts: 10
    edited March 2021

    Hi there,

    I am one of those “rare" people who had implants and later got them removed and went flat. I am so happy I did, and if I were in your shoes I too would really like to hear from someone like me! Implants are not for everyone, and being forced into the decision between reconstructed breasts or going flat because you have cancer makes the decision even harder— you didn't get to the question on your own, you were forced into it.

    I had a really difficult time with my implants. It started with an infection in my tissue expanders, and my plastic surgeon ignored my symptoms for two months until I had to have emergency surgery. My later exchange for implants went a bit better, but they were bigger than what I had wanted, even though everyone else agreed it was a good result. I had them for three years, during which time I gained a lot of weight and had a lot of discomfort, and I went to physical therapy three times a week the whole time to try to get a handle on the situation. It took me a long time to even learn that going flat was an option, and a way out. My PS was really unsupportive of the decision, but I was finally able to push it and the relief that I felt after explant was honestly indescribable. My pathology report showed that they had been causing chronic inflammation, which was an answer to the physical difficulties I had been having. I felt like me again, I looked like me again (my dad even commented that my face was full of life again), and I realized I wasn't compromising my health or comfort for aesthetics, which has never been a very “me" thing to do.

    Moreover, and more to your question, I don't think I was ever really the type of person to have something “fake" in my body; I wouldn't have ever considered implants were I not undergoing mastectomy at a young age (and absolutely everyone told me I'd regret not getting reconstruction— but I didn't know enough about myself to know they were wrong). On the best of days, they weren’t “me” and they weren’t really boobs either, and I wish I could have mourned what I had lost without the cognitive interference of something that made me throw away a bunch of clothes I loved and try to start over as someone who had a really different body, not just one that was sadly missing something I used to have. It’s really hard for me think about how much of my time was spent dealing with them and the multiple surgeries they entailed, when I could have been one and done, too. Plus, now I can have whatever size boobs I want whenever I want, even though I'm mostly happy to just go flat. I’m 32 now and was 27 when I got the implants, and I would definitely say that I can dress a lot better (including swimsuits) with prostheses or flat vs. trying to fit things around my stiff and foreign implants, just in case that’s part of your question, too. I hope my perspective helps give you some clarity, even if we are very different kinds of people and you come to completely different conclusion. I didn't get to hear voices like mine beforehand, I wish I had, and I think it's really great that you had the foresight to seek some out. If you do go flat, I highly recommend reviewing the Flat Closure Now website, so that you are able to assure that you'll get the results you want. I hope this helps and wish you luck

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited March 2021

    delbo,

    Thanks for relating your personal experience. Like my good experience with one step implants (no TE’s), neither of us had any way of knowing in advance whether getting implants would work out or not. I am loathe to give any recommendations because we are all so different. I suppose in the end one has to decide if they want recon or feel ok with going flat. Most people who get recon are happy with it but there is a chance, as with you, that there might be problems. Wouldn’t it be nice if we had crystal balls?

  • BeauJoMom
    BeauJoMom Member Posts: 9
    edited March 2021

    delbo - Wow, thank you so much for your reply. I'm sorry you weren't presented with the option to go flat at the beginning. Isn't it strange how society (including our closest loved ones) seems more concerned about us having breasts then we are? I think it comes from a place of love on their part however. My instincts told me from the very beginning that I would go flat. I know several friends who have implants that are perfectly thrilled with them. I just don't think I will be. So happy to hear you are feeling better now!

  • AnnC2019
    AnnC2019 Member Posts: 203
    edited April 2021

    I would not want to go flat and I’m happy I decided on implants. I wanted Diep but was rejected for that surgery. My implants don’t really look good without clothes and they are two different sizes which is obvious to me. I also don’t have a nice side view as I look really small. That said, they make me feel better. Everyone is different and there are no right or wrong answers. I went for a body scrub yesterday and realized how self-conscious I feel naked without nipples and scars. I was embarrassed.

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